How are you doing, Sara? Are you still on the higher dose?...
I think what everyone is saying makes sense. I guess my GI was so quick to switch me is because he originally wanted me on Humira but my insurance denied it. I think he’s concerned about staying on...
Hi! Sorry for my late reply - so after three weeks on double dose of Xeljanz I am finally starting to feel better! My GI is going to switch me to Humira though since the lower dose seemed to stop...
Thank you, Susie!...
I’m currently upping my dose of Xeljanz. My GI didn’t want me too, but I’m doing it anyway, as I’m hoping it will help like it did before. I’m almost at a week - I believe it took at least two weeks...
I always have the extra bottles too - so I may just up the dose like y’all said. I really hate prednisone as well. I believe when I did the loading dose years ago, along with prednisone, it worked...
Thanks for your replies, everyone. I'm currently on the 5mg/2x a day of Xeljanz. I mentioned going up to my GI and he wanted to just go on prednisone, as he thought it would be a quicker recovery....
Hi - has anyone had their Xeljanz just stop working? I’ve been on it since October of 2018 and and have enjoyed no flares all this time….then all of a sudden this April I’ve started flaring. It’s...
I started Xeljanz about ten weeks ago and as of the past three weeks have had extreme bloat in my abdomen. I never realized this could be a symptom, but a quick google search shows me it is possible....
Thank you, oh yes, I’ve been to see him, this has actually been happening, on and off, the last two years, that’s why I wondered if there’s a correlation. Currently on Prednisone and started xelljanz...
Was curious if any other women out there with UC have had a tubal ligation and have flared ever since? I had one after the birth of my twins, over two years ago, and have been flaring on and off ever...
I double checked with my GI and he confirmed, yes, 10 mg, once a day. I'm so confused about what to do now...he didn't say why, as I just talked to his assistant. I don't know if I should not listen...
I guess I need to call my GI, he definitely told me to take one pill/once a day, so I’m confused....
My GI started me on xeljanz on Tuesday. He gave me a two month supply of a free sample to see if it will work and then pester my insurance co. if so. I see most people seem to initially be on 10mg...
Thank you! That's the infant risk number, right? It's such a great resource!...
Thank you for the info!...
Hi, thanks so much for the reply! I'm actually no longer on the Imuran and allopurinol (just updated my info 😬). Believe it or not, I literally just found out about Uceris yesterday and thought it...
I'm currently exclusively breast feeding 4 mos old twins and going through a flare that is not responding to mesalamine enemas or suppositories. My question is, has any other breastfeeding mom's had...
Thanks for your input, I definitely gotta do some research and figure it out. Thinking about quitting all but the Lialda and pray I don't flare. I've had my longest streak of not flaring on the...
I am pregnant, after a VERY long time of trying and I am concerned about my meds. I'm currently on Imuran and Allopurinol and Lialda. Does anyone have experience with these drugs and pregnancy? My...
I agree with everyone. Sometimes drugs are a necessary evil. I too would prefer natural remedies, as compared to all the drugs I am on, but it doesn't work for everyone and one of the pros of the...
So last fall I had the worst flare of my life...since then they have had me on Prednisone, finally got off it thankfully, 6MP, but too toxic and now Imuran and Alopurinol. I've been feeling AOK and...
Question regarding 6MP and hair loss. I've definitely been losing clumps of hair while on 6MP and my pony tail has definitely decreased significantly in width. Does it ever stop? I'm only on 25mg,...
Has anyone been on it? Just got a call from my GI's PA and she said I need to start taking this drug as my liver is in the high abnormal range for my current dosage of 6MP. Apparently if you take...
Hey Killcolitis - it was mentioned to me, and the one GI had no problem with being on 6MP while pregnant, the other one wasn't into it and the OB I saw wasn't crazy about the idea, but not against it...
Thanks Sherry - that's how I understood it too, indefinitely. I have a friend who has been on it for like ten years! I mean I don't see the point of stopping it after two years, if it's keeping me in...
I started taking 6MP this past November for a really bad flare that started in September. My usual GI suggested I see a friend of his about starting the 6MP, as he thought it would be good to get a...
Before going on 6MP that was one of the questions I had for my GI and he didn't have a problem with it. Granted I wouldn't go crazy, especially since your liver is already doing a lot of processing,...
Thank you so much for everyone's input - I don't know what'd I do without this forum!!!!...
Hi Psychomom - thanks for the info! At least now I have an ideaish of when this "fat" face will go away!!! I haven't noticed anything different in my neck, but face is definitely WAY swollen. If you...
When does it go away? I'm down to 20mg of Prednisone from 60mg started in October and I feel like my face looks rounder THAN EVER!!! At what point does moonface go away? It does eventually? Right?...
Nausea is definitely a side effect of 6MP. I recently started it as well, also on 50mg, and I too take it at night to try and avoid the nausea/fatigue side effects. Hope you're feeling better soon!...
Disney is very good at accommodating people with all sorts of conditions. You'll also be happy to know that there are many clean restrooms everywhere! They are also huge, so you'll have your privacy!...
I've definitely noticed a change in my eyesight since I started Prednisone. I mentioned it to my GI and he didn't seem too concerned and I think mentioned it will probably improve once I get off the...
I just started 6MP and I am on Lialda...I'm curious about what your phamplet said about a possible interaction as my GI didn't mention anything....
Totally true Sherbear46, totally true. I'll take the side effects over being on the toilet forever haha....
Thanks WingZero! I see you're recently off the 'roids - congrats!!!!...
That's what I'm worried about Sherbear46, the holidays, I gain weight during them when I'm NOT on Prednisone, ah!!! This probably ain't gonna be pretty, haha....
I recently went down to 35mg of Prednisone (started at 20, then up to 60, then to 50, 40) and after avoiding some of the side effects I feel like NOW they are coming on like crazy! I've definitely...
I'm starting on 6MP on Monday. I'm currently on 35mg of Prednisone and I can't WAIT to stop it!!! I guess it will still be awhile, since they need to make sure the 6MP is working first. Anyway, if...
I am on Lialda as well and got a bunch of samples from my GI along with a Lialda savings program...here's the website where you can sign up: https://www.activatepharmacycard.com/newPage/Landing.aspx...
Thanks for everyone's input! I'm feeling a little better about it. Sounds like the side effects are manageable - phew!...
I agree Enree - if you're in remission with Apriso and feeling good why go on the Prednisone while starting the 6MP. I am on Prednisone now so I'll stay on it while I start the 6MP (although I'd...
So sorry Pink 1 - stay strong!!!...
I eat it, but I think it's a personal choice, as most of our dietary habits are. I think since US is an autoimmune disease the treatment/diet is so different for each individual. One person with UC...
Thank you!!!!...
Thanks IBDISTHEPITS. I'm on 40mg of Prednisone now. I'm just waiting to hear back from the GI about my labs and then I'll start the 6MP. Haven't heard back...the GI I saw regarding starting 6MP is...
So looks like I'll be starting 6MP. I'm waiting to hear back from the GI regarding my labs and then I'm going to start it. I had a question for everyone who has gone on it...how were your side...
All the best to you today Pink1 - I'm hoping for a happy flex sig for you! I'm glad your husband is so supportive...mine is too...it really helps when dealing with this to have someone in your corner...
Sounds like we're in sort of the same boat. I was on Apriso since being diagnosed in August of 2010 and have recently switched to Lialda. I switched b/c I have had roughly 3 flares in the year since...