I've had UC for 27 years... very sadly allergic to all 5-ASAs. Only thing I've taken is budesonide (from both ends). Terrible symptoms currently though and considering surgery....
Hi-- has anyone tried this product for UC? Would love to hear your experiences if so. Thanks, Deborah https://www.thorne.com/products/dp/enteromend...
Thanks all-- @Sara14, would you be willing to communicate directly? I was looking for how to message just you but couldn't figure it out. If you know how, please drop me a line. Thanks!...
Thanks. Basically, I pushed her to tell me if there was anything else she's seen as potentials to try and she mentioned it. It's not her first choice; she'd like me to start a biologic. Here's a few...
Hi-- Having tried lots of things, but still trying to avoid biologics (and with severe UC inflammation), I've now been prescribed a 4 month taper of vancomycin (which I know is usually used to treat...
Let me know if you learn anything additional. Thanks....
Have not tried it, but will be curious to hear if you do and how it goes......
Hi all-- feeling pretty desperate here; flare is the worst I've ever had. Currently on Uceris orally and rectally (I'm allergic to 5-ASAs), and it's not doing anything. Dr wants me to start oral...
Thank you all-- appreciate your responses-- Deborah...
Hi all-- I've been reading about tumeric/ curcumin and IBD and have been in a bad flare, so started taking high doses of curcumin (from what I've read only high doses-- around 3,000 mgs/ 3 grams per...
Hi--I'm thinking of trying to use the phospatidylcholine as an enema... any thoughts on this? Good to know about the GMO issue too... thanks, deborah...
Hi-- anyone tried to make an enema with the PC? Other ideas? It does look promising. thanks, Deborah...
Any news on this from folks? I'm thinking of trying to get enemas made with a local compounding pharmacy? Thoughts? thanks, Deborah...
Hi-- I saw that this thread ended pretty quickly. Freddy or anyone else: did you try the phosphatidylcholine enemas? Thanks, Deborah...
Right. It doesn't work immediately; but what's the usual-- three months, a year, etc?? Why would 4.5 mean side effects (and what side effects)? Also, how does one "have LDN in liquid form" and how is...
Hi-- can ItsAlwaysSomething or someone else share what the dosage/script is for the transdermal LDN? My doc wrote me a script for 4.5 mg/day orally, but it sounds like it might be better to try the...
Hi folks-- no idea if anyone will still see this thread, but I'm utterly confused. I recently got back 'indeterminate for dyplasia' colonoscopy biopsy reports and have to do a re-do in 6 months. Want...
Hi Dr. Stone, did you ever order this and how did you do with it? Thanks, Deborah...
Hi-- Sakiv46-- I just went to send you a message about this (off this thread), but there was no email given under your profile. So, I'm hoping to try this (the enema protocol), but am wondering if...
Hi folks. I've been reading past posts on this forum about steroids and hair loss, but am looking for any specific information related to how long (in your experience) hair loss/ thinning lasts after...
Severin-- so, 13 years ago when I was first diagnosed with UC I was given Asacol and developed a fever and rash and ever since then no doc has been willing to give me any 5-ASA scripts... I've always...
Hi. So, I'm allergic to the ASAs and have had a pretty active flare for about a year and a half. Have tried numerous natural remedies, diet, acupuncture, etc. Have also been on steroid enemas for the...