Thank you, that makes sense....
JoshDun, may I ask, what country are you in? I was on Salofalk granules for years while working as an Expat overseas, but now back in America, no one has heard of them and they seem to be unavailable...
I'm very sorry to hear about this. Question - are you talking about Azathioprine? I can't find anything on a drug called "Azaphoprine" ... and as I am on Azathioprine, just want to understand what...
Thank you, everyone, for your responses. I appreciate the suggestions and sharing of your experience. DeWayne...
Actually, my issue at the moment is primarily in my elbow and forearm. But when getting out of a chair, my knees do often feel older than the rest of me! So far, my back and hips are fine. DeWayne...
Yes, I just saw a new Rheumatologist who actually doesn't think I have Mixed Connective Tissue Disease, but that my aches and pains are probably due to my colitis. (MCTD is kind of controversial in...
Hi everyone. I've had mild-moderate pan colitis since 2014, now (currently) in remission with Azathioprine. But for several years I've had mildish joint aches, muscle stiffness ... I sort of feel...
OK, thanks - it may have been that I read too much into whatever it was I saw. Thanks for responding....
Hi folks, I've had UC pan colitis since 2015, and just last year finally got it into remission through Azathioprine (Imuran). Not long after, the gastro put me on Omeprazole (a Proton Pump Inhibitor)...
I'd say very mild joint issues, but I have no way of knowing if it's from the MCTD or UC/CD. I've probably had the MCTD as long or longer than the UC and just didn't know it....
Yeah, I was always pancolitis since diagnosis....
I believe he said "granulomas present" ......
Actually, at my colonoscopy before this last one, when the biopsies came back, my gastro (who is not my original gastro) asked, "Have you ever been diagnosed with Crohn's?" He said a couple of the...
I posted a month or so ago that for the first time in 7 years with UC, my gastro told me I'm in remission. Which is great! But now, a problem I've had for some time, and thought was just part of my...
I should mention, I talked to the nurse and she said he's listed my UC as "quiescent" - which I guess means "dormant," though I'm not sure if there's any real difference between that and "remission."...
Hi all. I've had UC since 2014, and have never truly been in remission. That said, my clinical symptoms are mild - I usually only go once a day, and have never really seen blood, but my stool is...
No, I didn't speak to the doc. Supposedly a nurse forwarded him the e-mail I sent to my doc, but I have no idea if he actually read it or just got the gist from her. I tend to agree - I think he may...
I've been taking Imuran and Mesalmine granules for my pan colitis for a few years. Recently I've been having some noticeable soreness in the area of my transverse colon (that feeling like you've been...
My MCTD was diagnosed back in 2018. The doctor did tests like DNA Double Strand, ANA Titer, ANA Pattern, Antibuclear Antibody (positive), Rheum Factor. And I don't exactly why he's sending me to a...
Does anyone here have any experience with elevated CK (muscle enzyme) levels? I have UC, but have also been seeing a Rheumatologist, who says I have Mixed Connective Tissue Disease (MCTD). He has me...
Hi everyone, I'm sorry if this is not the proper forum to post this on, but it seems to be the closest related forum to the topic of Mixed Connective Tissue Disorder, so I hope you can indulge me....
Very interesting - thanks for that insight!...
This is very interesting, and I will certainly stay tuned for further developments. I have UC that my Gastro is starting to wonder about whether it might actually be Crohn's. I've never heard of MAP...
Yeah, I wouldn't start shopping until I was in my last year here, and that's at least two years down the road, at which point I hope to have successfully been on either Remicade or Humira for some...
Thanks, guys, for the info. I've actually lived out of the US for the last 6 years, with company-provided health insurance. Are there actually insurance agents/advocates that will help a person shop...
Hi all, I have pancolitis and expect to transition from Imuran to biologics in the next few months - years of stepping up seem to have lost effectiveness, in fact I've never been in true endoscopic...
I just want to say that by sharing my experience, I am not encouraging anyone to not get the vaccine. I'm simply sharing my experience as anecdotal experience, so we can capture what's going on in...
Just adding my experience for consideration; in no way am I an anti-vaxxer, but I suspect the AstraZeneca vaccine has caused some flaring in my case. I have been on 50mg Imuran and Mesalamine...
Hi, thanks for pointing out the confusion between UCTD and MCTD (and the confusing overlap!) Truthfully, I don't know which I have, or if there's even a relevant difference. My Rheumatoid Factor was...
Have had Ulcerative Colitis since 2013 (diagnosis). Been taking Mesalamine since then and have continually been in clinical, but not endoscopic, remission. But recently, through some interesting...
Lived in Vermont for five years until Jan 2016. Loved every minute of it and hope to return in retirement! Can't testify to gastro's in Burlington, but the Dartmouth-Hitchcock Medical Center is in...
Folks, this has been tremendously helpful - especially your thorough breakdown of the options, ipoop. Thank you all very much. Best, sonvolt...
In a new country with a new gastro. Was supposed to go on a biologic a full year ago (I have mild-to-moderate pan-colitis) but was in the process of moving to another country so didn't. Wound up...
True - when I was living in Amsterdam briefly in 2016, they gave me Mezavant, which was simply Lialda under a different name. Great idea on the twice a day - that didn't even occur to me. Thanks....
I've moved to the middle east recently (from the US) and the healthcare system here does not offer Lialda, of which I've been using 4.8g a day since I was diagnosed in 2015. They have switched me to...
I should clarify, there was occult blood in the stool - that's indeed what led to the scoping and diagnosis of UC. I've just never seen any blood. I'm sure I'll have another colonoscopy (I'm moving,...
I was diagnosed with mild-moderate UC in the summer of 2015. Immediately put on Lialda 4.8g, which I've been on for a year and a half, but my last colonoscopy a year ago showed it wasn't healing the...
These stories are very encouraging, thanks folks. It sounds like Remicade has been the silver bullet for all of you (of was for a while). Do you think I should request Remicade when the biologic...
I'm anticipating going on a biologic in the next few months as Lialda has given me clinical but not endoscopic remission. Admittedly, whenever I read these forums I get a bit depressed as UC seems...
GMSAF, I thin we have a similar situation. I too was diagnosed in 2015 with mild-mod pancolitis. Never had any visible blood, but loose, watery stools, predominantly in the morning, 1-3 times. I've...
Thanks all. I've decided to cut my Lialda down to 2.4 grams per day and so far so good. This will last me another couple weeks, by which time I'll hopefully be able to get Lialda under my new...
Afraid not - looks like only Apriso, Mesalamine enemas, and Remicade. I've signed up for the Lialda card, thanks. sonvolt...
I'm revisiting this thread in case it helps anyone with a similar situation. As iPoop said, the standard dosage of Apriso (4 pills) equals 1.5g of Mesalamine. My dosage of Lialda was 4.8g. I am...
Thanks very much for the info and link. One question of clarification: Lialda is sometimes started at 4.8g, then reduced to 2.4g as a maintenance drug. However, I've been on the full-strength 4.8g...
Hello all, I have mild-moderate pan colitis that I've been taking 4.8g (4 pills) of Lialda for about a year and a half. My new insurance doesn't cover Lialda but does cover Apriso, but I can't figure...