I take my adalimumab every two weeks, and I never missed any as it got brought to me while I was in hospital. It says my amgevita is 40mg? The first time I had 4 pens, then 2 pens, and then I’ve had...
I got diagnosed in February, and this was how I started off too! It was just blood and sometimes I got mucus too. It really does sound like you’re in the middle of a flare. I hope your nurse can get...
Back again, I don’t usually post twice but I’ve had a nap and my tablets I think have kicked in, I’m feeling a little better, or at least like I can make today bearable. Mornings and nights really...
Well, the feeling good didn’t last very long at all haha. I’m writing this in a bit of a panic right now so I might be the one jumping the gun this time, but it’s early morning for me and I have...
I’m on 30mg prednisolone at the moment and my next adalimumab shot is this Friday. As well as that I’m on two azathioprine a day. I seem to have stabilised at no blood and stomach ache symptoms if I...
Beave, you’ll be happy to hear this one haha. The gastro team came up a few minutes ago, and have basically completely overturned their first ruling. I assume this was why it was radio silent...
Okay, so the gastroenterology team paid me a visit and said I could be starting vedolizumab. I was meant to have my first infusion yesterday, as I’ve been saying, but they said they were going to...
The word for word parts of the report I think people wanted to see: Site A: (terminal ileum) 2 biopsies Site B: (area extending from caecum to hepatic flexure) - mucosa: patchy moderate granularity;...
I’m sorry I don’t know what they are trying me on, but they said it would start tomorrow so I’ll be able to update then, and if it is another TNF inhibitor I’ll definitely talk to my IBD team and...
Got the results back today everyone. I am a little bit devastated haha. So they found a stricture and I’m showing more crohns symptoms than UC now (am I still allowed here if they’re saying it’s more...
Back from the colonoscopy! I am fine. Have had a bit of bleeding in the toilet since, but we aren’t that concerned so just awaiting results tonight or tomorrow morning. I’m so relieved it’s all...
This was such a lovely story to read at my point in my journey :) I’m so happy for you!!...
Had my light breakfast before not being able to eat. I ended up having a 235ml blood transfusion last night (my consultant said it was just a top-up, my haemoglobin was at 77 and they do blood...
Unfortunately the consent form for the colonoscopy has freaked me out a little haha, I know it’s all just for legalities sake and I’ve had a sigmoidoscopy with 6 biopsies so there’s no reason for me...
Well, I’m back again haha. Still in hospital. The last two days or so were looking good with the bleeding having stopped, bloods going up and just generally I felt better in myself. Last night, for...
Haha, I’ve never had any alcohol in my life, and acidic drinks made me feel sick before I ever got diagnosed. Fast food is definitely a vice of mine, same with spicy food. and I’m working hard to not...
Day four, haemoglobin low enough they’re cross matching my blood for another transfusion. I’ve had one before and I was fine, but with my random reaction to infliximab that they never got figured out...
Rather than make a new post, I think I’ll keep on replying here. I don’t want to take up too much space :) Day two in the hospital! Unknown iv steroids seem to be doing me good, blood is already...
Hello everyone! Hope I’m doing this reply right. Thank you for the positive messages. It’s nice to see some people still have some hope for me. I’ve had lots of comments that I’m just not trying...
I feel like I have to get this out somewhere, because I don’t really have anyone I can talk to. I’m seventeen. Started having stomach issues properly in January, was diagnosed by late February with...