I developed Lupus - drug induced lupus. I felt like i was crazy and a hypocondriac. The fatigue and arthritis pain was immense. My hands hurt so bad that pullling up my covers at night was torture....
I always feel better after i have fasted. There seems to be more and more evidence that fasting does soem amazing things for the body increasing its ability to heal and slow down aging. I just...
Hi. I have been taking Stelara for over a year. the last 3 injections I have notedthat 4-6 days after the injection i have experienced bady aches, tired body and a bit increased fatigue. It last for...
Many thanks. Years ago, I had inflammation and ulcers in 2 different parts of my colon. That is odd that she stated it was because I was smaller. I am not that small actually. 5'7 134 lbs....
thank you for all of your responses. She said she thought the tortuos is from being smaller and the intestine doesn't fit - indicating that in general everyone has the same size intestine. Is that...
Overall, the scope went well and looks good. I have only mild UC in the distal rectum. She said I had a tortuous colon which I have never been told before. She also indicated the TI could not be...
I have one next Friday. No recent blood tests. I will portal message them today. Going to get some B12 and get in more D. I eat mainly plant based and not sure if that is causing issues also?...
Did your Dr. happen to share why they don't think it is UC or something like it?...
[url]Hi. I am on Stelara and have been on it for about a year. For about the last 3-4 months my stools have been at level 6 on the Bristol stool chart with very occasional (not much) blood. I am not...
[quote="Sara14"]I got a crazy reaction when we upped my Humira dose, severe dizziness and a feeling like I might pass out over and over. No doctors seemed to believe me or be able to figure it out,...
Thank you . I appreciate your reply. I especially appreciate the info about hydrochl and vision. I have gotten dizzy daily all of my life due to Ehers Danlos and orthostatic intolerance but this...
Thank you. My Dr. said it still may nit b enough time but that seems off to me. Wondering if the hydrochlorquin could be making it worse. I hate to do another 2 months if it isn't going to help. Also...
I developed lupus from Remicade which has my UC under control Started Stelara end of Oct. UC symptoms are back with a calprotin lab at 246. UGH. Lupus is still here and hoping it leaves soon. also on...
I meet with my Dr this week with the plan of testing for antibodies. I did have a test about 3 years ago for RA and that was negative. I go to the Mayo Clinic in Eau Claire WI-- I would think/hope...
Hi. I am wondering how she is doing with Lupus? I just posted something similar. So exhausted and seep pain, dry eyes and low grade fever. Started new job as a clinic director and I am so tapped....
Thank you for the info. What other things could cause it to be elevated? What other tests should I be aware of? Not sure what to do. I am pretty sure they are going to want to stop the Remicade when...
Yes- they are planning on doing that when the net infusion is due....
I think all good questions. I was just diagnosed with this. Has been a long haul. I also think advice form others on here is great. Doctors are not always the best advice givers....
This is so fascinating. I had heard from the beginning of covid the IBD patients were actually doing quite well overall with Covid and the thought was that the medication we take may prevent the...
I have shared a post early about my difficulties with significant arthritis with huge uptick in pain when my Remicade was increased last March. I was certain it was Lymes disease as I had been hiking...
You’re looking to see if you have antibodies, not Remicade levels. Sounds like you’re having a reaction. It’s in my signature. I’ve been using Stelara for the past 4+ years and it’s the best...
This is so helpful Joints that are problematic include both hand--fingers all up and down and it seems all over both hands, both feet, elbows, knees a bit and shoulders at night. I also have EDS and...
I will talk to him. So what are you doing now as a treatment?...
It is really good right now. Joints in hands and feet are puffy but not often red, sometimes a little warm I do run a low grade fever often every evening....
Just getting back the the posts. in reponse-- Yes. Both hands are stiff and painful all through the night and morning. They are puffy. All fingers and all toes hurt along with the whole of both...
I have had a few tests for antibodies and all is good there....
I just posted something on this topic. Feeling stuck. Also having a spouse that just seesm to get pissed off whenI am not well does not help....
I am having a rough day/week due to arthritis after an increased dose of Remicade earlier in the year. Fatigue and pain. They did an RA test 3 years ago before these symptoms so the rheumatologist...
Thank you for posting. I am having a rough day due to arthritis after an increased dose of Remicade earlier in the year. fatigue and pain. They id an RA test 3 years ago before these symptoms so he...
This is the article I came across. https://www.rheumatologynetwork.com/view/ra-methotrexate-and-alcohol-may-mix-well-degree...
Thank you. I did come across another article- will need to locate it -- where it demonstrated that it greatly tended to be heavy drinkers that had issues with the liver and drinking while on...
I am on Remicade- have been for a year and developed RA type arthritis (but not RA ) this last March. The Rheumatologist thinks it is related to the UC. It was becoming debilitating and in almost all...
Thanks for the info. I guess there is a thing with UC where it can turn into an arthritis similar to RA. I am now on Methotrexate. This scares e a bit. I HATE being on all these big gun meds. I did...
I think prednisone is completely reasonable to try. I am familiar with both. I jus got off prednisone and it worked like a charm. Now on Methotrexate. Have you done any Mindfulness. Has helped...
yes, me too. My life has been full of tears, dislocations and subluxations. The joint and bone/muscle pain was quite different. I was just reading that people to tend to have RA or Arthritis that...
I had hair loss and thought it was Remicade ( for my UC ) but then it stopped. I realized it wasn't the med but rather the stres body had been through. Still on Remicade and have a but of hair...
i just posted on here today. I have UC and am on Remicade. Very nervous that I may have RA. I was wondering about crossover. Dr. put me on prednisone and it has helped a lot. That is was scares me....
Hello. I have been on healing well for years now mainly for UC. On Remicade for that. In March i experienced sudden joint pain and stiffness in feet, hands wrists and hips. Fatigue was crazy. Thought...
Thank you. I’m just finally getting back to these emails. Yes I’m having significant joint pain. I think the flare is starting to calm down a little bit....
Have you tried a plant based diet?...
Today I had my Remicade increase because I guess I metabolize it really quickly. No antibodies. What causes this? Is it more dangerous when the increase the level or does it not matter if my body...
Thank you. Yes, I had a bad few days but much better now. They are doing an antibody test the day before my next infusion....
What does non responder mean? Are you talking about anitbody stuff? It healed me wonderfully for at least the last 6 months. Haven't felt this good in years. Scares me to think it won't work....
Hello. I have been on Remicade injection ----100 mg/10 mL---- since April or May. Overall doing really well. Had last infusion last Friday. I started to have blood in my stool 1 day later with...
I have been on Remicade since April due to a bad flare and a horrible bout of Yersinia at the same time. Do Well however noticing significant hair loss. It is freaking me out. There are some...
Thanks for the info. Yes I think historically I tend to get this low-grade fever’s even with slight flares. It’s really weird....
I think for me will you see symptoms I can tend to run these low-grade fever’s. It might be a cold also. Just feel really drained and sick-ish...
I continue to be feverish. Right now low temp of 100. Also really fatigued....
Hello. I am wondering if anyone else on here it gets low grade fever’s with UC. Since this flare in for months I will have fevers from 99.1 to 100.2. It feels at times like I just hit a wall. I...
Or fat pieces possibly?...