I had a blood test last month while on every other week. My levels where low but I did not have anti bodies yet....
Had a colonoscopy on Wednesday . I have been on Humira since March and switched to weekly dose a month ago. Also on rectal meds Canasa and rowasa and have used hydrocortisone enemas. Also on 3g of...
For anyone who went to once a week, how long did it take to help after making the switch? Thanks...
Thanks Insurance approved . Stumble upon an amazing local specialty pharmacy that pushed through the insurance appeal that was excepted....
An appeal has been filed. I’m going to give it a few more days to see but will discuss with my gi doc to see other options. It is my first biologic drug I have tried. I’m just so over feeling bad at...
Been a very tough road lately. I was put on humira in March and it had yet to put me in remission. I briefly felt better and was able to get of pred but am back on. Other meds include sulfasalizine,...
5-asa’s have very few side effects. Trust me get on top of it now or you will end up on much more serious drugs. Good luck...
So after being off of prednisone for only 2 months I’m back on. Humira has been upped to every week. I was supposed to have a colonoscopy last Friday but had a fever when I went to the hospital and...
Your doctor is absolutely correct. First line of medications have very few side effects. The disease is tricky. Flares become harder to treat and control. This is a serious and possible life changing...
Thanks The fungal infection is getting better but slowly. My doc had me go off of the oral Lamisil. Rash is slightly better and at least not getting worse. My last dose of Lamisil was in Thursday and...
So I’ve been on Humira for a little over two months. It finally started working at around 6 weeks. Symptoms have gone from 20+ bathroom trips to almost normal. I have had some weird skin rashes and...
Been in an up and down flare for a year. I moved in September to New Jersey. My doctor who is older and office resembles something out of a bad 70’s movie, does not believe in blood tests and started...
Spent two weeks in Africa 10 years ago before diagnosis. I was in South Africa, Botswana, Zimbabwe and Namibia . It was my best trip ever. Listen to your doctor and if you can go I would go. Looks...
Agreed with ipoop. Constipation for me has led to a flare in the past . Good luck...
Talked to doc today Wants to do a 40mg preg taper Stay on UCERIS and Rowasa He mentioned Humira as the next step. I’m a little worried about that as my insurance is through the state since I just...
Update For the first time ever I had to go to the er yesterday . Have been fighting a chest cold with asthma and it all became to much for my body. They pumped me up with steroids and antibiotics and...
I’m trying Rowasa now . I’ve been on a variety of rectal meds for years but not since being on Pred. I am feeling as bad as ever right now and the main thing that has changed is the Uceris. Seems...
Very frustrating . Have a bad cough too which is compounding everything. Think I need to step up to 40mg of preg on Monday . Moms 75th birthday is next week so I need to get this under control....
I have been on Rowasa but not since being on preg. I’m just confused why the preg is not working when I increased from 10 to 20mg last week . 20 was holding my symptoms and was fine even at 11.25mg....
Hi I’ve been on this forum before but with another email. Diagnosed 7 years ago. Flare once a year normally been treated with rectal meds. Went into a flare last February. Rectal worked then did not....