Yea it seems like everything becomes less effective over time :\ Why did you stop Remicade? I stopped using Remicade a few months after starting SCD to see if I could manage my symptoms with only...
I am on a similar regimen as yours: max dose of mesalamine and SCD. I have been on SCD for 8 years and I have to say it used to work a lot better than it does now. I am not exactly sure why. I was...
I agree that red meat is to be avoided or reduced, especially in the begining. I usually eat fish and chicken or turkey for protein and red meat once in a while. Another thing that helped immensly...
Hi Sarah, I am so sorry your experiencing this. I know how disheartening it is. Please know that the diet can take a while to work and that healing is not linear. That said, if you are getting...
I made this this morning and it was so good! https://comfybelly.com/2013/02/almond-flour-pancakes/...
It has been a stressful time for sure. I had my first real flare-up in a long time in the last few months and I am pretty sure it’s related to the pandemic stress. I’m very lucky because I am able to...
I also had great success with SCD and I recommend it. I have been on it since 2013 and was able to get off Remicade and now I am only on 5 ASA. My GI says it’s a miracle. I was med free for six...
You didn’t mention Remicade, but I suppose you tried it? I had great results with the SCD diet. It doesn’t work for everyone but it worked from me. It also takes time and commitment. Surgery might...
I’m so sorry to hear you’re not feeling good. I hope you find the right meds soon. I am flaring as well and have been for a few months. It’s so frustrating but you are not alone....
Hi David! I don’t know anything about the numbers, but I was on Remicade for two and a half years and I was constantly worrying about cancer or infections. Nothing bad ever happened to me. I...
Thank you for your input! Helps to put things in perspective! I think my struggle is mostly psychological at this point....
Thanks for your answers :) I will ask about a steroid enema and try to be patient in the meantime!...
Thank you quincy! I went from 3 bm a day to 1. My bm are soft because of the enemas, when I don’t use them, they are formed. I guess i’m still too inflammed to fully absorb it. I will follow your...
My symptoms are pain and lose stools. I started oral salofalk on may 11th and the enemas on may 23th. The medication helped decreased the inflammation, since I have no more blood and the pain is a...
I have been having mild symptoms that don’t 100% improve and it’s driving me insane. I have been on the maximun dose of oral Salofalk since may 11th and also on enemas nightly. I understand that I...
Hi David, I have a similar experience. I had really good results for six + years on SCD and didn't take any meds. But since last year I am have symptoms again. I am back on meds (mesalamine enemas...
I went for a colonoscopy two weeks ago and everything went fine. They were very cautious. I have also been flaring since april, and I think it’s due to stress. My doctor prescribed mesalamine enemas...
Is your daughter still on SCD? I was able to get off Remicade by following SCD. However, it was not what the doctor recommended, of course. I am having a mild flare right now, but it's nothing like...
Loss of sensation in my hands, arms and legs, pins and needles, extreme fatigue, headache, memory loss, At some point I had difficulty speaking. Just feeling very unwell in general. The tablets...
Hello, I have B12 deficiency and my B12 was very low when I was diagnosed. I had pretty scary neurological symptoms. I take sublingual methylcobalamin tablets. The brand is Natural Factors. It worked...
Thank you quincy! Looks like things are improving. Had a fully formed bowel movement this morning. :)...
It says 12 weeks ok the box, but I’m seeing my GI in 6 weeks so I guess we will be able to discuss the treatment. For how long can I take this nightly?...
Hi everyone! I started salofalk enemas a week ago (4g) following a colonoscopy that showed inflammation in the distal colon. I am also taking 8 pills of Salofalk. I feel that enemas are helping with...
Hi ribbon, I was on Remicade for over two years and I did well most of the time but I did have two flare up that resolved. I don't really have advice about the medication because it probably depends...
That's great news Cyn! I'm glad to hear it. My GI is Dr Doumit :)...
I just got back from the pharmacy and I am a bit surprised, because I have a box of 7 enemas and it says that it’s not renewable. It’s 4g each enemas. Is this typical.? I have been prescribed...
Well, I went in for my colonoscopy yesterday and everything went really well. They asked me if I had symptoms before I could get in the hospital, then I was asked again when I when I went to register...
Hey, I don’t have much advice but I understand how frustrating and disheartening it is. I am also in a flare right now after being well for a few years. I have not tried Mezera but I have tried...
@Colie09. I decided to go on friday. I feel at peace with my decision. Basically, my colonoscopy is two years overdue and I am eager to get this behind me. I resumed taking my salofalk on may 11th,...
I have a colonoscopy on friday and I have to use Peglyte. Ugh. Last time I could use Pico salax and that was much better. I don't know why but I guess they changed the rules, I couldn't even find...
Hi Colie! I understand you decision. It’s not a simple situation. I actually changed my appointment to friday next week to give myself time to be ready mentally and maybe change my mind lol. Usually...
I also had major flares after taking antibiotics. Even antibiotics that were approved by my GI doctor. I would'nt do it unless absolutely necessary....
Thank you poopydoop! I just spoke with a friend of mine who gave birth recently in the hospital and stayed a few days and she reassured me quite a bit :) They are extra careful....
Thank you quincy :)...
Hi everyone! I have been expecting a call for a routine colonoscopy for a few months now. I figured that they were postponed due to the COVID situation. I just got a call from the hospital and they...
Thank you Bloom93. I have an appointment on wednesday and will ask my GI. Hope your DD feels better soon....
Bloom93, did your daughter take antibiotics before getting cdiff? I am asking, because I am in a similar situation, but I did not take antibiotics. I have had great sucess with SCD since 2013, but...
I understand your fear. It’s a stressful situation. Aside from taking all the necessary precautions to protect yourself, I think that the best thing to do is to find way to relax, maybe some...
I remember seeing that also when I was on prednisone. I did take the probiotics anyway, but maybe not the right thing to do. I remember reading that probiotics can sometimes make things worse for...
Thank you for your replies Quincy, I was on oral salofalk and rectal. I am still using the suppositories (1000mg), because I find that they are the most helpful. I have a valid prescription for both,...
Hi everyone ! :) I have had ulcerative colitis for almost 13 years. It started with left side colitis, then progressed to pancolitis. I took salofalk at the begining, that worked for about a year,...