Hi. I am 8.5 weeks into Entyvio with little to no benefit. My GI has suggested Zeljanz as next possible weapon of choice. I was told it will start to start to work in a matter of days versus a matter...
My ESR bounces between 30-50 when this beast is out of the cage. Praying for the day when I might notice a normal CRP, ESR and fecal calprotectin. I assume I would feel pretty darn well and normal at...
Anyone else notice an unusual relationship between CRP and fecal calprotectin? During my UC battle, I have seen my CRP be as high as 89 with fecal calprotectin at 660. I also have had fecal...
Thanks Yissurim. I am eating almost exactly as you hoping to find a benefit. I do include some tofu and salmon to help meet my protein needs. We shall see. My Gastro team still adheres to UC not...
Hi. Hoping to receive some feedback from people who elected to have the surgery please. When did you decide it was time? Are you happy with your decision to have removal or do you wish you would have...
Dicyclomine also called Bentyl. Might help a little but a bad flare is a bad flare....
You are lucky you found some when needed. My GI’s have been reluctant to start me on pain meds believing people can get hooked unless the UC is put into remission. But there were certainly some...
I suffered from extreme abdominal pain/cramping....
Hi Sara. At the beginning of my journey in 2019, I was started on mesalamine enemas. Could not hold them in and no help. In April 2021, a different GI started me on Lialda. No help. Then switched to...
I was hoping to hear people’s thoughts/experiences about using pain medication during a tough flare. Although in reasonable remission at the moment, I struggle with occasional thoughts and angst...
Hi Cath. I was rescued by iV methyl prednisolone and 200 mg/day of Imuran. Once the rescue drove the inflammation down, I started remicade Biologic at 10mg/kg body weight. Now tapering off oral...
I agree beave. I like my doctor using the CRP as a bio measure and indicator/leading predictor of flare or oncoming flare. I do not mean to oversimplify the difficulty of keeping my CRP under 5...
Well everyone’s UC story is a little different as we all know. I think my GI believes keeping my CRP under 5 should result in me showing very few if any symptoms for the following reason. I have a...
Hi S. I have been on 3 courses of prednisone steady since April 8. On 60 mg WAY too many days! Finally I have a long term medication which is seemingly working and I want off prednisone badly. My...
Linear. CRP values are expressed as Mg/liter. My GastroE believes if my CRP can be kept less than 5, I should be symptom free or very near symptom free....
Hi. Sorry to hear you are having such a tough time. How high is your CRP? I thought I would “tough things out in June waiting for the Humira to kick in. Sadly, the Humira as a total bust. And things...
Anyone have any thoughts/experience with 2nd Covid vaccine causing a major flare? I flared up big time 1week after my 2nd Covid vaccine, over several months my UC advanced from left side to...
Sorry I don’t have better news, but I had no luck whatsoever with mesalamine and Humira. I have severe panColitis, and am now coming off my 3rd course of prednisone and hoping 10mg/kg BW of Inflectra...