Hey I was on inflectra for a year it worked wonders. Im so sorry to hear about your hospitlization. Stay hydrated on infusion days, hopefully the remicade will help kickstart the prednisone and you...
VanJordan have you heard of a product called ASEA? It is a redox signaling molecule beverage. What do you think of it?...
Hey Haley, After my loading doses of inflectra, they put me on 8 week maintenance. I certainly recovered quite a bit, but still had some minor issues. They got my levels and suggested 6 weeks. I just...
An alternate day taper m, or sawtooth taper, is highly recommended when you try to taper below 10mg. 2 weeks for each stage. I followed this regimen to manage the side effects of prednisone. Luckily...
After being on prednisone since April I just weaned off with a sawtooth or alternate day taper. When I tapered down to 10mg and when I was ready to taper to 7.5mg, I alternated each day. So Day 1 was...
Is Dr Barody your GI? He’s the King of FT, worth a shot in my book! Let us know. Mesalamine also caused pancreatitis for me, so I stopped taking it. Sorry to hear :(...
What does a low grade fever mean, say 99.1, or even 99.8 at night if experiencing a flare? Thanks...
Hi. An update. Starting uceris helped my fatigue and low fever. However after a week-10 days of uceris, I developed more cramping and bloody stools and low grade fever came back. I was just in the...
Thank you kindly for your response. Mental symptoms seem to have lifted and I started uceris. Should kick in in a few days...
Hi folks. I was on about ~75mg for a 4 night hospital stay via IV April 1st and went home with 40mg. Did 40mg a week, got suicidal thoughts, went to 30mg nearly a week, same thing, 20mg a week, 15mg...
Hello, I just completed a prednisone treatment, and I’m wondering if I tapered too fast. It’s been two full weeks with zero medication and I am feeling fatigued, some depression and headaches. My GI...
Hey allow me to clarify. No doubt I needed the prednisone to stop the flare, but as opposed to starting a biologic when you taper to a low dose of pred and symptoms might return, instead I have been...
Hey, I’m finishing up my pred taper right now “med free” meaning I entered remission with lifestyle as my maintenance medication... here’s what worked for me. When the flare was bad I too had the...
Sure! definitely inform your doc, if you follow it to a T it will help your colitis, but you lose a ton of weight, it can be scary....
hi jesicaa what is your diet on day to day, what is your history with colitis, and what did you eat to get out of your last flare? thanks...
Agreed ^...
Hey Sarah that sounds awful I'm so sorry. I see you do a plant based vegan diet, have you tried David Klein's Raw Vegan Healing Diet? I used it to get out off prednisone a couple years back. I still...
hey it's totally the prednisone. i get manic at 30mg, was talking to the forest, ugh, very irritable while driving, and yeah bursts of energy around bed time. i take attivan when i'm on prednisone,...
Hey Strike, prednisone is not a long term solution. It makes me completely insane. I get the mood swings, psychosis, I alientate myself from people, it gives me terrible acne and insomnia. Oh, it...
nightside of eden, care to elaborate? you have UC for 17 years? please tell me about your steroid usage... highest dose, for how long... how long you taper, advice for a good taper... cheers!...
Gluten free did nothing for me, but SCD was a magic necklace around my large intestine....
All UCers have gut dysbiosis, all of our gut's are out of whack. Conquer UC, props to you for doing the test. Have you looked into the Specific Carbohydrate Diet? It's goal is to eat foods that don't...
Hey wifey, don't be afraid to double up on your anti-inflammation teas and milks if you see a return of symptoms! Good luck though, can't wait for you to be hair-face free!...
hi, mindoverbutter here, loyal SCDer 2 years now... so Bifidus bacteria is ILLEGAL on SCDIET due to the fact that Elaine noticed that although bifidus can be PROBIOTIC, in gut dysbiois (all patients...
yoga is amazing for the body and mind... if your practice does not involve a meditation, or relaxation at the end, make sure you do that when you get home... try to meditate on something you LOVE for...
hey great topic, yep I've got the nervous stomach too... I get it from my mother. for people who have nerve/gut issues... did you get it from your mother? I would also have gut issues when I felt...
I too have been on the diet for two years. Here are a ton of resources for you: The SCD Community: http://groups.yahoo.com/neo/groups/BTVC-SCD/info SCD Mothers Community: http://pecanbread.com/ <--...
No no no no, you will not get an infection from drinking kefir milk that is insane. Glad that it has helped you, keep it up! But remember, everything in moderation :)...
sarav, if you actually read my topic post, you would know that 6+ is not strong enough to treat UC. try 16-20+ for UC...
I actually feel my long term adolescent use of marijuana brownies led to my birth of UC... An indica THC enema would probably put a flare to sleep as well as get you really baked....
Everyone is different, I found excellent results through SCD diet. The goal of diet's are to minimize physical stress and disturbances in the GI tract... We do have an active disease down there after...
You know what you did to make you sick you just don't want to admit it. UC was caused by many things all at once, a big bang if you will. Diets like SCD and Paleo help manage symptoms through...
I found healing through the SCD diet while on prednisone. While the prednisone masks symptoms, SCD clears up a lot of the illness by minimizing bad bacteria in the colon, while simultaneously...
If you are having illegals, you are NOT on SCD. The full power of SCD will be observed after months of "fanatical adherence"...
SCD diet aims to correct the dysbiosis by starving out bad bugs by not eating complex carbs. Then you make yogurt to bring in the good bugs. Working for me......
Hi I seldom post but I'll tell you my story and what I did. InspectorFish, I got DXd the same time as you, bloody D the end of frosh year and then a DX in May. You can do the enema at night before...
Hey props for trying SCD. You are going to the bathroom, a lot. The biggest reason why people stop SCD is because they try advanced foods too quickly. Just because a food is "legal" on SCD, doesn't...
Pecanbread.com as well as breakingtheviciouscycle.com have recommendations for intro foods. In the beginning I had hard boiled eggs for breakfast, broth w no veggies for lunch with chicken, and then...
Correct, still on max dose of oral mesalamine. Took me over a year to wean off mesalamine enema, but those are gone. "Flares" over the course of being on SCD are hilarious. They are jokes. They take...
When you are at the bottom of the barrel and you can't leave the toilet, your life has gone down the drain, you bleed, you lose weight, etc... You are a sick person! You want a cure! 17 months later,...
Definitely stop the dairy, totally worth a shot. If your C is that bad, pecanbread.com has a C protocol and actually its for ppl like yourself who start SCD and get C. This is due to initial wave of...
In my months of being on SCD I have concluded that the SCD foods are the gut friendly foods, and SCD is the diet for sick intestines. Yes I was put on prednisone day 1 of SCD. I needed medical...
17 months into SCD I am in remission for first time in 3 years. I can tolerate most foods and my life is normal... ... I just bring a bag of food w me everywhere ago... ... Which is much better than...
Solid is good, your digestive is functioning very well, just scraping on the way out... Glad the propolis is working that's awesome. Google: brasco broth. Make a pot of that, will help you get off...
Careful guy, you got active disease, pred can be brutal make sure your sleeping. Dude just do SCD, you already cook and have money for whole paycheck, you'll be in remission for the rest of your life...
Ahhhh New Zedland, of course. I misd Aussie, ill be sure to get some when im back in 2015. Cheers :D stick w SCD, it works...
Where did you get sheep milk?!?!?!?!?? I would love some for my SCD yogi...
Drugs man...
Hey, i started SCD on day 1 of prednisone. 3 months later i was steroid free and doing great. 17 months later, still on SCD, i am in remission and finally off mesalamine enmas. The trick to SCD is to...
This is my signature banana bread: 4 eggs 2 tbs baking soda 1 tbs salt 1 cup almond flour 3/4 cup almond butter 2-3 bananas ripened and mashed mix it all up, grease a pan with coconut oil,about 325...