Yeah, I do a healthy diet mostly. However, no matter what I eat I still get issues. Just worried about this scan, and can't wait till it's over. I had a really bad flare up in 2019 and ever since...
I was thinking my risks were very high. I've had IBD since I was 25 and now I'm 46. I'm due for a colonoscopy on the 26th of this month and I'm worried about the results. Only because I have severe...
What are the risks of cancer with UC?...
Thanks all. I'm actually starting to flare up this week. I'm on Mezavant 1200mg Azathioprine; and salafolk suppositories. I think I'll have to call my IBD nurse from the NHS. I was supposed to have a...
It's so sad that they are trying to destroy the NHS over here in the UK. I am broken hearted about the government here. They just want to make money so they are now trying to privitse the NHS. I...
Thank you so much. I've now been on antibiotics for 3 weeks. Amoxicillin for 2 and doxycycline for 1. I have 2 more weeks of doxycycline to go. I'm a bit worried because I still can see the...
That is really difficult. They won't give me a diagnosis unless the blood work says I have it. I can believe they won't admit that.🙁 also means they won't have to do anything . Such a pain 😪...
The doctor said she will be testing me in 6 weeks. This will be after I finish the antibiotics. She said that will determine if I had it or not. Is that true? ♥️...
I know you can't use the test to see if you need treatment. I still think I have Lyme because it says. B.Burgdorferi < 5.0 AU surly that means something was detected....
I have 5 weeks of treatment. I've been on amoxicillin for 2 and now I've started doxycycline for 3. ♥️...
I took a second Lyme test and it says negative. https://ibb.co/TTbfpMd So good news. Still 3 weeks of doxycycline left. Xxx It also says I have to leave it 6 weeks and it only has been 3 so far, so...
Yes I know the immune suppressant could affect this which is why I'm so anxious about it all. Its such a nightmare 😫...
Thank you everyone for giving me such wonderful information ♥️♥️♥️♥️ Rainycloud and Garzie you have been amazing. What I did was Google your information. I looked up a few things and I entered in...
It's the GPs and doctors I need to push through...
I'm in the UK. Grazie is there a way to get an appropriate doctor?...
I am going to take another home Lyme test on Monday. This is horrible I'm so scard the doctors aren't going to give me the full treatment I need 😢😢😢...
I took a test which I bought online. It was a little confusing and I don't think it's accurate because I had trouble with the blood sample. Here is the below https://ibb.co/MkfdhQb It says BORRELIA...
No not really. I got the doctor to give me a third week of antibiotics. But he didn't want me to have another week because I was being treated by another doctor. I went private because I'm struggling...
The bite does look like some of those pics in the article you gave me. Thank you Garzie 😊 The bite changed shape and size and at one point it looked like this https://ibb.co/k8zSy4g Terrified that...
Thanks very much. I am still on the antibiotics. I want to be on them for more than 2 weeks which is all my GP gave me. I'm scared at the moment because they were hesitant to treat me as I didn't...
So the water mark is that what the bite is called?...
I didn't see the tick bite me and only noticed the bite on Friday night. I then went to the walk in centre. I live in Hastings. East Sussex England so it's more likely Lyme I think than the black...
This is now https://ibb.co/z7cT9JP I've been on amoxicillin 500mg 3 times a day since Monday...
https://ibb.co/VvJfLvR did this work? They didn't want to treat me at all even after this pic. This was before antibiotics....
Antibiotics can make me flare. I'm on them at the moment. Probiotics have provided me with some support. I wonder what bacteria they want to kill if doing a therapy?...
Can you post pictures on this forum?...
Hi everyone I have an insect bite that looks a lot like Lyme. I'm really worried about it. I noticed it on Saturday and went to a walk in centre because my GP was closed. The walk in centre doctor...
Hi chocotofu, I don't know if they will allow me to have surgery before I try biologics, it's just I'm afraid of them personally. I do realised there may be problems even if I have the surgery but...
Hi straydog, I live in the UK and I am seeing a specialist IBD nurse too, as well as my GP. They both said my bloods were not bad enough for steroids. The IBD specialist wants a stool sample which I...
Hi Everyone, Has anyone on here had Jpouch surgery? If so how long does it take? I'm not sure I will go for the pouch and I might just stick with the colostomy. This is because Ive heard bad stories...
I was on Cripo, so it was really strong. I’m now making sure I take probiotics daily. Keep to the Asacol and just stick to what the GI’s say with my meds. I’ve never had a flare this big before and...
Hello, I’ve just been reading this and wanted to ask. I’ve had a really bad flare recently and was hospitalised for a week. During the stay they tested me for c diff. They came back and said I was a...
With my proctitis they had me on a suppository once a day. With this flare it stopped working and they just took me off. In the past I have tried the foam enemas but I reacted to it. They cause...
I haven't tried them at bedtime yet. But will do. Im just trying to get my system used to taking them. Im using Bio Kult 4 times a day to get used to the probiotics. Then i want to change to the...
No. I’ve never taken VSL3 I’ve just been reading about it. I’ve recently only just started probiotics due to a very serious flare up which seems to have been caused by antibiotics. I was hospitalised...
Hi quincy? Me again. I’ve come across an article about probiotics. It said that some probiotics increased histamine levels which increase inflammation. I bought the renew life ones and it has a...
Ok thanks. I'll try that. My gasto doctor also recommend Alflorex, I've taken that @ 5.30 am on an empty stomach. Only because I wake up early. Its not strong but maybe im taking that at the wrong...
Oh really, take them at night. I've started to take the renew life in the morning with breakfast, i have had gas with it. Would you not take them with food? X Thanks again :)...
Hi Quincy, I've noticed you use a lot of probiotics. Do you use them every day? Do you take 100 Billion every day? Ive just started to introduce Renew Life so thats why im asking. I've done it slowly...
Hello everyone, i just wanted to introduce myself. I live in the UK and only recently started to think my loving Aunt may have dementia. Its a difficult situation though. She is 87 and an absolutly...