The wedding was fun Quincy :) Pretty sure it is/was a mild case of covid (again) even though the rapid tests were never positive (they’re also pretty old and mat be expired). At least the GI symptoms...
Trying to stay calm and stay positive. Two nights ago, I started having diarrhea but no serious urgency, no increased frequency, no blood (I don’t usually have much blood). Very different...
I don't know much about this new drug except that it's part of the TNF family. Companies are reporting promising Phase 2 results and plan to move quickly into Phase 3. Supposedly better efficacy and...
Same as poopydoop, I stopped mesalamine after starting a new drug that seemed to be working. 5 days later I either flared or had food poisoning, but doc seemed to think it was a flare. I had to do...
Sorry you're not feeling 100%, Sara. It doesn't happen often but I've missed a dose of Xeljanz here or there, due to time-zone changes or just occasionally forgetting. I even had to stop taking it...
I've been drinking kefir for a long time - before I started biologics, while on biologics, and now on Xeljanz. I'm not sure if it ever helped or hurt - I often start drinking it again around the time...
Okay, they reduced my April 19th bill down to $75. Hopefully that's the last of these bills at least while on Xeljanz....
I've had a few tests done at Prometheus laboratories over the years. They'd send me a bill for $2,500, I'd call and they'd adjust it down to $75. But the $75 program ended March 14th 2022. I had a...
Hang in there UCHater. I'm also really grateful for this forum. I know everyone's experience is different, but we understand in ways friends and family cannot. I know EXACTLY what you mean about the...
Excited to see Merck buying Prometheus (for $10.8 billion). Another big pharma company getting into the game/stepping up their game. (full disclosure: I'm a Merck employee, but thoughts shared here...
Good luck BaconGirl! Fingers crossed you have a rapid response to Rinvoq. Let us know how it goes....
Poopydoop I came across a reply to a post were you mentioned you were on birth control and Xeljanz and it was helpful. Sara, it was so strange. My gyn, my GI, and cvs pharmacy didn’t have any problem...
yeah....Accredo didn't go for that. Instead I've asked the nurse at the GI's office if I stop taking birth control until this question is resolved, can she reply to Accredo today. Fingers crossed....
Accredo (specialty pharmacy) and my doctors are driving me crazy! I'm on Xeljanz (or I will be until my prescription runs out on Saturday). I ordered a refill through the specialty pharmacy a week...
I hope stelara keeps working for you. How do I deal with it mentally? Ummm, I usually cry. Even if I feel great, but then see blood, I’ll cry over what I might be about to lose. Idk if that’s helpful...
My doc also said every two years for colonoscopies which was a change. I thought it was every 5 years too, but a few years ago I guess the recommendations changed to 2 years?...
Woooo! Congrats serenity, that’s amazing and we’re definitely here for it....
Wow I can’t imagine Rinvoq could be faster than Xeljanz. I was feeling better in days. Im still on 10mg 2x/day and it seems I need to stay on Lialda. I even had to restart rowasa. I wonder if rinvoq...
I don't have a deductible for my prescription drug plan, but when I got Entyvio through a home infusion provider, the provider billed everything to my medical plan. I would have had to find a...
Hi bacon girl, I am on Xeljanz. My doc prescribed shingrix after I started it. Xeljanz started working within days or maybe a week. The first shingrix dose was fine for me. I even got it at the same...
You can check your explanation of benefits, but depending on how the meds are billed, then yes. When I was on Entyvio, I had a co-pay of about $1200/infusion. The copay assistance program covered...
Thanks for your responses! Interesting and frustrating stuff. Hope, I saw someone on reddit said the same thing about not flaring during pregnancy. I'm hoping that hormonal birth control will help...
It is not your fault and you are not alone. I feel like we need a banner at the top of the forum. I have definitely felt a lot of guilt over not diligently following a super restrictive diet and that...
Do your symtoms flare before/during your period? I know that "period poops" are a thing even for women without UC, but do you ever have rectal bleeding before/during your period? I mostly feel like...
I used the Entyvio patient assistance program, but I had health insurance and used the co-pay assistance. It seems more tricky if you don't have stable insurance but they say there are options. It's...
I'm sorry to hear about your insurance woes. I hope HR figures it out quickly! I disclosed my diagnosis to my first boss when I started my first job. She was very supportive. That was a few months...
Sorry to hear about your allergic reaction! Maybe that will let you try Xeljanz. Did you consider Entyvio? It's supposed to have fewer side effects than Remicade. On remicade I had to pre-dose with...
Thanks for sharing suzy-q! Happy to hear that your husband is doing well on Xeljanz and that it's been working for 7 years and counting. After Entyvio stopped working after about 1.5 years, I'm...
Anyone else struggle with vaccines? A couple of weeks ago I had my second Shingrix vaccine (b/c of Xeljanz) and the flu shot at the same time. A couple days later I started seeing blood and mucus. I...
Wooo! Happy for you!...
I started Xeljanz in May after flaring on and off for about a year when Entyvio stopped working for me. Drugs began working so fast! I remember it was about 1.5 - 2 weeks after starting Xeljanz and I...
This is tough. I started Xeljanz a few months ago and it’s working great and I have the same question, though I’m maybe 3 years from more seriously thinking about getting pregnant. I know that...
Interesting work. I'm glad they are doing this sort of research, but in addition to poopydoop's comments, I see that the poster is presented by Abbvie (obsolutely fine) but they don't have a...
One Week update: Things are going well so far. Certainly not normal (it's only been a week), but I'm definitely seeing improvements. First of all, no observable side effects so far. Improvements 1....
Day 1: Starting Xeljanz today! I'm planning to share my experience here in case it's helpful to others. I know there's already a lot of Xeljanz stories on here, so I'll keep it consolidated to this...
Any one know if someone could have success with one JAK inhibitor but not another? Just curious for now, but about to start Xeljanz (maybe)...
I don't know if stress causes IBD, but I know it causes my flares. GI docs should start with a prescription for therapy or at least mindfulness... That's it. I'm starting a 30-day mindfulness...
Thank you all for sharing your thoughts and exoerience! I dont think I have risk factors but my symptoms aren't too bad (relatively), so I'll probably go with the better safety profile and hope for...
Hi, I was in remission for about 1.5 - 2 years on Entyvio, but it's been failing since April 2021. Maybe from covid or covid vaccine or just time. I did a 40 mg taper over 1 month in Oct and again...
My brother stopped remicade after being in remission for like a year. And then he was off all drugs for almost 10 years until he flared and went back on remicade without problems. But my GI was very...
I've been on oral mesalamine forever, though my inflammation is a little too far down for the oral mesalamine to reach. I'm not sure how much it helps, but I haven't had any side effects from it....
My UC is definitely hereditary. 23andMe says I'm 98% Ashkenazi Jewish and 3/4 of my immediate family have been diagnosed with IBD (me, brother, mom). Though we all present totally differently....
Remicade had me in remission for about 4 weeks..... Then I tried Entyvio and that has worked for about a 1.5 - 2 years. My doctor wanted to start with Entyvio actually, but insurance required that I...
Yes, similar thing used to happen to me before I started biologics and achieved remission (for some time). I read that its a vasovagal reaction (like fainting at the sight of blood). Once when I was...
100% to this question. VanJordan, the paranoia is real! re treating early: I'm so confused about treating now. Before I was in remission, I had symptoms all of the time but didn't use pred to control...
I've had perfectly normal CRP but incredibly high FCP a few times (I think I recall other with similar experience). However, BMs were not normal at the time. I felt very much like I was flaring...
Thanks for your input and just for listening. I feel better now about asking my gyno or GI about it. So appreciative of the community here!...
Hi there, I have a question that could be awkward or just silly, so I was hoping to start here instead of asking my GI about it..... (I've been trying to figure out how to say this, I'm just gonna go...
Good luck with Stelara! I'm in a similar spot. Entyvio was amazing for about a year and half but then starting flaring (maybe after vaccine or maybe a coincidence...). I did a 4 wk tapper and...
Psa: It took almost a week to refill my Lialda prescription. Hoping I dont flare.... They said it was on back order. Fortunately the pharmacy was able to fill one month's prescription and they put it...