Yes, I steamed them for about 11 minutes and they may not have been fully cooked. I have to believe it had something to do with it, even if the issues were accumulating in the weeks leading up to...
I had some steamed oysters (fully cooked) in October and flared the next day. When I googled it, I didn’t see anything indicating they cause a flare. I’d love to think I can still eat them because...
Thanks PamSmith. They gave me a one month regimen of prednisone & it’s over, so I’m not taking steroids now. I’ll talk to the GI before cutting back on any of the mesalamine and IF I do, it won’t be...
I won’t go off of it. Do you know the ballpark frequency of mesalamine ceasing to work? Even the PA expressed concern that it would only work temporarily. Btw, almost all of the articles I’ve been...
That’s a good point about misinterpretation of my body to exercise, particularly if it’s more likely with age. I have muscle memory so hopefully I don’t have to go as hard. There is a mental...
So I just refilled my prescriptions. No symptoms of UC since the after effects of the colonoscopy. I have a zoom call with the GI late next week. I’m hoping to go down to 3, then 2 mesalamine pills a...
Interesting article. I lifted for about 30 years on and off before my first flare, and was going at it pretty intense back in 2016 when I had my first flare. I also frequently took creatine since...
So sorry to hear that UCinsouthfl, and wish you all the best to overcome it. I didn’t take UC too seriously after going into remission after my first (2 month) flare in 2016, but after this two month...
Thanks quincy! Unfortunately, mom passed last week. At least my brothers and I got to see her every day for the week she was in hospital and she was on a morphine drip, so not in pain. I am on the...
I posted on this a few months ago. Diagnosed with UC in 2016 at 50 yrs.old after a flare I thought was brought on by lots of whey protein while bodybuilding. Flared again this August & though I...
I first came down with UC in 2016 at 50 years old after taking a lot of whey while lifting weights/bodybuilding. Thought that had to be a contributing factor, along with protein bars. Not sure but...
So far, so good. 1 or 2 BM per day with volume and they’re soft but formed. Just back from 2 1/2 day trip to see my mother who went into cardiac arrest and needed 2 minutes of CPR. I ate rather...
Thanks & I will. Regarding pred, today is the start of the second week and first day of taking 20 mg. down from 30. Next week it goes to 10 mg. then the fourth and last week, 5 mg....
Not good - had some mucus this morning after more than 2 weeks of normal stools Just got my prescription for mesalamine pills and enemas filled after a delay to get the enemas in. I hope they stop...
Gotcha! 👍...
Will do. I think I’m getting it now. It’s a slow process that manifests at some point, and the important thing is not the potential snowflake that may have set off the avalanche, but the instability...
That’s the frustrating thing about UC that I only learned about in the past month or so. Not only meds but diet & what sets off flares being so different among patients that there’s so much trial &...
Thanks & I will look to get the pathology report. Point taken- I may have had mild inflammation at times during the last five years and never knew it, further justifying use of mesalamine for the...
Thanks. I agree it’s better not to risk going off mesalamine if the chances of a flare are high, especially if doing so increases the risk that mesalamine won’t work again. I was hoping my past...
Update - had two bms today that were both large volume & appeared normal. I last went three days ago, so feel like I was making up for not going in so long. I just got a call from the PA who got the...
The PA agrees that I should use mesalamine and not Zeposia except as a last resort, but just wants to see the biopsy results and talk to the Gastroenterologist first. He seemed too busy to talk much...
I just now edited my post above to update for the info on a call I just got from the PA who prescribed me the suppositories. Was hoping to post it before you read it instead of adding a second post...
Makes sense, as I thought in ‘16 the hemorrhoids were linked to the UC. As I learn anatomy and think about it, idk how suppositories could ever be expected to reach inflamed areas even in the sigmoid...
Didn’t know that! Pardon the graphic explanation, but when I was flaring with blood & mucus stools both in 2016 & this time from late August up to almost two weeks ago, I could hear mucus bubbles...
Thanks! This all caught me off guard, as I thought UC was no big deal after getting through it in 2016 & being in remission so long. I had no idea how bad it could be for so long with no definitive...
Thanks Old Hat! Medications noted. Yesterday I had no bms at all. So it appears that only Friday morning/early afternoon, the day after the colonoscopy and second day without Canasa, did I have bms...
Will do. Thanks!...
Not sure if I can get a second opinion. I want to see if she gives me the mesalamine oral & enema first. Makes total sense what you three are telling me about Zeposia, and puts doubt in my mind about...
Makes sense to me. If it doesn’t hurt, I can continue pred & hope she gives me the mesalamine prescriptions soon. I fear stopping pred & her not reading my request for mesalamine for a while or...
I have 3 left out of my 30 day supply but can reorder one more 30 day supply. Are you saying stop the prednisone now or up it to 60 mg for 5 more days & then stop?...
Thanks quincy! I just messaged the PA requesting both mesalamine prescriptions, and edited my comment just above to conform with that request. I have now taken two days of 30 mg prednisone. Can I...
I really appreciate the advice! It makes sense to me that oral mesalamine and mesalamine enema should be tried before a new treatment, especially since the suppository worked. I just messaged the PA...
Thanks for the reply. No other meds, and he had me stop the Canasa with about 3 or 4 left out of my 30 day supply. I wouldn’t doubt the drug rep influence on Zeposia and am awaiting his response on...
So I was first diagnosed with ulcerative colitis back in February 2016. Just had my second major flare around August 20 and after a month of blood/mucus/inflammation, went on Canasa suppositories per...
UPDATE: 27 hours between trips for #2 & HOPEFULY going into remission. Right at the end of my third week of Canasa (October 26), I noticed improvement as I only went four times with very little blood...
I had my first flare in 3 years about two weeks before my first shot (Moderna), and am still exhibiting symptoms 2 1/2 weeks after the second. Couldn’t have caused it but possibly kept it going, I...
Yes & no. Fasted Thursday, only went 4 times on Friday (not much to pass), then 6 Friday, and record low 2 Saturday. Yesterday I went 6 times and first one today just now. Normal for me has been...
Thanks quick. I hear so many conflicting things, it’s hard to know what to do. I have suppositories because my inflammation my first visit and I believe now is in the rectum area, maybe proctitis. My...
Update - I’m on mesalamine suppositories (10 days) and have a colonoscopy slated for early November. Despite sticking with a UC friendly diet, I’m still bleeding and no change in swelling, and...
I’ve got UC a few times in the past 5 years or so and always drink water from an old Gatorade bottle during workouts. Sometimes it sits in my car in hot sun, but I do rinse before filling. Not doing...
Thanks NickyFurlano! I’ll research it & hopefully be able to find it. Building muscle, while nice to have, is way secondary to getting rid of the colitis flare....
Thanks for the reply FlowersGal. No meds, yet. Didn’t do them the first few times either because I went into remission not long after I had issues. Having said that, it’s possible I did the first...
Brand new to the forum. I was began having the symptoms - mucus, blood, swollen colon about 5 years ago and had no idea what was wrong. I had been bodybuilding and eating about 7 meals a day...