I have been on Salofalk granules for over 7 years and on Salofalk suppositories for 10 years (since my diagnose). Every case is different and not trying to disagree with quincy, (I agree with the...
I agree with FlowersGal. I have clonazepam as backup and been taking it occasionally as well for 10 years now. I think it's safe in small dosages (I take 0.25mg)...
Wow thank you @Andreita for bringing this up and @MomOfUCBoy for sharing that study. I have been taking propranolol occasionally (1-2 pills of 20mg per week) for anxiety for like 10 years, but I...
I totally feel you. My UC symptoms depend heavily on my anxiety/stress levels unfortunately. Have you noticed any increased discomfort after eating certain types of foods? I noticed you mention you...
I gave up on gluten/dairy. I really miss pizza; gluten-free pizza is not the same. I have been trying to eliminate sugar and vegetable oils from my diet, I never eat them at home, but maybe when I'm...
@sonvolt Since 2019 I have been alternating between Peru and the US. I still get treated in Peru for the same reason (Salofalk not being available in the US). So I just bring 3-4 month supplies...
Thanks everyone for the replies. I completed 1 week off mesalamine on Wednesday and decided to resume it. My stool was looking more solid, however I did not get rid of the slight blood traces, so...
@FlowersGal that makes sense. I am not trying to stop my medication because I feel good though. In fact that's why I haven't stopped taking them in so many years. I just thought it was a strange...
I've been taking Salofalk mesalamine granules and Salofalk suppositories for 7 years consistently. I have never stopped taking my medication, maybe 1 day max that I would forget or was...
Hi quincy, Thanks for your reply. I take the omeprazole same as you. Right after I wake up and ~30 mins before breakfast. I take 3g of Salofalk mesalamine granules once daily (2x 1.5g sachets). I...
Hi everyone, Sorry if this has been asked before, but I couldn't find anything related. Is anyone on both mesalamine and omeprazole? I suffer from GERD as well, even before UC so I had been taking...
I've been on Salofalk suppositories for 7 years, and I never had a problem with sunlight. The instructions on my suppositories don't mention anything about avoiding sunlight. However it is listed...
I know there are a few topics on this, but most are really old. I was wondering if anyone's currently using protein powders? Please mention if they're gluten free/dairy free, etc. Thanks!...
I have used Salofalk 500mg suppositories for 8 years now. I believe I've had a similar experience but it's not an orange color, it's more yellowish, instead. It mostly happens when I go to the...
Thanks iPoop and C_G_K I don't get why Salofalk isn't in the US either. Salofalk tablets were good to me too. On average how much do you guys spend per month on insurance and how much do you guys...
Thanks everyone for your replies. It’s really valuable information since the American system is a lot different. C_G_K thank you for letting me know about Canada. It’s a relief knowing I can get...
I'm planning on studying a MS CS in the US but I'm worried about how much medication is gonna cost. Right now I'm taking 90 satchets of 1.5g of Salofalk granules and 30 suppositories (500mg) per...
My symptoms get worse when I'm under a lot of stress for a couple of days...
Thanks iPoop!...
I've had similar pain in my lower back/buttocks but I don't know it's the same area you're talking about. Everytime I've had it it's been on one side, then it switches to the other side. My doctor...
Well tbh my symptoms (mild ones, a bit of stomach discomfort and very little ocassional blood in the stool) weren’t going away so I tried taking 4 sachets per day for like 10 days and I got better...
Hi guys I wanted to ask what’s the max dose of oral mesalamine? I’ve read online that the best combo is like 4.8g/day oral and 4g/day rectal but I couldn’t find if going past that was bad. I take...
Pentasa suppositories are horrible.. I remember having the same experience, they were big, painful to use and you would feel it inside. Salofalk is 1000x times better, you just slip it inside and you...
quincy, FlowersGal, countess18 Thank you for the recommendations. I'm understanding enemas work better than suppositories? Would asking for enemas replace my dose of 500mg of Salofalk suppository?...
I’ll comment that to my doctor to increase my rectal meds. I used to bleed when going to the bathroom when I wasn’t taking anything. Now I check the stool or the toilet paper and sometimes it looks...
I’ll cut down the gluten then because I’m already in a no dairy diet. I wouldn’t say I have many problems but the bleeding isn’t going away 100% and I have mild abdominal discomfort in the morning,...
Thanks everyone. I’ll keep all of your recommendations in mind. I’ll try drinking other types of milks. I’m not really sure which are exactly grains and which are not but I eat white rice frequently,...
Thanks for your reply. I’ll try going for a low-fiber breakfast. I’ll also look up for other types of milks. I’m one of the people that was told by my doctor that diet doesn’t matter with UC so he...
Hi guys, I just joined the forum. I’m 23 and I’ve been on treatment for over a year. In 2013, before I was diagnosed, I replaced milk with oatmeal in my everyday breakfast because milk made my...