I do have that option and it was discussed at my last appointment and I hear that a lot of people have done it. They told me that I would need to have it done within 5 years but new research has...
Hi Q, I saw my surgeon a few months back and decided I didnt want a j-pouch, things are ok.. well as ok as they can be and I'm not sure I can handle going through any more surgery. Yes the night time...
Thanks ipoop. 😌...
I have a stoma and bag. I've had mucus before, but this has gone on for a while now and I've got spotting (blood). I'll contact my surgeon and see what they say, as my last colonoscopy did show some...
So I've had a colectomy and still have the rectum part, I had this done in 2016. But for past week I've had discharge coming out and covered in spots all over my forehead. This is something that used...
Thanks for sharing Albannach. Glad your happy with the jpouch, not sure if I'm going to go down that route yet still a little early for me to decide. X...
Thanks notsosicklygirl, I really wish they had just removed everything in one go. The thought of having surgery again just scares me. I'm still not sure if I want a jpouch just because it's a lot of...
Thanks iPoop, I'll have a read through those links and posts. X...
So I had an ileostomy 5 weeks ago to remove large intestine, rectum/anus still intact. I'm finding that I'm still bleeding from the back, now I know this is not uncommon but I just wanted to know if...
I'm in a very similar situation to you, I've been in a flare since April this time and nothing has worked. I've actually had my second meeting with the surgeon to talk about surgery, I've decided...
So I've seen the IBD nurse and as I'm still bleeding she has put me on Budesonide (Cortiment 9mg) for 4 weeks to see if this will help, I've also got a endoscopy booked in so they can see if it is UC...
I have enemas but they don't seem to stay in, at first they were fine but as my urge has increased I'm lucky if they go in far enough before it all just comes gushing out! 🙁 Good to know there are...
The only other medication I'm on is Pentasa as I kept reacting to all the others and even a high dose of steroids make me manic. I had my first infusion and then another a week later and then another...
So I've just had my 3rd infusion yesterday and im a bit worried that im not responding to the infliximab as i should. My IBD nurse says that it takes time and after my 4th infusion i should start to...
Hello all, thanks for all your advice and support. Im not currently taking any vitamins as the DR told me to stop them all for now, which i do find odd as surely there must be some vitamins that im...
Hello all, just a quick update. Ive had my second infusion some weeks ago however the problem im now having is 'food'! So i managed to work my way up to having roast chicken and some oven baked veg,...
Thanks iPoop, really trying to keep positive. I guess knowing that other people have come through it is some kind of hope that it will get better on this. Im really hoping by next weeks infusion i...
I feel like throwing in the towel everyday, I hope the Remicade gives you some relief. Im still trying to get used to the foods i can and cant eat right now. Hopefully by my next infusion i should...
Thanks iPoop, that's really encouraging to hear. Ive practically been through every type of medication and reacted to it all and this was the last thing to try. I thought the nausea and fatigue was...
Does it get better though if i carry on with it and I think you may be right, I think it is getting worse as when I posted this morning I wasnt bleeding at all or yesterday and all of a sudden im...
Thanks iPoop, ive just had some mash potatoes and will try a bit more later. I think i may not want the second infusion which is next week, this is really quite tough. Feels like a double pained...
Thank you both for your reply/advice. Im not bleeding so thats one thing, not sure what my protein levels are but will request blood test. I may just try toast all day and see if i can get this under...
So I had my first infusion last week after bleeding for 2 months and being left with Remicade as a last option. Since then im struggling to keep anything 'in' everytime i eat it just comes straight...