I was on antibiotics for 5 months about a year before my official diagnosis....
White, fatty looking mucus attached to my stool off and on for years. Then it progressed to sometimes only passing mucus, then I began having blood mixed in my stool....
Have you tried taking a non-PPI acid reducer, like Pepcid instead? I haven’t noticed mesalamine causing me upper digestive upset, hopefully you can figure it out....
I ended up stopping it after 3 days. I am just too nervous. I see my GP tomorrow to talk about other options. Should I worry after only taking 3?? 😬...
I recently picked up a bottle of probiotics, sacchromes boullardi (however that’s spelled), and I happened to notice on the bottle that it had an unusual warning, a bit different than what I’m used...
I think I’m battling a stubborn case of perioral dermatitis, an irritation around my lips. Topical treatments are not helping so my dermatologist, who knows I have UC, prescribed me low dose...
I’m low vitamin d but it causes crazy side effects for me, including raising my already high calcium levels. I can’t take it....
I’ve found myself in a lot of situations lately where I am giving everywhere I can and a small, human part of me can get down inside when I think of how thankless being a helper can sometimes become....
Had you stopped or reduced drinking by the time your nerve issues appeared? I had already slowed down before this tingling stuff. I have done more reading and apparently it is quite a common reaction...
Best of luck, I hope you can get a clear answer. After reading about these nerve issues, it usually points to diabetes or alcohol use. I certainly don’t have diabetes, but I’ve been a 3-4 drinks a...
Why are you not taking Lialda this week?...
So weird, I just posted a topic about Lialda and B12. I’ve been on Lialda for 2.5 years and I’ve began suffering from nerve type pains and bladder issues the last 6 months. No idea if it’s a...
Yes, all of my other bloodwork and BP is totally normal. Around the time I was diagnosed with UC, I began suffering waves of mystery symptoms that have never been resolved. I was hoping it was as...
After my initial diagnosis of UC 2+ years ago, my mild flares have been in remission, although I have since struggled with more IBS symptoms. Occasional diarrhea, but not frequent. As time has...
Any chance you had a flu shot lately? I’ve had a mild to moderate tinnitus for years, before and after starting Lialda, but I had my flu shot last year and let me tell you, I thought I was going to...
I’ve been suffering with hair loss since 6 months before my initial diagnosis. Been in remission since, yet my patterns of hair loss continue....
So strange seeing this post. I’ve been in remission with my UC since my initial diagnosis, but since my hysterectomy one year ago, the last few months I’ve been having these flares of what feels like...
Left my Lialda in my bag in the trunk of our car during our last day in Hawaii. It was HOT. Bottle says to store at room temp up to 77°, excursions up to 86°. No doubt it exceeded that. Would you...
Happened pretty immediately for me, but I was also taking Uceris for those first few weeks after starting treatment....
I’ve often wondered if an antidepressant would help me since I have frequent periods of intense stress that I’m constantly fearing will lead to a flare....
So now I’m freaked out that I have a flare coming!...
I have just started some turmeric gummies this week. Can’t say they are helping yet but I’m starting with low dose. I have a serious case of piriformus syndrome right now (muscles in my rear...
I definitely suffer from IBS type spells that never seem to turn into a flare (luckily). I’m learning my trigger foods and am starting to accept that my stomach is just going to act like a real fool...
So you’re saying riding my lawn mower every week is beneficial?! Score!...
Interesting that you’re not the first story I’ve read on here that said antibiotics induced remission. Food for thought. Antibiotics likely play a role in my disease. In short, I started having...
I hope not because I’ve been a terrible joint pain mess this summer and this last week I’ve had awful low back/tailbone pain and pressure. Stool seems okay but I’m worried. Feel like I have to strain...
I don’t think I would buy a book either. I more look to my peers in places like this for ideas, so sharing here is likely to touch more lives that the time, effort, and expense of writing a book....
I wish I could consider it but in general most raw or cooked vegetables give me IBS symptoms that are often worse than my UC....
Certain antacids (or acid blockers - PPI’s) like Nexium, Pepcid, Prilosec, etc are known to give me diarrhea if used for more than a few days. Sometimes they can cause more issues than they are...
Thanks noodles. (Lol @ our two names) ......
I was wondering if any of the women here have any experience with Botox or skin injections and if they believe it has had any impact on the immune system/UC? Been considering it but don’t want to...
I’m currently on a Z-pack for the second time in 8 months for a viral infection (chest cold). I’m a bit nervous as well but I did okay after the first course 8 months ago. Luckily it’s a short course...
I had zero side effects from Uceris and I’m hyper sensitive to everything....
You never know, the topical aspect of Uceris just might be a fit for you. I’ve personally never had a flare severe enough to take prednisone so Uceris has been successful for me. I say it’s worth a...
How do you go about finding the right strain? I live in a medical state and tried it once and only once (I was a pot smoker as a young adult many years ago.). I think I picked one that was way too...
I was same as you about cannabis. I used to smoke when I was younger but it had been many many years as I’m a mom and not really keen on being “stoned”. Ultimately, I know my anxiety has become an...
Is medicinal cannabis legal in your state? I’m finding it helpful for relaxing when I’m having a bad state of medical anxiety. Meditation, long walks, and nature are all helpful too. I suffer from...
I was diagnosed with UC on a second colonoscopy and my inflammation was also patchy. When I asked, he said he felt it was UC. I’ve still always wondered, but my UC meds seem to have worked either way...
I’m having a weird period of body wide inflammation and pain right now too. All I could guess was some sort of flare due to excessive sun exposure as I have no UC symptoms. Could this be a summer...
Very strange reading your post. This happened to me 3 summers ago but I am also in UC remission but lately I have been experiencing Lupus type symptoms with body-wide inflammation, pain, muscle...
My GI doctor said cow’s milk is terrible and he won’t even let his children have it. I do poorly with cow’s milk and while I haven’t actually drank goat’s milk, I do fine with goat cheese. So yummy...
You’re sure it’s not uterine/female organ pain?...
I’m really not sure. My surgery wS pretty uneventful and you’d think it would bother me even more consistently than it does??...
I don’t take any supplements and I generally try to avoid fiber. I only drink water and the occasional alcohol. My GI believes this is IBS and I’ve been told to do the Low FODMAP. It’s just hard....
I’ve had many FCP tests etc during these spells and inflammation is practically nil on the tests. No bleeding, no diarrhea... just a tiny bit of inconsistency. Stool generally fine. It’s just the...
Pepto always makes me vomit. I hope the SIBO question can wait until we get back. :(...
Thank you, Susie. Does he take it preventatively or after the onset of gas?...
Is this CBD with THC?...
I’ve been in UC remission since the early part of my diagnosis and treatment. I take Lialda. I had a hysterectomy about 8 months ago, and since then, I’ve been in a sort of constant IBS flare. I’m...
I’m interested in supplements too. Not necessarily for my UC, because apparently I’m in remission, but I have a world of IBS issues and I’m desperate for relief. Attempting a lower FODMAP diet but...