Rinvoq put me into remission in May after almost two years of flaring, but now it seems like I'm on the cusp of flaring again. But the yellow liquid in the stool is one of the main symptoms. I'll...
How many of you experience yellow liquid in your stools? Lowering fat intake seems to help me with that, anyone else with thoughts on why it's happening and how to address it?...
This company, which had come up with a probiotic to lower A1C (worked for my mom in three months - from 5.7 down to 5) has now come up with a product for gut health that claims to help with butyrate...
Still eagerly awaiting Pravda's paper that is currently in review. In the meantime, I reached out to Life Extension about the "600 mg R-dihydrolipoic Acid (R-DHLA)" that Pravda mentions in this...
This continues to be the most intriguing UC thread to me. Based on this thread, I have started supplementing the following: Vitamin E:...
Whoops, thanks for correcting that!...
I came across a pretty comprehensive overview of oxidative stress and antioxidant's, so I figured I'd share here: https://www.frontiersin.org/articles/10.3389/fphys.2020.00694/full That said,...
Appreciate the direction VanJordan!...
Thanks for explaining in such great detail VanJordan. I suppose we'll just need to hang tight until his new paper is ready to roll. In the meantime, I'm planning on adding some of your...
VanJordan, this is super impressive. I'm curious what you think about the oral/enema protocol that Pravda put together:...
Thank you so much straydog. I've added my email address to my signature. Hugo18, it would be great if you can shoot me an email. My GI and I are considering Rinvoq, but would like some input from a...
I am very curious who your doc is at Mt. Sinai, I am strongly considering switching to Rinvoq and live in New York - wasn't sure how to PM you on here, but if you're able to PM me I'd really...
Rookie question here: I tried blending ginger to get the 50-100ml as you've laid out here, but the blender doesn't seem to produce any juice. Do I actually need to use a juicer instead of a blender?...
thanks Sara - but just to confirm, you were C Diff positive originally, right?...
Hey all, I was able to get my hands on vancomycin a while back and it seemed to significantly improve my UC despite being negative for C Diff. I'd like to try it again, but unfortunately I can't get...
With surgery, I most worry about: A) the high rates of pouchitis (seems like I'd still be dealing with IBD meds and symptoms due to that and B) my understanding is that you're still stuck going to...
Hi All, I have failed Entyvio, Stelara, Humira, and about to fail Xeljanz. That basically leaves me with Remicade and Zeposia. I'm curious what you all think about "last resort" options and ideas...
did anyone start with 5mg twice per day of Xeljanz instead of 10mg twice per day? Or does everyone with UC start with 10mg no matter what and then potentially taper down to 5 later? Thanks!...
Hi All, Entyvio put me into remission for almost three years, but then it began to fail and I switched to Stelara, which also failed, and now I'm on Humira, which is also failing. The remaining...
They did it on their own or with a doctor?...
Very helpful Theanxiousaries, thanks! It looks like they require your doc to provide a referral in order to get accepted for a phone consult. That's great to hear that vanco is the only one required...
Does anyone have the latest info on: 1- latest success rates for FMT with Dr. Borody in Australia 2 - what the latest protocol is for FMT with Dr. Borody (does he use a colonoscope? are antibiotics...
Thanks so much! It's been about a month for me thus far. Can't tell if it's really doing anything....
Mine is 4.5mg once per night...
For those of you that have had success with LDN for Ulcerative Colitis, how many weeks or months did it take for it to work for you? Thanks for the feedback!...
Context: I'm 36 and had been in remission on Entyvio for 5 years until it began to fail, a year later I've switched to Stelara and 5 months later that doesn't seem to be working. My question is about...
@VanJordan would love your thoughts!...
Very curious about some of these responses, thank you! Can you clue me in on the communities of GI doctors that don't believe UC to be autoimmune? I would love to explore that route. Curious how you...
Hi all - I recently received my medical marijuana card and I'm curious what types and doses any of you that have had success with it are using? I heard from one expert that taking an edible 4 times...
After 5 years of remission on Entyvio, it stopped working and I moved on to Stelara. Stelara began working well for me after my first self-injection, but has since regressed (just took my 4th...
I take two tablespoons of psyllium seed powder twice per day and it seems to help. How many others are on a regimen like this and for how long? This is the one that I use, what about you?...
why is everyone mentioning the powder when there are capsules of psyllium seed available? is there something wrong with the capsules?...
is it ok to take psyllium seed capsules instead of the powder?...
One of the most frustrating things about IBD is how many different things work/don't work for different people. The vitamin D route is just another thing to rule out...it seems to be working for me,...
btw, I exclusively take the rainbow light sour gummies (D3) and the Vitamin Code Raw D3 pills - these are what work for me - I eat 2-6 gummies during the day and 2 of the pills before going to bed...
How long were you on the vitamin D for and what dose? Like I said, 2 months on 6,000-10,000UI/day didn't make much of a difference for me, but going into the 3rd month I started going into remission...
why 50k IU once per week instead of spreading throughout the week?...
Given that: A) Every year when it gets sunny I go into remission, and when the sun goes away I flare up and B) I don't remember the last time I went into remission in January.. ...I have a strong...
I realized that every june through september I go into remission and then flare up again in sept/october. I live in NY, so I hypothesized that the sun has something to do with it. 3 months ago...
I am debating adding a bunch of lecithin to the natural protein shakes I blend up every morning...was going to try glutamine but sounds like lecithin might be another one to test, though as many have...
Actually, I was working very hard both times when I went into the deep remission...so I am pretty sure that isn't a factor for this phenomenon. I started taking the 7000 IU D3 2 months ago. I checked...
so you are tapering off of 6mp? sounds like really low dosage....
To test whether this phenomenon is due to vitamin D, I have been supplementing 7,000 IU (that's 1750% of the daily value) of vitamin D3 for over 2 months. It hasn't helped one bit. Perhaps...
I live in NY. For the last two years, as the weather got warmer and come May/June/Julyish I go into a deep remission where I am almost completely normal. Then come September when the weather starts...
My doctor is always trying to raise my dose but I'd prefer not to. What dose do you take?...
so I called the offices of the 2 integrative doctors in NY to get pricing, and here it is: Dr. Galland - $750 for first visit, not including the cost of tests. Does not accept any insurance. Dr....
I'm considering it and I'm aware of ovamed.org and this other site as well: http://autoimmunetherapies.com/helminthic_therapy_FAQ.html Who here has tried it for Ulcerative Colitis, and was it...
you can find turmeric pills at any vitamin store - I take 2 600mg pills 3x per day...
Here's what I take on a daily basis: Every morning before eating: VSL#3 Double strength, Floraster, Culturelle, NutraFlora FOS (1 packet and 3 pills) With breakfast: Asacol, Turmeric, Fish oil (8...
I just found the HLC's by Pharmax: http://renewalenterprises.com/p013pharm.html I've actually never heard of these before - has anyone else tried them?...