I noticed Amazon is out of stock of the Qing Dai from the east. There are many 100% indigo powders people use for hair dye availalbe on Amazon. If it's just plain indigo, wouldn't it work too? Or is...
Thanks everyone. CCinPa- Hes in his Fifties. Smaller build but definitley weighs more than 100 pounds....
Would appreciate your opinion on this one. My cousin has been in remission for 10 years.He's been on Imuran (100 Mg) and 5-asa (5 grams daily - oral) for the entire period. His current GI told him...
I can't believe you made it!! So happy you survived. I told my wife a few weeks ago about a great guy on the forum named old mike who sadly passed away. Long live old mike!! Do you think it was the...
My brother who has UC like me, has psoriasis and never took anything other than Pentasa. It may be unrelated as Ipoop said....
It's Pfizers version of Remicade. I understand it's a biosimilar. I go to the infusion center every 8 weeks and get it by drip....
I've been on Ixifi for 8 months. It worked great for the first 2-3 months and then stopped. All symptoms came back. Took an antibody test and it came back 85.2 Anti IFX antibodies . Googled around...
I fear the worst. It's so sad how you really get to "know" people on here but when they dissapear you never know what happened to them. I do recall reading a post from a sister of someone who sadly...
Have you tried changing your diet? I've had severe pancolitis for 6 years. I decided to throw everything I've got at my UC in terms of the natural route. The biggest of which is my diet. I've been on...
Thanks everyone for your answers....
Just wondering if there is a point where someone HAS to get surgery? Or is it a choice we make when fed up with years of this illness? Has anybody here been forced by circumstances? Thanks...
Almost the same story. I was on Ixifi for 8 months. The last two months I basically have exactly what your describing. Never happened to me in my 6 years of UC, even during flares. Not sure what to...
The past 8 months for me. blood every time. Not crazy amounts though. The longest stretch. I went on Ixifi (remicade biosimilar) right before that and fro two months U.C went away. Sadly it came back...
Definitely relate to the 'almost home syndrome'. I've also noticed that if I am in a situation where going to the bathroom would be very difficult, i.e at a meeting, on a long drive I somehow don't...
I just logged on to ask about protein poweders myself. You mention whey isn't good for obvious reasons. Is that b/c of the dairy? I assume some of us would be able to handle it... I might give it a...
Hey Old Mike, Long time reader here. Never post though. I respect your opinion. You've probably clocked in more research hours into UC than anyone on the planet. The fact that you've had UC for 40+...
Quite interesting. The other four people that I know that have UC like me have similar personalities. Not particulary sociable. More introverted types. Don't think much of/believe in themselves....
Hey LaurenA4, When you say 'live vegetable cultures' you mean fermented homemade pickles and the like? And if not, care to share how you make get a hold of some? Thanks...
I've used 3 different kinds and they have all worked the same. I'm currently using the 'Now foods' brand from iherb. I actually get the husks as apposed to powder. I mix about 3 tablespoons in water...
If I've been on Imuran for a year or so and its effectiveness begins to wear off even after upping dosage, is there any point in trying 6mp or similar before moving on to biologicals? Thanks guys....
Hello UC gang, I am considering doing a an FT in the near future. 1. Somebody told me that the best donor is a nursing only baby. My daughter is now 8 months old and still exclusively nursing....
Read the first post. The guy is just sharing with everyone what he personally experienced. You cant argue that he stopped bleeding after 7 years. If you can't handle the somewhat strange connection,...
@MarkwithIBD Care to share how you achieved remission? Was it completely non conventional? Thanks!...
So I just met this guy. Had Severe UC for years. Was on all meds we know and love. Even had two surgeries to remove some of his irreparable colon. He basically said he was so fed up of being sick...
So happy your finally in remission! Care to share how you did it?...
@ipoop My tongue is completely fine. Its mostly red raw skin in large patches on the roof of my mouth as well as all along the inside of my lips. And it feels like its on fire 24/7 :( Its been a full...
Saw my GP today. Said he really doesnt think its Fungal. The white that I was seeing isnt really white. I had bad lighting when examining it myself... He referred me to a dermatologist. Im seeing her...
@ipoop - Yup theres some white stuff in and around the red. Any treatment ideas? Should I go to my GI for this or regular GP? (It will take weeks to get an appointment with the GI...) Thanks Everyone...
Just Finished my first Pred. taper. At about 5mg the roof of my mouth started feeling sore. By the time I finished the entire roof of my mouth was very red and "on fire". It spread to my lips as...
@Curl3D "Or throw the colon in the Rubbish" Lol. Keep up the good attitude! And thank you for keeping us updated with progress....
Hey Steve-A SO Nice of you to come back on here to help us all out. As was mentioned countless times on here, you gotta be careful with the 'c' word. Call it 100% remission maybe? Could you give us a...
"Anyone with UC knows diet affects us one way or another. Its almost silly to eat WHATEVER you want and hope the meds take care of everything." Really sorry you took the comment personally. I had no...
Does she limit any sort of food at all? Does she eat junk food? Anyone with UC knows diet affects us one way or another. Its almost silly to eat WHATEVER you want and hope the meds take care of...
Thanks everyone! I'm gonna get on some medication......
Thanks guys! But.....I dont have the REAL symptoms everyone here complains about! ... Like I mentioned, I never saw blood, I usually have one BM a day, although its always very soft. Never have any...
HI all. First of all this forum is a lifesaver. I cant imagine going through this without it! Just a quick history about me. Was having diarrhea for months. No urgency really. I'm only going about...