It’s now Friday afternoon. I’m feeling better. Probably still a 1 or a 2 ache wise. Feels like someone kicked me in the right side yesterday. Well, I’ve never been kicked there, but I guess that’s...
Hi all. Haven’t been here in a while. I’ve been doing really well since I went on Stelara every 4 weeks in the fall of 2023. I’ve also been taking 6 mg of budesonide every morning. Best I have felt...
It feels like my chest gets tight. Pulse stays normal. It doesn’t feel like it comes on me. It’s just one minute I’m fine then the next minute I’m noticing it. There is some tightness muscle pain in...
Anyone else here struggle with this? Mine is kind of seasonal…I can go six months with no issues…it’s out of my mind and…I’m going good….then, all of a sudden I’ll go weeks on end where I’ll have an...
I’ve seen several articles of late…and videos on YouTube…doctors saying an all meat carnivore diet is great for those of us with IBD. A good friend just sent me a video where the doctor says this has...
Merry Christmas...
Merry Christmas to you and your family. Thankful for this forum and for those who post. I was diagnosed with UC in 2016. This forum has helped me get through many rough times. The doctors don’t...
Well. That was quick. I think I figured it out. Yesterday I did not have my usual Quest brand high protein bar at lunch and things were much better last night. :)...
Hi. Ok. So for a while I was having trouble with soupy mix on my morning movements. Not on the toilet paper. But I’m thinking that soupy heavy liquid on top of my movements was mucus. So. I really...
Does it matter what type of crackers? Curious as to the brand and style you buy....
I’m bad with the late night snacks before bed. Sugar and Dairy do not get along at all with my UC. These definitely affect what my morning movements look like. Any tips?...
Well. Not so fast. My wife showed me an article last night… that nutritional yeast is not good for those of us with bowl issues....
Last time I had blood work done, several months ago, my B12 levels were “outside the upper limit of the normal range”. So I stopped supplementing as well. I’m going to start taking my Bragg’s...
Hi. Through some experimentation the past week or so…I’m pretty sure BOTH sugar things (candy, cookies) and milk (or ice cream) are not good for me. Especially at night before bed. I see a direct...
Hi. Yesterday I eliminated all dairy. And I cut way back on the sugar. Much improved last night. Not nearly as much growling or gas. This morning, I also saw much less mucus in my first movement....
Hi. Been on Stelara since 1/2023 every 8 eeeks. Just started every 4 weeks. But the symptoms I’m talking about have been going on for a few weeks now. Urgency? None. Gas easy to expel…and not...
Hi UC since 2016. Growling noises and gas of late. For the past couple of weeks, some nights before bed, my stomach is growling and I seem to have quite a bit of gas (farting). I don’t have to poop....
I have “moderate UC”. I wonder about the difference of this drug related to the dosage and our conditions....
I take it. No idea if it’s helping anything....
Do you remember. How long after you started with the 4 weeks injections …did you start to see improvement. What was your journey like from the switch from every 8 weeks to every 4 weeks? Thanks in...
I called the Stelara “nurse navigator” help line this morning. She said the $5 copay would not change. I didn’t ask her to explain how exactly the program works. Thank you Jesus! -...
I’ve always wondered how the assistance copay system worked. I’ve been on Stelara every 8 weeks since January of 2023. My copay when I call accredo/express scripts has always been only $5. I have...
Hi. Just got an auto robot call saying my 4 week interval has been approved by my insurance company. I guess the appeal was successful. I think I am on my way. I pray this works. Just curious. Was...
The doctors office called me yesterday and said the move to every 4 weeks was denied. She said that’s not unusual. They will now appeal....
I have been using the Stelara program, through the manufacturer, where my co-pay works out to only $5 cost to me each time I order it. (I have Blue Cross Blue Shield PEBA). How will this work if I...
Trough came back at 0.9 at eight weeks. GI said we are going to move the injections to once every 4 weeks. (Easy for him to say. Now the insurance “game” begins. Sigh.)...
What brand of OTC (can get at walmart) Probiotic has worked well for you?...
Milk and me? We don’t get along. It says online that if you have trouble with milk don’t take florastor ?...
I count times I feel the urge to go and actually go to the toilet and have a movement. If I go and then stand up and walk away and then feel the urge to go back and do more, right away, I don’t count...
Hi. I’ve had UC since 2016 and currently I’m taking 8 week interval injections of Stelara. Doing ok, not great. But that’s another topic for another day. Here’s why I started this thread… Went to the...
No one in my family tree at least as far back as my grandparents on both sides had IBD. I do believe it’s hereditary and is triggered by a major stress life event for some people. I had what I would...
They said it will take a while to get the results at LabCorp. Had the draw at 4 pm Friday 10/20/23. Just curious, what test result range would be “normal”, and what number would show that I would be...
Yes. I notice a definite trend of things slipping week 6 after my injection, then slipping down another notch week 7....
Hi. Yes. He’s thinking about decreasing intervals. I’m due for my 8 week injection this Sunday, so I’m going late this Friday afternoon to get the blood trough drawn. I would go Sunday morning or...
Hi. Anyone have any experience with this?...
I believe I’ve read any supplement with citrate in its name helps break up kidney stones. Or keeps them from starting. And I am also pretty sure you have to be careful of taking potassium supplements....
First thing every morning. Big glass of water…add 2 tbs of ACV and 2 tbs of “Santa Cruz” (sold at Walmart in a bottle) organic lemon juice. Chug it. Then drink another 4 ounces or so of water to get...
I’m on Stelara for UC since January of 2023. So far, it’s been so so. I go on average 4 to 6 times a day. The turmeric I have says to take 3 pills a day. I take 1 morning and night only. I really...
Very interesting video posted on YouTube by Dr. Eric Berg about Glucosamine. Well worth watching I think. I might order some and try it....
I was on 9 mg daily of Uceris (budesonide) for about 8 months. It helped me tremendously. Controlling urgency and frequency with my UC. I kind of begged my doc to stay on it when he told me I had to...
Thank you! Unfortunately about the same. I probably average a total of 5 or 6 times a day, 3 or 4 of those in the mornings. 3 or 4 times a week I sleep through the night without a movement on average...
He was just throwing this out there in response to my…”if this 5 or 6 times a day ….keeps up…sometimes with some urgency…is there anything we can do to reduce these things?”...
Hi. Had my GI follow-up appointment yesterday. I’ve had 2 injections so far. Just started Stelara recently. Right now I’m averaging 4 or 5 movements a day. 3 of those in the early mornings. Not ideal...
Hi. Can you briefly give me a little bit of your history on these and your dosage. I’m on Stelara and it’s working …but I’m just not in complete remission like I was when I first started it. The...
Congratulations...
Things are ok of late. Not great. But ok. Urgency very low….that’s the good news. But more frequency than I would like. 2 or 3 morning movements within a couple of hours. Then 1 more in the afternoon...
Hi. Thanks. So. Yeah. Since starting Stelara I have had the best three months by a long shot in probably 2 plus years. Had the infusion. Then, after my first injection, I had a follow up appointment...
I started Stelara on 1/17/23. I have had one 8 week injection. I seem to remember someone telling me or reading it somewhere that the longer you are on Stelara the better it will work. Is this tue?...
Hi Had a good appointment Tuesday with my new GI. During the appointment he said “ we will do another colonoscopy in two years. Every two years.” I said, “I thought every five years?” He said “no....
I have UC. Although I believe I don’t have UC, I have Crohns. Long story. Anyway, I got my initial infusion of Stelara on 1/17/23. I was on Inflectra for about a year and a half prior. Inflectra is a...