Hi all, It's been awhile. All's fine with UC but this spring I had a blood test with slightly low platelets (I think the # was 125 and it's supposed to be 150). Repeated it to be sure and got same...
Yep, I made that point (that at her age she should be getting a colonoscopy anyway). She was unfazed. I am going to keep hammering on this, but in the meantime, this makes me curious generally: who...
Hi all, I'm writing because my sister discovered she has some inflammation around her cecum. She does not have UC (as far as we know). She was experiencing pain in that area and had a CT scan. They...
What does ROS stand for?...
Hi Van, I’d be curious what the increasing of antioxidants looks like for you!...
So interesting, Quincy. I really appreciate you taking the time to write this. What are the signs for you that indicate a flare is coming, before the blood?...
Hi all, By doing searches, I see there have been some threads in the past on this. But it's a topic that doesn't get so much discussion, so I thought I'd add another based on my experience this...
So here's the question I have for you all. When you do flare, do you just add rectal meds, increase your oral mesalamine, or both? How long does it take these changes to stop the flare? Do you change...
Sassy, interesting! So when you flare you just add the rectal meds and they go away? How long do you usually need to use them for? It interests me that a doc never wanted to taper down your Asacol....
Hi Sassy, It's interesting that you never went down in dose, just upped. How much do you take now?...
What the title says. I am interested as a perhaps slightly nutty person in this category (dx'd 1995) who has at times taken more mesalamine or stayed on it longer than docs suggested bc it works for...
Quincy: my normal diet consists of salad every day for lunch with some kind of bean and a protein. I also eat nuts with my breakfast. Warding off this flare (with help from second enema), I wondered...
Thanks, Sara! Again, my question is less: Will such a diet help everyone? (because clearly it doesn't—though these diets did include dairy and eggs and some fish). It's more: Would such a diet be...
Seeker, thanks--I've been lucky enough to be mostly in remission for many years, so have always eaten pretty much everything (except maybe milk or much ice cream). But what interested me about these...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7737160/ https://www.gastrojournal.org/article/S0016-5085(21)03069-9/fulltext?referrer=https%3A%2F%2Fpubmed.ncbi.nlm.nih.gov%2F The first one is both UC...
These are all really helpful suggestions. I have a call in now to my dr. After the initial post things calmed down a bit and I thought maybe it was a false alarm. But blood seems back this AM (very...
Hi Quincy, why the recommendation to stop the fish oil? I thought fish oil was supposed to be good for UC? I've used nightly Rowasas forever, just the standard bottle (is there more than one kind)?...
I am on 7 400 mg Asacol a day (I was tapering down from 8 which I took for years) + 1 Rowasa, and also Visbiome 2x a day, curcumin 2x a day, fish oil 2x a day. I've been in remission since 2022....
You're so kind to always respond to everyone, Quincy. If you thought you *might* be about to flare, or had "low-level" rectal inflammation as you say, what would you do? At one time I actually did...
I've been on just Asacol + Rowasa for years. But I was always nervous about taking less Asacol. Just this Jan. I finally went down from 8 a day to 7 (so just one at midday, and 3 in morning and...
So far still one a day. But it has a look that reminds me of the past... hard to explain. It's been years, I mean years since I had a flare. But my acid reflux has recently been acting up again big...
I am once again experiencing a bit of blood and wondering if it's a hemmie or UC. I could of course go to dr., and will if this keeps up. But I am supposed to leave on a three-day trip tomorrow AM. I...
Hi all, This is a frustrating post to write. I had LPR for about a year in 2018 and got over it to the degree that I was off PPIs. I took Famotidine before dinner and Gaviscon Advance at night. I...
Yes, did a lot of food experimentation when the reflux started and found it was not related much to what I ate, but more to other things rarely talked about: only drinking tepid water, not sitting on...
I’m starting doing breathing exercises twice a day. In my case I think I became much more sensitive to sodium after menopause. I gradually realized I was having a reaction to the Gaviscon Advance I...
Hi all, here in my middle age I seem to have developed high blood pressure. I have a call in to my doc to try to get a prescription for it. I read that ACE inhibitors can cause digestive bleeding....
Hi all, I suffered for over a year with LPR every day. It manifested as lump in the throat, sometimes terrible burning, but always in throat (or sometimes clavicle) area rather than the "heartburn"...
Hi, I used to do that but as I’ve gotten older I find I need some lubricant...
Does anyone have any thoughts? KY doesn't seem to work as well as hemmie ointment, but I don't use the latter all the time. Would coconut oil be safe?...
It’s actually been feeling better for several days now. So no meds— he thinks it might have had a fissure but is now healed up. Hey, I’m close to turning 54 and if hemorrhoids are the worst of my...
Good news, everyone! (And many thanks for the replies.) My doc wanted to do the sigmoidoscopy (quite a blast from the past!) and the colon itself actually looked great. (Yay!). It was hemmies! So,...
Hi all, I am trying to figure out which of the above I am dealing with. Symptoms are some blood (twice in past week on nonconsecutive days) and rectal soreness (mostly when sitting). So I think and...
Hi all, I'm down to my last box of VSL3 DS. So bummed because it has been such a help for so long. I tried Visbiome (at same strength) in spring and did not have a good reaction, even saw a little...
That is interesting, iPoop (love the name iPoop). I have been on 9 x 400mg daily for awhile. My dr. wants me to go down to 6 X 400 after a clear scope. I've been VERY gradually reducing for a long...
I was dx'd with UC in 2005. I have had ONE flare since then (that is, in 24 years) and it was when I went off my Asacol because I was worried (needlessly, it turned out) about taking it while...
My pharmacy just told me they will no longer stock VSL3DS. I have taken it for years and it has really been great for me. I decided I would give Visbiome a try and got some online. I have taken it...
TT (love that name!), I have tried: D-Limonene (seemed to work at first but then stopped), DGL (gave me heart palpitations), slippery elm (gave me D and skinny stools, which is too bad bc it really...
If you look online (eg Google "Apriso antacids"), multiple sites of the drugs.com variety assert in no uncertain terms that Apriso CANNOT be taken with any antacids AT ALL, even Tums and stuff like...
Hi all, I take generic mesalamine (Asacol) 400 mg from Canada. Have for years. I am currently on a PPI for acid reflux (Prevacid) and haven't had a problem taking this together with the Asacol, but...
Thank you, this is very helpful. I have to say that the S.E. really does seem to have a negative effect on my bowels, which is a shame given it is so helpful for my esophagus. But as to whether this...
Yes, most descriptions of slippery elm's properties mention this about it (that it increases mucus). WebMD for example. I have even seen it said that one might not want to take it if one already has...
Hi all, I'm actually using slippery elm for a terrible case of acid reflux (ongoing since start of 2018). I had tried it without success but recently discovered that at a higher dosage it can...
My question is: Is it really true (as the Gaviscon Canada website states) that eating or drinking after taking an alginate product will break up the raft? I can see how this would work at bedtime,...
Yes, Asacol and Rowasa. I do worry a little about the acid reducers interacting with the Asacol, as in some cases online it suggests it can. (I know it doesn't release till colon.) Good to hear some...
Hi all, I was worried about going on Prevacid, that it might cause a UC flare. (There is a study showing PPI acid reducers often do.) I am also taking Zantac at night. Unfortunately, the reflux is...
Hi all, Many of you perhaps know this already, but I did not and others may not also. 1) When experiencing LPR/throat-lump type symptoms, not drinking cold water can make a huge difference....
Hi Willie, I appreciate very much you taking the time to write this lengthy reply. But unless I am misunderstanding you, your explanations for this condition (or perhaps your doctor's) still do not...
Hi all, and many thanks in advance for any help you can provide! It's deeply appreciated! So, I have had regular "heartburn" (burning in chest) in the past, taken Prevacid for chunks of time, and had...
Hi all, I wanted to try DGL for my LPR/reflux after reading so many good things. I don't have high blood pressure; sometimes it is around 130 but not higher than that (my dr. has never expressed...
Hi all, I have taken Imitrex for ages to abort menstrual migraines. Now I am entering a later stage of perimenopause and so thankfully have to deal with this problem less often (I'm 51). I just went...