Thanks everyone! No I haven’t done PT. We discussed my options. Said if i wait I might eventually need a full shoulder replacement . Will have 3 months of PT after procedure. Doesn’t sound like...
Hi! Still on Remicade and in remission . Having rotator cuff surgery in 3 weeks. Surgeon wants me to wait 4 weeks after surgery to have next infusion. I’m on a 4 week schedule. My appointment for in...
Yup, had joint pain with them all. Not quite as bad as with Remicade. I find Remicade has much more side effects then the others. Entyvio was a breeze compared to this one. I’m afraid to change! Faith...
Hey everyone Still on Remicade every 4 weeks and restarted methotrexate injections. Tried going without the methotrexate. Joint pain was really bad. First 2 days of taking the methotrexate I’m not as...
Was checked for anemia. Every 4 weeks before infusion they take blood. All is good with that. Going to have levels of my hormones checked. Supposed to get next round of pellets in 4 weeks. The...
Poopydoop, im doing bio identical pellet therapy. Estradiol, testosterone then progesterone compounded at night. Due for next insertion. Was using compounded cream. Would it be coming from taking it...
Well I’m in remission which is great. I’m finding some hair loss and thinning. Trying to figure which is the culprit. Also any remedy’s? Faith...
Hi Clo, Doing much better thanks. Just extremely tired all the time, Had a bad reaction to the 50Mgbof Benadryl premed. Felt like i wanted to jump out of my skin. They are going to reduce it back to...
Prep was disgusting! Too much to drink. Takes too long to even work. Never doing that one again. Best one i had was plenvu. Disgustingly sweet but not that much to drink. Works pretty fast. Have a...
Thanks Old Hat! They have to come out with a better prep. Love the Propofol! The only part of the procedure I like lol...
Thanks Serenity! 64 oz is not easy to get down. Going for low volume one next year. Faith😊...
Colonoscopy went well. In remission , found one polyp. That miralax duclolax prep was god awful . Too much liquid to consume. 🤮 . Really got sick. Never again for that one. Have a year to stress...
Well did the miralax at 4pm. Taste wasn’t bad. Nauseous and 🤮 . Didnt go that much. 8pm 4 dulcolax. Wonder how long it takes to work? Faith...
Thanks Sara😊...
Joanna, i have to take the clonazepam. Tried that once and never again. The anesthesiologist actually gives you more if you are on benzos. The propofol needs to be increased. I thought it was the...
Doing the miralax dulcolax one. Be finished by 8 pm...
CCinPA Have to leave my house at 6am . They want me there at 7 30 for a 9 30 procedure. What time did you start the prep. Faith...
Oh yes you just did yours. Hope everything was good. So you only used the powder? No other prep. Really don’t know why I’m getting myself crazy this time around. I have one every year. Maybe because...
Thanks Clo, Monday is the day. Really not looking forward to prepping. There is a new prep that was FDA approved. It won’t be available till august. Guess I’ll do the sutab. Been trying to clean out...
I think the mag citrate is over the counter? How many do you use. Aren’t they very salty? You would think I’m a newbie with all this. Yet I dread each one like it’s the first....
Clo Sounds interesting! Never took Milk of Magnesia. The 15 and the 30 are they measurements of the product? Might give it a try. You still did the prep too? Faith...
I alway have a fear that i wont be totally clean for the procedure. My appointment is at 9:30 am with arrival at 7:30 am The place is an hour away. I have the Sutab in the house. Or she said i can do...
Clo, Just got a prior approval for the other pharmacy. So hopefully i get it this week . Seems the heat here is really bothering me this year. Have the AC down to 73. Thursday infusion! Let you know....
Clo, Must be cooler in temperature in the mountains. Florida 90 right now. Ok doing better, just tired all the time. Infusion Thursday so I’ll let you know how that goes. Get this I’m having trouble...
Methotrexate is helping my joint pain. Rheumatologist diagnosed me with osteoarthritis after taking blood tests and X-rays of my hands and SI joints. First they said it was RA without factors. Called...
Hi Clo, Contacted the doctor. Nurse just back to me. Said if I’m close to the next injection of methotrexate it can happen because your body is basically cleared of the drug. Whatever i had going on...
Been taking weekly injections of methotrexate for the past 4 weeks. I was having terrible osteoarthritis from the remicade. It’s really helped. Been taking 0.6 mg. This week i started with the...
I took it last colonoscopy. I found it easy to tolerate. I have another one coming up next month. Have script for it again. Not sure this time around. It takes a bit longer for it to work. Need to be...
Hey Clo, Yup originally a Long Island New Yorker. Or should I say a Brooklyn and Long Island. Now in Florida. Miss all the same foods. Live in central Florida The Villages. They all lost their taste...
Hey Clo, Been having them run the infusion for 3 hours. I’ll ask about manually setting the dose at specific points. Feel like I’m there all day. You might want to try Emgality for headaches. Once a...
Clo. Great info! Doc gave me a script for the folic acid. Is it over the counter too. I’ve been taking it everyday. Have to remember to take the D and I’ll get some more B. Emgality monthly...
Hey Clo, I think those weekly injections of methotrexate are helping. Been feeling a lot better. Just really tired all the time. Still dont feel comfortable with giving myself the injections. A few...
clo No other numbers, last one said drug level was 15 Antibody was 46 Labcorb was where I went. It was done in March. During the infusion I’m fine. I get every premeds and they slowed it down to 3...
Ok just got my level and antibody results. Drug level value is 30 Anti inflixmab antibodies is <22 Not sure is it good or bad Faith...
Hey notsosicklygirl, yes rheumatologist took the ANA test . It was <2 0-3 was was the parameter. Really can’t take anything but acetaminophen for the pain. Rheumatologist said I have osteoarthritis....
Thought i was feeling a little better after starting the methotrexate. Just had my infusion on the 1st. Two days later my joints are killing me. I can’t straighten out one of my fingers, it feels...
Hey Clo, This is all new to me. When i was hit by that car 2 years ago had all cat scans and MRI . Broken pelvis was the only major bone or soft tissue that was affected. Bone density was done...
Clo, you gave me a lot to think about. Thought i was going crazy. Methotrexate makes me nauseous and have a headache. Doc gave me folic acid. Was afraid to give myself the injection. It’s weekly so i...
Clo, Sounds a lot like what I’m experiencing . This joint pain is terrible. Now it’s in my shoulders and hand also elbow. I have pretty much the same diagnosis. I guess thats why he’s not changing...
I do too. If not i will ask to change meds. I can’t deal with this for too much longer Faith...
Yes had x-rays of hands and SI joint, showed osteoarthritis. Rheumatologist took almost almost every test i could think of. Since my accident I’ve had numerous x-rays and MRI’s . That was last year,...
I mentioned that to the Gi. For some reason he wants me to try Methotrexate with the Remicade. The UC is under control in remission. Part of me wants it to work. I remember when my UC was at its...
Joanna, i guess I’m not tolerating Remicade very well. Next week is the next infusion. This is exactly week 3. You would think it would subside a little. I’ve complained to 3 doctors. Next week is...
Thanks I’m going to look at that site. Sounds interesting. The rheumatologist said they will see if i need them. So i guess they feel they can’t really help me....
What should i push for? I’ve been complaining for the last 3 months. When i was on every 8 weeks things were not like now. Had the antibody test at the 8 week time. Seems the test showed antibodies....
Having antibody test next week. Did the rheumatologist route 2 weeks ago. Had all tests. All negative. No RA or anything else. Not sure what else is thereto do?...
Always had some type of arthritic pain mostly in lower back and neck. Soon as i went to every 4 weeks with remicade the joint ache has gotten unbearable. I can’t even open my hand all the way. Both...
Doctor prescribed subcutaneous methotrexate added to taking Remicade. So now I started injections and folic acid to help with nausea. Hope it helps. At least the injection is weekly not everyday....
Called today the GI , he called in methotrexate subcutaneous 0.6 ml weekly and folic acid daily. Thought he was going to prescribe something else besides an add on to the Remicade. Hope it helps. So...
Thanks Old Hat, I’ve been complaining to the GI of swelling of my hands and joint pain. Now it seems i have it in more than just my hands. I believe it’s a side effect of the Remicade. Seemed to...