I never heard of the IBD AID diet before. Why did you stop it? I agree I’m pro medicine when diet alone doesn’t control symptoms....
I can tolerate coffee when I’m in remission not when I’m flared...
Thank you Troublesturds I am feeling better so I’m sticking to the diet and you’re not it’s not an overnight success story. There are tons of articles and testimonials out there about feeling worse...
Hi! I believe in diet but I also believe in medication. Sometimes diet isn’t enough and you need medicine and there’s nothing wrong with that! You can certainly try dieting since it seems like you...
Did you get some bloodwork done lately? If not check your CRP, ESR level. Pregnancy can cause digestive issues to anyone even those without IBD...
Hey I would try not to stress out. Remember stress can start a flare! Maybe try making some dietary changes so they don’t play around with medication too much while you’re pregnant or maybe try...
I think potatoes and rice are okay for me too but I’m so scared to try them!...
Thank you everyone for all the suggestions! I joined a SCD Facebook group and almost everyone told me it’s normal to feel worse in the beginning. It’s the the bad bacteria dying off and the body...
Started off with fatigue and extreme hunger. The nutritionist told me to eat more protein so I ate tons of steak and then bleeding increased and it went downhill from there. I started the cortison...
It’s weird because I was doing so well for about two weeks then everything just went downhill and I was following it correctly. The integrative doc told me to stop the diet and told me this shouldn’t...
Hi everyone Just an update I met with a dietician she suggested I eat more protein and told me the diet has been life changing for many of her clients. I’m not as “hungry” and fatigued as I was...
Hi I’m a lab scientist and work in a hospital lab. At my hospital we don’t perform the test in house we send it to mayoclinic - as do so many other hospitals and lab it’s sent out somewhere else. It...
I was in your exact situation I was new free for 10 years then had a baby and had the worse flare ever my daughter is now 3 and it took me over 2 years to taper off hydrocortisone i eventually had to...
I would also like to add that I was very very dependent on hydrocortisone enemas and don’t need them anymore it’s been over a month since I’ve last used them which is a miracle considering I’ve been...
I actually just ordered Danielle walkers cookbook and follow her on Instagram but even she flared on SCD and is now on biologics So I’ve been doing it for about 5 weeks now along with 75 mg imuran I...
My doc said once it’s in remission it’s fine since *most* women feel better when pregnant 🤰...
Hi guys So I’ve been trying the SCD and I’m really struggling. I never feel full and I feel like I’ve lost a lot of weight and my flare kind of got worse. I don’t know if I’m doing it right but I’m...
https://againstallgrain.com/ This website has really good recipes the author has UC. Not all the recipes are SCD friendly but most are!...
Why don’t you try diet in addition to your current meds? Meds alone and diet alone didn’t work for me so I’m trying both together now and I seem to be doing better (too early to tell)...
I don’t recommend it. I TTC too while on hydrocortisone enemas and I ended up miscarrying because once I tapered off I flared up again. My doc recommended to be in remission for 3 months before TTC....
Bloom93 what happened I see your daughter started entyvio May 2020, did the SCD stop working?...
Hi y’all, So those of you who are on the SCD diet know that it can be very challenging and intimidating in the beginning. I’m new to the SCD been on it for 2 weeks! Please share your favorite recipe...
Haven’t heard of it, if you try it and it works please let us know!...
Thank you so much!! I’ve been doing it for 2 weeks and already feel a huge difference. I just feel like my options are limited with food but you’re right Lili35 there are tons of delicious recipes....
Hi all, So I decided to see an integrative health doctor - she’s a MD but also a holistic doctor who combines modern medicine and holistic medicine. She told me she to do the SCD diet - said it...
Yes I definitely think it’s from the azathioprine. I only started it 6 months ago and got an infection one month in, not sure if I can continue being on it. I’m glad it has helped so many people...
I just got tested 2 days ago and they also did a chest X-rays and I have pneumonia actually it started off as bronchitis then the antibiotics I took didn’t do the trick so it progressed for about 4-5...
Got tested for covid twice - was negative...
Overall I felt worse but it’s not really something I can pinpoint. I also tried it mid flare. I had a funny aftertaste in my mouth but I took a spoonful with water maybe you can try putting it in a...
Hi so I started taking 50 mg azathioprine mid Jan and it didn’t do much so a couple of weeks ago the doc upped it to 75 mg but what I did notice is that I have had the worst respiratory infection of...
I tried Qing dai and it didn’t work for me, tried it twice. Haven’t tried cc herbal though, maybe I’ll give it a shot!...
Thank you will check it out...
Stated Island is a little far for me I live in Northern NJ 20 mins away from NYC. My doc won’t give me more than 50 mg of azathioprine along with 4 tablets of lialda a day- it’s helping but not...
As we all know it’s really hard to find a good GI doctor. Any recommendations for mds in northern nj/nyc. Thanks!...
Hi would ginger still be affective if I add it to a smoothie in the nutribullet instead of juicing it...
Hey guys so I’m going to try the diet since it works for so many people- I’m taking lialda and imuran but I’m trying to taper off of steroids and every time I do I flare back so I’m going to give the...
Hi I’ve posted about this before but just have a general question for everyone. For those on imuran what’s the dosage you’re taking? My doc had me on 50 mg along w lialda but it’s not working - every...
Hi I would like some probiotic recommendations. Currently taking visbiome prescription strength but doesn’t do much. Anyone get results from probiotics? Thanks...
Probiotics never hurt I used to take VSL 3 then switched to visbiome they’re high potency probiotics given w a prescription. They haven’t made much of a difference w me but some people swear by them...
Hi, So I have read that the isatis cooling formula changed (never tried it though) but the old formula seemed to work well w those who have UC. I tried Qing dai and it hasn’t worked in the past I’m a...
Yes Asacol HD 800mg tablets I take 6 a day at one point I was taking 8 a day but reduced it once I started the azathioprine. I tried the mesalamine enemas but had a very bad reaction to it idk why my...
How long did it take to kick in? Yeah I agree more isn’t always better I want to wait and see if it’ll work...
Are you currently in remission? How is your WBC count on 100mg? And how long did it take for you to reach remission (if you’re there) Anyone here have any success with only 50mg azathioprine along...
My doctor is a gastreontologist and she specifies w IBD patients but she works from the bottom up she doesn’t prescribe biologics or immunosuppressants unless she has to....
Im a really tiny person so I weigh 109lbs now which makes sense for 1.5 mg/kg and I’m taking 2 tablets 3xs a day for asacol...
I’m taking it w Asacol which is supposed to make it work better. My GI said she never needed more than 50mg for UC. I’m back on the cortenemas as of today - I really want to stop the steroids...
Hi I’ve been fighting a debilitating flare for over 2 years now with little to no relief. My doc finally put me on azathioprine a month ago (50mg) and I tapered off the steroids and I was doing well...
Good to know thank you I will update in a week it’s too early to tell now....
Are you on remicade or Humaira now? ...
She doesn’t like the side affects So she keeps trying to taper me off of cortisone enemas while taking asacol. But she said after imuran If it doesn’t work well try Humaira. I’ve been on azathioprine...