I seem to have a pretty hopeless family too who totally don’t get the privacy thing either or get this disease itself . I guess empathy becomes more difficult when no one else in the family shares...
How is colon acidity tested? Is this a regular screening test one must have? Or just done to decide on the possible efficacy of a particular drug?...
Thanks Susie for all these helpful tips. Will have him see a Urologist too...
Thanks Susie. Its my elderly dad actually. I give him his first dose at 6am and the second around 4:30pm. Unfortunately he passes little urine through the day but then is up quite a bit at night to...
Any one with CKD on Furosemide AM & PM? How do you manage the urine output being more at night and less in the day time? Is there a way to reverse this by some sort of plan so that the output is more...
https://www.theguardian.com/science/2022/sep/11/galleri-blood-test-multiple-cancers-before-clear-symptoms-study?CMP=fb_gu&utm_medium=Social&utm_source=Facebook#Echobox=1662908975 ...
I get an eGFR test done too but there is no range mentioned. Just the criteria below: 90 or higher: Normal, but if there is evidence of other damage, stage 1 60 – 90: Mild loss of function, Stage 2....
Thanks Flowers Girl. Will do....
My elderly dad has been admitted in the hospital over a heart attack and since I am caregiver things are very hectic and stressful for me right now. Practically living in the hospital these days and...
I typically avoid all Dairy products - low fat , no fat, full fat- because they make me feel bloated and don’t suit me.I can have them occasionally like once a week but not on a daily basis and this...
What’s your experience with Modulen IBD powder for UC? Is there a similar ‘no dairy version’?...
My GI won’t do CRP and prefers to rely on ESR and Calcprotectin mainly to monitor through the period between scopes. CRP can go up with flu and flu like things too. So if the gut seems happy you are...
Maybe do a fecal Calprotectin to see if there is any inflammation in the colon causing it? Nausea and weightloss are often symptoms of active inflammation and IBD? Are her stools normal? Also I am...
EuroMedica’s curcumin...
Is there any way to check if your joint and back issues are UC related? What does your GI think about it? I know people tend to think of these things as age related and things that they have...
. If you have to take oral iron only take it as a standalone where it does not include any other vitamin or mineral to it. Even if it says 100% RDA the absorption will be way too low for someone...
Clinical remission is just the first level of remission though meaning you show no symptoms. But one could still show inflammation on the scope (Endoscopic remission) or biopsies (microscopic...
Yes much progress! I can’t open your link either but it is probably the same thing. Why is it so difficult to paste a link that works on this platform. What I do is copy the link the I want to paste...
Live Link: https://www.independent.co.uk/news/health/cancer-trial-results-study-dostarlimab-b2095672 Copy-Paste Link in case Link doesn’t go live:...
I used to find this helpful a 4 or 5 years back. Since Nestle took over it has proved useless on both counts. I do feel like they have done something different to the formula. Have found the texture...
No one in my family has it but my mum these days talks a lot of stomach disturbances which she attributes to her blood pressure and arthritis meds and eating some junk from outside. Since she is 80...
All my doses have been Pfizer and recall having a mini flare trigger by the first especially. There are quite a few people who have reported flares or flares like symptoms being triggered - in other...
I remember reading a woman share a similar story. She had Crohns too but was symptom free for years so was not on any meds and managing well with diet. One fine day she ended up with a fistula and...
Being outdoors is beneficial for my mood and emotional well-being. I am not the sort who can stay cooped indoors for hours on end. Being in the sun makes me exhausted and that affects the rest of my...
I just want to add here that with IBD , food sensitivity/intolerance testing and elimination diets are only indicative to the point you are in this phase of your journey . You may not be able to...
I get them very occasionally and have learnt to tie them to flare like symptoms starting to come on. Someone pointed out anemia so that is new to me (though my Hgb tends to be on the lower side). I...
Well CoVID did trigger a flare for some IBD folk so I would imagine a virus could be responsible too. Anything that contributes to an infection potentially can trigger a flare or even start the...
How useful would clinoptilolite / zeolite as an antioxidant supplement be here?...
Morning joint stiffness could also be tied to RA...
I am not able to tell The article name is SARS-CoV-2-Induced Gut Microbiome Dysbiosis: Implications for Colorectal Cancer Mark C Howell et al. Cancers (Basel). 2021. If you copy paste the (not live)...
So I have finally posted a live link which now won’t click open🙄 Here is the original link. https://pubmed.ncbi.nlm.nih.gov/34071688/...
pubmed.ncbi.nlm.nih.gov/34071688/ ...
Sounds to me like you would find Digestive Enzymes very helpful on your journey? Here is what I think about Food and IBD. Its role is definitely underestimated. Part of what causes the dysbiosis in...
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👏👏👏 Yes. Stress and a bad diet are huge factors for me. There are lots of things you can do even if your GI won’t mention it or chalk out a plan for you. Yoga, meditation, Tai Chi are a few . Try...
I see. Maybe that explains why I always feel exhausted after an hour in the sun for Vit D. I try to do a morning walk when the sun rays are not too strong yet about 7am but with in an hour of walking...
I don’t think there will ever be one thing that solves UC . Even if the RIC helps with healing it will in all probability require a holistic approach to keep it in remission forever. Ultimately it...
CCinPA based on what I read PPI’s can aggravate or trigger IBD symptoms. But then so do antibiotics by disturbing the gut biome and I guess in that way PPI and antibiotics are similar. But then...
Maybe it is the PPI . I had the idea PPI should never be used long term for those with IBD. Read up the side effects literature of any medication you are on to see if they maybe contributing here too?...
Thanks Poppydoop. Agree the biopsy for research is a better idea to shooting in dark....
Can one ask for a limit on the number of biopsy samples that can be taken for investigation? Or is that not wise? Poppydoop I am quite impressed about you donating for research. I didn’t know doctors...
There is also a cancer support forum on Healing Well if you want to post there too for advice. Hang in there xxx. I would think that even if it did trigger your UC (and in my personal but unempirical...
Lubricating eye drops can be used 2 or 3 times through the day (whenever you feel like your eyes could do with some moisture or need to feel refreshed) and if you are planning to use a non medicated...
Diet modification is what I would do first...
👍 perhaps also see if you can get a portable car humidifier in the meantime. Iron can take months to normalize. If you are flaring still and the iron is constipating maybe also have a word with your...
I don't think my knee pain is related to UC. I started doing taekwondo in my 50s. Loved it but it is hard on the knees -- especially when doing a flying kick and landing on your knee instead of your...
Do they give these for age related osteoarthritis? My mother is 78 and does not want the knee replacement surgery even though docs have recommended it for her. Would this be an option for someone...
I am a bit alarmed at so many people mentioning joint pain. Are these hip/spine/ joint pain things stemming from UC related complications or more of age related issues? Does one need to regularly...
Could you try soaking a cotton pad in apple cider vinegar first and holding it in place for 15min and see if it helps you? Or dabbing at them with tea tree oil. That would burn them off and they...
Dry eyes and eye inflammation can certainly be an extra intestinal manifestation of UC. I have been told this by 2 doctors. If it is just dry a lubricating drop or an artificial tears ointment should...