Glad that they work for you. In my opinion rectal meds are often underrated as a treatment - especially for mild disease. Mesalamine enemas never worked for me, but hydrocortisone enemas were able to...
Have they even done any animal research using these meds for UC? Cancer drugs can cause LOTS of side effects so not sure this is something a doc would prescribe off label. But you never know....
I was talking to a co-worker who has diabetes and has been unable to get his med because it's always out of stock. He had to go on insulin instead :( It amazes me that so many people are paying out...
That is worrying, Mom. I know it's hard to change meds when you are feeling good and in remission, but it sounds like the skin cancer risk is pretty high for you on Imuran. Entyvio is considered the...
I stayed I mesalamine for a long time after I was in remission on Remicade. I think I didn't stop completely until last year. I very slowly weaned off -- dropped 1 pill a month until I stopped (I had...
[quote="Midge22" My understanding is that severe disease can cause the medication to leave the body too quickly, but once I’m no longer in severe state, hopefully that is no longer the case. [/quote]...
I remember when I was a kid in the 1960s there were a lot of public toilets where you had to put a dime in the stall door to open it -- pay toilets. Since there were 6 of us kids in my family, when...
Thanks for this. Good to know....
I am not understanding your dosing. IV infusions usually start at 5 mg per kg of body weight and max out at 10 mg per kg of body weight. Take your weight in kg and multiply by 5 or 10 to see what...
I was the same ... totally lost and I felt like I was tripping over my own feet. I needed a sloooow class that goes step by step in slow motion and then gradually ramp up to speed....
I am too clutzy for Zumba. I tried several times and could never keep up....
Old Hat -- I couldn't imagine moving to Manhattan from PA. Then again, I live in the woods. Cities have too many peeps for me lol And Michele has really enticed me to want to visit again (not!)...
Glad the it went well. Hoping for a speedy recovery! What does 65% EF mean?...
I don't have any advice. I googled and saw the same things you likely have already seen. Does it ever change color? For example when I eat a lot of blueberries my stool gets very dark. If I eat a lot...
Back in the 80s they closed most of the state mental hospitals and just put those peeps on the street. What could possibly go wrong??? Baffling then and worse now. I recently heard some conversation...
Darn decimals lol. That makes a difference. I probably would have been a bit concerned too, but your % was normal so that is likely the more important number. Something to watch and see what it's...
I thought the same thing! Ceramic really is freaky! I've kept extra TP on hand even before I got UC after having to use paper towels one time. I vowed never to run out again. But after 2020 I now...
https://www.msn.com/en-us/lifestyle/lifestyle-buzz/what-did-ancient-humans-use-for-toilet-paper/vi-BB1mCXeY?ocid=hpmsn&cvid=fb0b16fc1a884f9c88fe4ef1102857b1&ei=46#details ... and now you know lol...
\ .10 sounds like it's in normal range -- it's less than .3 but more than 0. What make you think that's high?...
What did it say the normal range was?...
Wow, Mike! So sorry to hear about your wife. Best wishes for a smooth and easy recovery!...
Did you try even the relatively newer drugs like xeljanz and rinvoq. I think there's 1 or 2 more that weren't around 5 or 6 years ago for UC too but I can't remember the names....
Glad everything went well and you are feeling better!...
Was Phase 1 the 1st 12 weeks? Maybe you had the real drug then, but if they gave you a placebo in Phase 2 that could be why you got worse? How long have you now for sure been on the real drug? Sorry...
How long have you been on Entyvio? If it's been more than 6-12 months and your colon still looks pretty bad, you probably need to change meds completely. It's great that you are feeling better, but...
Quincy is right ... it's illegal to share meds. Your primary care physician could write a script for you to hold you over until you get a new GI....
https://www.dropbox.com/scl/fo/1h52buq3op4b7l47h1h1u/AMkMcQB0kYuYujOedPTLhm0?rlkey=hj58v5q7sbgfqzgii9zahnmh8&e=1&st=3gern57e&dl=0 ...
I think most of us get electronic results and just copy and paste the results. I have no idea how to post a photo. It looks to me like you would have to have it saved online somewhere else and link...
Glad the surgery went well! Hopefully the next few days fly by and you can get rid of the pita. Does it hurt a lot? Diclofenac is an NSAID so if you are sensitive to them be careful with how much you...
Sorry to hear you are struggling. Never a good time when flaring :( What dose of Mezavant are you on? You may need to move to a different class of meds. They sound scary, but really do give you your...
Best wishes for a quick and speedy recovery! How do they remove kidney stones?...
Yikes! That would have freaked me out. I still wear a mask when in public. I had to get some blood work done earlier this week and there was a man there waiting with a mask on. I so rarely see that...
Clo -- did your friends pay out of pocket for these? Most insurance doesn't cover them for weight loss so I was curious how they were able to pay for them since they are so expensive. Is there some...
Hope you are enjoying your visit to Princeton. At least the weather is pretty nice right now. You are in a state nicknamed the Garden State. Things should be starting to bloom there....
In my opinion it's doubtful that balsalazide will work any better, but I understand the reluctance to move to a different class of drugs. I prolonged my flare for years by trying different things...
I don't know if you can get it at a retail pharmacy. Likely ordering online will be the fastest. What part of the US are you visiting?...
I like walking barefoot. It just feels comfortable. As long as you watch where you step and wash your feet before walking around the house there's no harm in it. I don't think it ever helped with...
Clo -- did the people you know gain the weight back after they went off it?...
https://www.medicareinteractive.org/get-answers/medicare-denials-and-appeals/original-medicare-appeals/advance-beneficiary-notice-abn It's basically saying that you will pay if medicare (or in your...
I am curious about this too. When you read the side effects they all list diarrhea as common so that makes me nervous. If you try it, please let us know how you do....
That's good news, Clo! Your infusion will only be a week late so you should be fine. Sounds like that doc got scared when he was bombed with all those letters and thought be better try to make nice...
Clo -- I have complete faith that your docs will get this straightened out. I just hope it happens sooner rather than later. Do whatever you have to do to try to keep stress at a minimum. I know much...
Keith -- are you still having technical issues on this site? I just started posting again a couple weeks ago and it has been fine now. Sorry to hear of the lingering Covid problems. Hopefully Rinvoq...
Definitely see your gyn, but low dose hormones should play nice with UC. Maybe even help a little because you won't have to deal with the heavy periods. They will also help with hot flashes and mood...
Maybe he is having technical problems. That happened to me and I just stopped even trying read for a long time. Everything seems to be working fine now, so if that is what was keeping him away...
Oh, Clo! This is so awful! Hang in there and know that you can come here and vent as much as you need to. Insurance is so frustrating. Hope your docs can help you get this straightened out soon. Does...
You all make me smile! Thank you!!!...
I've never had a prep like this before. I always had time to walk (not run) to the bathroom ... never even close to an accident. But at some point in all other preps I would get nauseated and light...
Biopsy results back. There were 10 biopsies plus the polyps. No signs of colitis. No dysplasia detected in any sample. Colon has completely recovered from the prep. Life is good...
Thanks, Clo & Countess Biopsy results back. There were 10 biopsies plus the polyps. No signs of colitis. No dysplasia detected in any sample. Colon has completely recovered from the prep. Life is...