Thanks for your replies Flowers - I had everything: blood work, colonoscopy and ct scan with contrast. The pathology report said “consistent with diverticular colitis”. The surgeon mentioned using...
Thank you Flower. I didn’t explain it right. I always mix between diverticulitis and diverticulosis. I didn’t have any attacks. It’s called diverticullar colitis because the inflammation is located...
Hi guys! I just need to get it out. I will try to be brief. 65yo female. 10 yrs with UC (or that’s what I thought). Originally I was diagnosed with SCAD (segmental colitis associated with...
Thanks everyone for your reply. Yes, my head is spinning but I am getting to realize that resistance isn’t a solution. I am running low on my emotional strength. I have a good GI and I trust him but...
Confused about Zeposia Well, I am at crossroads. 9 yrs with UC. I am on max dose of mesalamine (balsaladise). Diets, supplements, mesalamine enemas don’t work. Hydrocortisone enemas work, but it’s...
Thanks everyone! Very helpful information. Still lots to learn....
CCinPa - I was thinking the same. If Medicare was primary the med prescribed would be approved. Or am I wrong? This concerns me the most....
And congratulations for your coming birthday, Geezer! Wishing you the best!!!...
Geezer and everyone I have a question. Maybe a dumb question. From reading other posts I got under impression that Medicare plus supplemental would pay for meds your doc prescribed without requiring...
I am following very closely. I turn 65 in April. Right now I am in my husband’s plan, he still works. But the insurance stopped paying for mesalamine enemas. It came as a surprise. It’s not that I am...
I don’t post much, but follow your posts. Just wanted to say I’m happy you are back and wish you speedy recovery...
Update Unfortunately I wasn’t able to get brand name Colazal. I get my meds from Walgreens. They said not in stock with no date it might be available. Same results with other pharmacies I checked. So...
Thank you, Old Hat I never actually suffered from diverticulitis. Sorry, maybe it’s diverticulosis, I always mix the two. Anyway it’s just the name. From what I learned it’s called this way because...
Thanks, Quincy. Yes, rectum isn’t involved. Initially I was diagnosed with SCAD (segmented colitis associated with diverticulitis). One of the hallmarks of SCAD is sigmoid inflammation with no rectal...
OH — thank you much for the reply. Very interesting. I don’t know my ph balance, so it might be the reason Asacol isn’t working the best it could. My diet is pretty clean, very close to IBD-AID diet....
My question is about Colazal, mezalamine that works for you the best. I am 63yo female with 8 years with UC in sigmoid only. I am taking 2,4gr oral Asacol plus some supplements and probiotic...
I am in a similar situation getting out of flare. I seem to be moving in right direction but not there yet. My tools are mesalamine enemas, hydrocortisone enemas and homemade vit E enemas with some...
Thank you for your replies. I will pay more attention to food choices and timing. Also type of fiber I am taking. See what happens....
I rarely post but often read and thankful for lots of good information people share here. Overall I am doing good atm. I have 3-4 bm a day. I wish it was 1 or 2 as I always feel a little nervous to...
I left Russia when it was one big Soviet Union, so I have friends in former republics (now countries). I was getting some supplements by mail from Latvia (another former republic) with no problem....
Interesting! I follow this thread and find lots of good information. Especially interested in gut mapping and ways to improve gut flora. I am originally from Russia, still have good friends there who...
I was thinking the same...
Thank you, Quincy. My 3 bms is not an increase, never had less of them. Yesterday I increased my water intake and more prunes and saw improvement this morning. Will stick to this for now and observe...
Hi everyone! I am doing ok atm. Usually 3 bm in the morning, which seems to be normal for me. Formed, no blood or mucus. However some pieces are really compacted and hard to pass and would fit...
I totally relate to everything said. This guessing game is sooo hard. Even when everything is ok you never know what tomorrow brings. I guess it depends on personality... for me it’s very difficult...
Thank you, Quincy. Asacol is 800mg a pill. I take 2x3 times a day. Total of 4.8 gr. Dr. actually told me to reduce to 3.2 gr. But I was afraid it was too soon. Now after your post I am puzzled that...
Thanks for your reply. I don’t think it’s the food or hemi. Unfortunately it feels like something starting up. It all started yesterday. Yesterday and today I ate very lightly but today same as...
Hi! I am back with update and more questions. So I did hydrocortisone enemas for 2 weeks, then rotated hydrocortisone with Rowasa for 2 more weeks. Then almost 3 weeks Rowasa only nightly. Plus I am...
Thank you, Quincy. Hanging in there. Will do hydrocortisone enemas as you suggest...
Hi... I have done hydrocortisone enemas for a week. Wanted to see how I would do with Rowasa. So I rotated steroid and Rowasa for a night. Had no bad reaction! All in all I think I improved. Formed...
Thank you, Quincy, for guidance. I was prescribed hydrocortisone enemas for 2 weeks with no refill. I have done 4 so far. Definitely see improvement. Less frequency, more formed stools, still some...
Update. I got to talk to my dr only Tuesday night. I described my symptoms the best I could ( D, cramping, frequency, blood). After doing 2 Rowasa a day for more than a week, I stopped. As I noticed...
Thanks for encouragement! I need it....
Thank you for the reply. Unfortunately, my symptoms changing and I am not sure I am holding or getting worse. I have D now, which didn’t have before. Yesterday was a bad day. Had cramps all day. I...
Need expert advise on rectal meds. I had flexo right before Xmas. Active inflammation in sigmoid colon, mild/moderate. I was put on 4.8gr Asacol, nightly rowasa Enemas and Oral budesonide for 2...
Same here. I had Tele health appt with my GI recently. Asked him if he’s doing any procedures now. He said no....
Thanks for your responses. I am also thinking to stay on rowasa nightly for another couple weeks. Sara, yes, you got it right. No blood for 2 weeks. Quincy - I am consistently on Rowasa nightly for 2...
Hi guys! I was flaring from mid November. 2 months ago after flexo sigmoidoscopy my GI put me on budesonide oral, increased Asacol to max 4.8gr and Rowasa enema nightly. It’s been 2 weeks I don’t see...
Thanks. I guess wait and see...
So I had flex sig. According to what my dr saw he prescribed 4.8mg of oral Asacol, nightly Rowasa enema and oral Budesonide. Right after I took budesonite I saw real improvement and thought in a...
Thank you, Quincy! Before it all started I was having 3-4 BM with no visible blood. All in the morning. Then I went to Ukraine for 2 weeks (I am originally from there), so I had to eat a little...
An update: I have been doing Rowasa enemas nightly for 2 weeks now. Maybe had to skip a night to get more of them. I am not progressively worse but not really better. It seemed for few days like an...
Thank you John and Quincy! Last night I didn’t do an enema to see if I am allergic. Today I think I am not really better nor worse. My feeling is I am not allergic to them. Quincy, I have done total...
Thank you Jen and Sara14! I was trying not to wait too long, used everything I had on hands, started all the supplements I was taking before, was eating very clean... but as far as meds had to go...
Thanks for the reply. I don’t really know if I am allergic. How to tell?...
I hate to admit that I am flaring. Almost 3 weeks ago I noticed a little more blood and few more symptoms. Decided to call my GI but due to cancellation was lucky to get an appointment with him. He...
Sorry, there is NO right or wrong answer......
Everyone has right to opinion. There is right or wrong answer on this matter. Andy, you’re so inspiring... I just admire you and your attitude because life does take courage...
Thank all for your responses and suggestions! ASellers - I think I should try miralax. Do you need a prescription for it? Or is it over the counter? IPoop - I will see my GI end of August. See what...
Thank you, John, for the article and your response. As I went from totally ignorant to some understanding of my issues I read few similar articles. My CRP was normal even before the colonoscopy....