This is super interesting, and I will now try it! I did genetic testing recently for a variety of reasons and It was indicated I was at a high risk for IBD ( which I have lol) & Macular degeneration....
Hello! I saw your post and it totally resonated with me. This past year I have been in a stubborn flare I tried high doses of curcumin on a handful of separate occasions and I also determined for me...
Thank you for confirming my thoughts and affirming I am not crazy lol! Great tip on the sulfur free I did try them and also the foam, still no bueno. I am on the hunt, Thanks!...
I am taking 4 per day now!...
Thanks for the kind words! Mesalamine enemas, gave me profuse consistent diarrhea, heavy urgency and the suppositories gave me mass globs of mucous, increased urgency and severe stomach pain and all...
Hey Guys, I am posting on here again as I am not sure what to do. I have been flaring "mildly" since Feb 2020. I have had two flex sigs and a colonoscopy in between feb 2020-feb 2021. All is clear...
I use Naka Platinum aloe vera gel ( Canadian brand) for all that stuff, works great! Highly recommend! I am sure depending upon where you are you can find the closest aloe that's " all natural"....
I was on the same as you 9mg, I think it only comes in 9mg. I am supposed to stay on it for the full 8 weeks, then cold stop, not sure why you would be taking it down so soon?...
I am currently on it right now and have been for I think 5-6 weeks. It was definitely slow to kick in for me maybe at like week 3-4 I noticed improvement and honestly I am still getting mucous with...
In Toronto its slow as heck, 10 business days. Probably the same for Van....
Hi Guys, I have a week supply of sealed unused sodium butyrate enemas, I tried them for a few weeks and they did help a bit but now I am back on steroid enemas with no use for them. If anyone else is...
I see the same kind of MD. I did the SCD as soon as I was diagnosed with UC/UP. I did it strict for about 2-2.5 years as well. The past 5 years ( while I wasn't flaring) I was able to add in "...
Hi Guys, I have been looking through the feeds on here in regards to doing steroid suppositories in the am and steroid enemas in the evening but could't find much on it. Is it OK to do both for 1-3...
Thank you greatly, I miss Greenberg so much, I will reach out to Dr. Weitzman as well! Good to hear the assistant is quality, that helps huge. Thanks again...
Hi Guys, I am still in this extremely difficult to treat ulcerative proctitis flare from February... The meds that worked in my last flare for me didnt work this time ( steroid enemas-Betnesol &...
Thank you greatly, I hope they can take me on. Really appreciate the response....
Hi Guys, I am looking for suggestions for doctors at Mount Sinai the GI hospital in Toronto. I used to have Greenberg before he sadly passed away. My current doctor, takes too long too respond,...
Welcome to proctitis...although minimal as some have noted it is insanely stubborn, my first flare lasted 2.5 years and now in my second one I am currently in is coming up on 5 months still not in...
I've been there, my initial flare/diagnosis lasted 2.5 years " mild inflammation" just experiencing mucous and boy it was the same as you mention, long, persistent and frustrating. I would get a...
Thank you greatly, I will try this!...
I have been taking MultiStrain 11 and Multistrain 50 by Cyto- Matrix for 7 plus years and it works well!...
Hi Guys, Me again, My doctor is not very helpful, so I am again asking your thoughts. I finished the steroid enema taper ( Betnesol) and oral mezavant a week ago. I am still experiencing mucous (...
She is also 31 years old. Thank you...
Hi Guys, I am posting on here for my friend and looking for any thoughts/treatment/etc. My close friend was diagnosed with triple negative breast cancer in summer 2019 at the time the cancer was in...
Okay, I will do that one more week, thank you. She didn't say anything about the taper, I am assuming, day on day off for like a week and then second week every 2-3 days then stop? I will ask her...
Good question, the problem is my first flare lasted 2 years and every single enema made me worse/didn't do anything except the betnesol... so I am hesitant to add those back in for fear I will be...
Hi Guys, My doctor is not very helpful, so I am asking your thoughts. I have been on the betnesol enemas nightly now for 6 weeks alongside, oral mezavant 2 pills twice daily. My bowels have just...
Amazing, thanks, is there anyone in particular that has worked well for you? Thank you!...
Okay good to know, I guess I'll stop them then. I am on steroid enemas ( Betnesol) nightly, Oral Mezavant ( 4 per day) and yes I am taking a probiotic 4 times a day. I see a MD/ Naturopath who has me...
Thanks for the reply! Do you think I keep trying it? It did seem to help for a few days with reduction in mucous... so its very odd how on day 5 all of a sudden it has made me worse? Maybe I inserted...
I am currently in a stubborn proctitis flare, on day 5 of trying the "make your own" Vit E enemas ( using tocopherals) following what I have read online. I am doing the Vit E in the morning and the...
Hey Guys, I am currently in my second proctitis flare ugh. It took me 2 years to get in remission on the last one after trial and error with every enema under the sun. Betnesol enemas ( 2 weeks) and...
I feel your pain man, proctitis although just at the end of the colon, is SO STUBBORN! i flared for 2 years with the blood mucous and urgency, it took alot of trail and error with drugs all the while...
I use Multistrain 11 by Cyto-matrix, have been for 4-5 years. It's great!...
Anything from http://www.wellbees.com/ I wish I could order from it more living in Canada, but the delivery charges are huge so I only order twice a year!...
Yep! I had the exact same thing... the steroid suppos made me worse... I had your symptoms for 2.5 years until last april when I did steroid ENEMAS... NOT suppositories AND oral mezavant. Your doc...
Mount Sinai, Dr. Cohen/ anyone at Mt. Sinai...
Ya I understand I had the exact problem, again my doctor was the same, not overly worried since we aren't as bad as others... but again be persisitent in seeing the doctor and rotating/trying new...
hmmmm my proctitis symptoms were very very similar to yours if not the exact same, never pain or bowel issues, just annoying battles with mucous... and sometimes hints of blood embedded in the...
I would try the Rexall Pharmacy in Mount Sinai Hospital- 416 977 0408, the hospital is the "Bowel hospital" of Toronto, pretty sure they can help....
I understand your annoyance, my proctittis was so stubborn too, I JUST got out of a full 2 year flare, with symptoms of what you are describing. I notice the progression for sure, for me its small...
Highly reccommend SCD diet! try it and stick with it!...
Yes I truly believe diet in INSANELY important and can influence inflammation huge... read the SCD diet book, Highly recommend. " You are what you eat"...
I've been doing the diet since the day I was diagnosed which was hmmmm 3.5 years ago now ish? I agree with a bunch of the other posts here and will say the diet alone may work for 1 in a trillion to...
Diarrhea is normal at the start your cleansing all the bad stuff out, it should clear up soon, stick with the diet! good luckkk...
If colifoam is the same as cortifoam in canada then i was the same! I did cortifoam and the first few days i was like okay this is fine, maybe improving then after 3-4 days it made me WAY WORSE... i...
for me that was flaring- i had the constant gas and mucous for 2 years.... sometimes blood was horrid, id see the doc if it makes you feel off...
frigg no way eh, so okay it's likely related... hmmmm ya its patchy and ulcerated, i wish i could figure out how to do the pic... i feel so un tech savy lol...
I don't think so , i wish I could post a picture, its bright red patchy area.......
hello fellow UC'ers havent been on here in a bit - I've been in remission since April 2015 finally after 2 years in a stubborn proctitis flare.... I have these canker like red spots on my tongue this...