I hope Faithmac is doing well. She did say she would need 3 months of PT following the Feb. 1 surgery-- so that would take her into May. Also had posted that she was worried about possible bad...
Sounds like the cold cut sandwich plus cole slaw mixture gave your ascending colon trouble. Not surprising! Read labels as much as you can for processed/prepared foods. I do much better avoiding most...
Well, we have real heroes here on the forum like Keith, who has to fight off pouchitis after going the surgery route. And he has a very dedicated IBD gastro who worked with the late Dr. Daniel...
Straydog, I've also been wondering about our member Faithmac in FL. She was scheduled for shoulder surgery in late winter, but hasn't posted since then. / Old Hat...
Yep, it's on the BBC Online news report today, mainly commenting on macrophages. But these types of articles always promise something Rx-miraculous in 5 years. / Old Hat (40+ years with left-sided...
Norovirus is a nasty stomach bug that also brings on watery D. Good luck with kidney follow-up tomorrow! / Old Hat...
I agree 100% with Beave & Bacon Girl on the need for IBDers to affiliate with IBD sub-specialist gastroenterologists, though it can be hard to do because they tend to practice at or near major...
Midge, the "status quo for 3 months and then re-evaluate" would be my IBD gastro's advice to patients feeling better after long flare. Surprising, though, that yours forgot about the Mezavant!...
Welcome back to HW-UC, and take good care. Sorry you got the stomach nasties! Could it be norovirus? It hit me last June right after our invasion by Quebec wildfire smoke, ugh! / Old Hat...
Gotya RE direct cause/effect of Imuran. The dermas don't have evidence of seborrheic keratosis turning malignant so they don't express worry over it, but the lesions are ugly. They can slowly scale...
Sorry to read that you have a new dilemma. I can understand your reluctance to switch meds that helped you achieve remission!!!! Skin problems do tend to bug UCers, too. *** I'm also fair-skinned but...
Midge, as a longtime UCer I'd recommend that you err on the side of caution considering your substantial weight loss while flaring. Dipping from 110 lbs to 92 lbs is no joke, but even 98 lbs still...
I remember visiting Monaco decades back while Princess Grace was still reigning, then I wondered why she didn't improve the public rest room nearest the palace!!!! It just had floor holes + swarms of...
Mike, what about your wife's hearing? Did she have a pus situation that led to periodontal root planing? And then after that she got the ear infections? I ask because I recently finished the 4...
Yes, FlowersGal, I agree that the treatment of mentally ill has swung like a pendulum since the 1960s. Back then the unacceptable practices on them included electric shock therapy and/or experimental...
CCinPA: an NYC resident's perspective on how dangerous things are locally tends to vary depending on the borough they reside in. I've lived in Manhattan for decades and find it more crowded now than...
Michele, I blame it on the American Psychiatric Association + grandstanding politicians who never use mass transit or shop in public. The psychiatric association prez said to media in 12/22 that "the...
Very sorry to hear that your wife has so much trouble, Mike. You had posted in the past that she wanted to take up pickle ball after breaking both wrists while ice skating. Definitely keep us updated...
For Michele, a comical subway story from late 1960s: a French colleague of mine told me yrs afterward that he and 3 male friends had moved an upright piano between distant points in Manhattan using...
3TC & Michele-- let's just hope we don't have June ruined by Canadian wildfire smoke this time around! The news was already reporting smoky conditions arising in BC and moving eastward last week due...
Ditto! Great to have you back feeling ever better day by day: YAY!!!!!! / Old Hat...
You're welcome, Joan-- very glad that my advice helped you. When I 1st joined the forum there was a moderator posting as Kit Kat Baker, who advised female members needing comfortable jeans or slacks...
Well, that GI was rather silly! The colon bends at sigmoid flexure so nothing is going to flow straight up there. If the descending colon has inflammation that requires oral med. / Old Hat (40+ years...
Thanks, Clo!!!!! (I do recall your hassles over Remicade pre-auth during winter.) I'll try to locate the CVS/Caremark formulary ASAP to fore-warn myself. I think that MNBeach Gal posted about major...
Is Mezera foam one that contains mesalamine/mesalazine (5-ASA)? If so, that's a big break-through in Canada because the 5-ASA foam hasn't been available to us in N. America though UK, Europe, &...
I just found out by accident that my RX insurer will switch from Express Scripts home delivery for continuing meds to a CVS Caremark plan effective July 1!!! Very scary prospect-- because I recall...
Doctor RXed an antibiotic for you to take prior to stent removal-- so (in theory, anyway) you should be protected from UTI for a while. If that's the case, Clo is zeroing in on the proper alternative...
Glad you're feeling improvement though it's gradual to-date. I think you've been through a lot, Michele, so take good care and hang in there. The bladder & ureter are sensitive tissue in general and...
For Joan & Gritty Hope, FYI-- we in USA have plenty of trouble connecting with IBD-competent doctors, too. There is a scarcity of sub-specialists, many won't take insurance at all, and there can be a...
It might also help you to plan meals with more equitable amounts of food each time-- since you had a stricture. I recall reading some UC diet management advice a while back which said that instead of...
Besides not communicating well, as FlowersGal commented, your doctor was 5 hours late to a c-scope then had you do another one month afterward? That sounds irresponsible! No wonder you've been...
Are you located in UK? They can get the mesalamine foam for low-down UC inflammation, but it never gets distributed in USA nor Canada! It doesn't sound like you have urgency, which would indicate an...
IMO, good idea to try med at lunch. Are you allowed to use Metamucil or stool softeners (gel) during this trial? / Old Hat...
Worst nausea I got in hospital post-surgery came from Lovenox, an anti-clotting drug. Within 10 minutes of injection I would start heaving then puke even water alone. Hospital wouldn't discharge me...
What anesthesia did they give you? Hoping that you got rid of the nausea by now. / Old Hat...
Good luck, ThereareM! Hopefully it's just a temporary setback and you'll improve again soon. / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)...
Glad you were able to get your procedure moved up, Michele, and wish you a quick recovery with good follow-up info RE diet. In 16th century French lit class we had to read Montaigne's essays, where...
Colonoscopy is the gold standard for evaluating colon issues, and can also assess the terminal ileum's condition. Therefore, you should aim to get your 2 year-old c-scope results analyzed, to help...
I did upper & lower barium series x-rays yrs back before c-scope finally gave me an accurate UC diagnosis. Swallowing barium for upper series wasn't bad; it was a tad thinner than milkshake...
Michelejc, I'm sorry to read that you're facing a kidney stone procedure. I can speak to the fear of "being put out". When I was about to be anesthetized in hospital operating room some yrs back, the...
JML-- I did manage to find the forum member who posted about SCAD: it was lka58 who seems to have last updated us in Oct. 2023. There were questions about her diagnosis/treatments, but the consensus...
Another thought occurred to me just now-- since you mentioned a CTscan turning up "mild diverticulosis". Last year a female member on this forum posted about having SCAD, which is an inflammation in...
It sounds to me like you need better info from the physicians you've consulted to-date, either that or connect with a gastroenterologist/IBD center where your symptoms would be analyzed by more...
AAbout fellow passengers coughing/sneezing on your flight to USA, Poopydoop, was it on KLM? I ask because a friend of mine who was vaxxed against COVID, fell ill with it anyway after traveling on...
Agree with BG that you should get info on available options, Lanah, rather than rush to Zeposia. (Wasn't that originally developed to treat multiple sclerosis?) The usual progression in UC meds has...
Good that you found an enjoyable solution to the lateness problem. I agree with you that traffic congestion has grown worse; crosstown was always iffy but now I factor in an additional hour (minimum)...
If brandname Lialda worked for you, also steroids, it could be that your inflammation extended from left-sided to pancolitis. When was your last c-scope? On the issue of insurance coverage, does your...
Good luck during your NJ stay, Poopydoop! Just FYI, my IBD gastro has loads of experience with our meds from 5ASAs to biologics, and recommends Florastor to ward off side effects when ABX treatment...
You could try keeping a diet journal for a couple weeks to gauge whether any food/beverage might be irritating a hemmie. They can be tricky to subdue if internal. Based on past posts from other...
Gads! I'm so sorry to read that you needed to switch maintenance meds, Keith. Hopefully Dr. S. will keep you on top of this issue. Are you still consulting him? Lately the tech situation here has...