Appreciate this thread. I am on mesalamines so I am assuming I am at the very bottom of the list. California doesn't really "check" but I won't jump the line as there are many that need it much more...
I have been in pain since April 1st. Bad stomach pains/spasms, diarrhea twice which were yellowish, but otherwise just hurts when I eat or drink especially anything yummy or caffeine. My doc said I...
Thanks for all these posts. I go in 2 hours to get mine (not sure which one they will give me) and I am relieved to see no flares. Going to substitute teach at the HS in a week so I can't have a...
So amazing countess! Which state? Also noticed you had c-diff. I had it in 2019. I wonder how common it is for those of us with IBD. Took me forever to get rid of it thanks to mis-diagnoses from my GI...
Curious if anyone’s doctor is suggesting you get the vaccine ASAP due to having UC and/or meds you are on?...
Interesting. Early on people in here had Covid and reported they did not have serious cases. I came back on to check in and see if that had changed. Is there a recent thread?...
Love that everyone updated us on the vaccine. Really appreciate it. I am in California so it might be a long time. Keep the updates coming!...
Just read the results again. They went up to the terminal ilium and biopsied every 10cm. They said everything appeared normal so I am assuming no polyps. I will f/up with my doc when he is back but I...
You guys are going to totally laugh. Did the first half my prep and set my alarm so that I would wake up at 5am and do my second. I slept through my alarm(likely due to the anti-anxiety pills) woke...
I love this whole thread. I will also be listening to Faucci. Two things weigh on my mind. The 90% effective...it isn’t like everyone that was given the vaccine was exposed to covid. I know if I was...
Hormones from giving birth and stopping breastfeeding both put me into flares with both my kids. Hormones actually have caused my worst flares. Do you feel like you normally do with a flare? Mine...
Ok read the post but it had lots of topics in it. So if I am nervous about prep and my scope is 10am Thursday. Would you do 3pm and 3am? Got my anti-nausea and anti-anxiety pills ready. My new GI was...
You guys are all the best. Oh and old hat my kids are now freshmen in HS and 6th grade. My daughter has moved on to field hockey but hoping she does swim team in the spring too. So fun to hear how...
So great hearing from some of you familiar folks! Glad to hear everyone is trucking along. Yes I switched to Stanford which is 10 minutes from my house. I feel so spoiled. Did my drive through covid...
Hi guys, Long time no talk, which means life has been busy and I haven't been flaring. YAY! I have my cscope on the 15th and have to do the dreaded all the up to my brain covid test before and then...
Your post really touched me Van. I was really sick with c-diff and a flare from August - December and then fully back in remission end of a January. Started working out again and feeling great and...
Sara I really really hope you are feeling better. Being sick for so long becomes your new norm and it sucks so badly. My energy levels are still not back. I did a video conference appt with the...
I actually threw a girls night party at my house last night. Can’t believe how good I feel yet still holding my breathe. Every time I eat food not from home I am wondering..... Seeing my new GI in...
Thx Sara. I seriously couldn’t wait to share the news with you as I knew you would get it. I have a video chat with my docs nurse in two weeks which was scheduled as a follow up when she thought I...
For me once a flare kicks off, especially as you waited a few weeks to kick up the medication, it could take me 2-3 months before I am back in remission. I never fully know how I eventually get back...
OK, so Wednesday I cleaned my house and it about did me in, Thursday I felt like crap so we stayed home(but my husband cooked me an amazing meal), Friday I was able to go visit relatives but still...
Yes! They brought me down at 10:30am and did the procedure at 11:30. I never saw the doc and she didn’t even come talk to me after the procedure. They wheeled me back to my room and the fellow came...
It is actually still coming out yellow. They mentioned something about the “lining”. Dunno. Just hoping it goes clear soon. This crap sucks!!...
Haven’t eaten since Saturday night so I won’t have to do as much prep but yup again!!! So crazy. Got another Xanax and double my anti-nausea so I am in the zone and getting it done. Thx for cheering...
You won’t believe this. I am still here can’t have the procedure until tomorrow late afternoon AND I have to prep again. Whoever said I shouldn’t still be on Vanco was 100% correct. No one caught it...
No but they have all my history and I typed up everything that happened since August. My doc does procedures on Tuesdays but she is only working today due to the holiday week. Soooo. I will just wait...
I did all the prep except for like 4oz. So sitting here and just saw my c.diff test results from yesterday and they are negative. Sooo. Are they negative because I have been back on vancomycin since...
Ok since you always do this one do you chug 8oz every ten minutes until it is gone. Or can you stop once everything is coming out clean? Haven’t done this one in three years so i am rusty...I do the...
Just got my prep and Xanax. Finally!! They had it scheduled for tomorrow for some stupid reason. Thank god there was a nurse change and I got a Jen. The angel nurse who helped me deliver my daughter...
Thanks guys. Confirmed I will get a Xanax. Yeah!! Saw the GI fellow and he confirmed I will be an add-on to the schedule for tomorrow but schedule is pretty light. Pending any emergencies I should...
My hubby got me black coffee and I was able to poop!! Good news is already met with the admitting doc and they are starting paperwork to get me admitted. Everything looks in order and GI dept is...
In the ER, I told them I needed to provide stool sample, I held it in the morning and was able to. The nurses decided it was too formed to need to be tested!! The ER doc comes in and assess me and on...
I am still home(it is only 8:20). I think I have to go....
Thx CC. I think that is why my doc is just skipping right to FMT. Just nervous about all the what if’s including a couple of different mentions of UC flare. Ugh. That’s all I need... I am 80% sure I...
Thx Sara. I just keep thinking does my doc know something. Like having c-diff for 3 months and 3 failed Vanco means I should just go to FMT. I don’t know. I wish I had a doc I could trust. I see...
I have to check myself in through the ER, they will do a stool sample to confirm c-diff, and then if they determine to do a FMT I will do prep in the hospital Sunday night and FMT on Monday. If I...
CC really??? No I can’t go off Vanco. I get really sick going off it. Does anyone who has done the FMT know if they still were on Vanco? So many unknowns.... I don’t know what to do...
Oh and the taper only works if you are better first then taper off. My issue is I never get better to be able to taper!...
I think she is worried about how long I have been sick(since August 18th). I have done three rounds of Vanco and both times I got off it I got really sick again after 24 hours as it was never...
Switty you literally made me start crying. I don’t have any issues with the ick factor. The side effects scared me and also being an hour away from my family in a hospital by myself. I am super...
My daughter had a ruptured ovarian cyst. No one in my family has gotten c-diff...
My doc wants me to check myself into the hospital on Sunday so I can be evaluated and likely FMT on Monday. I can’t believe this is where I am now....
Just read my messages to my GI and I first outlined all of my symptoms on 9/3. I am wondering if this is not resolving because I have had c-diff for so long without treatment....
This was her response to my question if we should try a different antibiotic: I actually think you need an FMT, that means a colonoscopy with placement of stool from a healthy donor into your system....
Thanks Sara. I have never been so scared to not get better in my life. I have had UC flares for months and months and months, but this is so different. My energy is already zapped. I already did 2...
OK, so she is telling me to do a taper with cydromycin I guess so that it is in my system for longer but less over time? If that doesn't work then fecal transplant, but she gave me the warnings for...
So last night I started feeling exhausted again and then had horrible D all night with the same stomach pain. I was 100% better until then. I don't think the antibiotics are working. I have never...
So my daughter ended up in the ER on Saturday morning. They said that they have had 3 cases of c-diff that week! I didn't go with her as I was so scared of reintroducing it to me. So sad to not be...
I am feeling much better but still not 100%. Today was the first morning I didn't see any noticeable blood which is a good sign, but still don't feel back to normal. Hard as the symptoms(D, mucous,...