UPDATE: My new GI decided to move me back to Entyvio infusions in November with a reloading protocol (0, 2, 6 weeks). Felt pretty stable until the middle of December and then started flaring. Went...
Clo and Flowers, thanks for the thoughts! To answer your questions: - "You may be having a flare. Have you noticed any symptoms? How often do you have blood work done? Does your disease severity...
On weekly Entyvio injections (shifted from monthly Entyvio infusions last year) so on Entyvio in one form or another for 7 years (infusions for 6 and injections for 1). Also take Mezavant 4.6g and...
https://www.nytimes.com/2018/04/06/opinion/sunday/germs-microbes-processed-foods.html Common food additives like sweeteners and emulsifiers have interesting changes to the micro-biome. j....
One note on the DHEA supplement from the Mayo clinic: https://www.mayoclinic.org/drugs-supplements-dhea/art-20364199 j....
My history is similar to yours, long periods of remission punctuated with longer and longer flares. My prior flare 2 years ago took me to hospital and IV steroids to get into remission which I fell...
Currently in a flare that started in May 2017 with mucous and bleeding (I had been in remission for 2 years on Mezvant and Salofalk Enemas). Been on around 40mg of Prednisone since then along with...
All, I am in the middle of a flare that is stable (not getting worse) with some urgency and bleeding (despite being on Pred - see sig). My CRP is normal however and I feel generally ok. Scope showed...
I am in a similar boat. Was doing well on Mezavant (Lialda) and Salofalk enemas and then about 6 weeks ago, BAM!, bleeding. I've been on 40mg of prednisone for about 4 weeks now with similar results....
Quincy, Original diagnosis back in 2004 was proctitis based on sigmoidoscopy, I can't remember if biopsies were done. Original c-scope in 2010, unfortunately I don't have the pathology results. At...
Update: Colonoscopy didn't reveal much that was new in terms of inflammation: - Ascending colon has defined vasculature that may show previous inflammation but no current visible inflammation -...
Update: *Still having a small amount of bloody diarrhea followed by normal but blood streaked stool. Only have urgency once per day. Not too much cramping and gas pains. *Still on max ASAs orally and...
Fair point Casey. I take the oral meds in the morning, slippery elm in the afternoon and evening, hopefully far enough away from oral meds....
Exactly 2 years ago I was hospitialized and got into remission with IV sterioids and a taper to 4.8g of Mezavant (Lialda) daily with a 2g Salofalk enema nightly. Went down to 2.4g of Mezavant daily...
I have never been on biologics and I too was recently diagnosed with lymphoma. Specifically Cutaneous T-Cell Lymphoma which is a variant of Non Hodgkins that primarily resides in the skin (it is a...
This article really resonated with me mostly because it provocatively changes the question from what's wrong with what we eat to what's wrong with our immune systems:...
Hey all, I posted a while back about ending up in the hospital after not being able to get a flare under control (after upping the 5ASAs, trying Entocort and a short course of Pred). I was having one...
There is a similar article to the one you are referring to on the blog: http://evidencebasedibd.blogspot.ca/2013/12/stopping-remicade-can-you-restart-or.html Bascially, it comes down to the...
To be clear I wasn't referring to any specific blog post but all of them on the site. I think they are excellent. For example there is one that talks about if you come off a biologic can you start up...
I found this excellent blog which covers everything from biologics effectiveness, epidemiology caffeine intake, artificial sweeteners and even how exercise effects IBD:...
Aright. I am on predinisone 50mg/d for a week, then 40mg a day the following week, tapering 5mg week to 0. Basically that keeps me on pred for 2 months which seems longish (is that considered long...
Thanks for the advice. Keep it coming! It really helps. The ER GI felt Imuran and 6MP were similar compounds and therefore finds no difference in their safety or efficacy. Her protocol is to start...
History Since 2002 I have mostly had proctitis and treated with suppositories and enemas. There have been 3 or 4 flares with bloody diarrhea and urgency since then, some lasting a month or more, but...
Good question about an IBD diet. There is no standard diet as anyone here can tell you. Some IBD diets, especially while flaring, are low residue (low fibre). I am following a diet devised by a...
GI is out of city until next week. Nurse practitioner for my GI is going to get an ultrasound done. Pain really subsided with heating pad last nite, although there is still a bit of a bloated...
Hey all, Looking for some advice. I have been trying to get a flare under control for over 2 months now. First it started with some loose stools, bit of bloating and gas pains. Then the bleeding...
Thanks for the reply. No iron supplements or vitamins other than the ones listed in my signature. I am waiting to see my regular GI. The way it works in Canada is if you haven't seen your specialist...
Hey all, I have been dealing with a flare since March 2015. Initially it was a small amount of diarrhea with lots of blood and mucous once per day with some major cramping and gas. I upped my...
jasherlynch, What exactly were your symptoms of pancreatitis? I've been feeling down for a couple of weeks or so with mild cramping (on and off for an hour or so at a time), loose stools, and...
I would talk to your GI. I had similar issues and the sitz baths did not help. My GI diagnosed a fissure and prescribed me a nitroglycerin ointment which cleared it up in a few weeks. j....
See a doctor! Asacol is eliminated through the kidneys and one of the rare but serious side effects is nephritis or nephrotic syndrome: http://en.wikipedia.org/wiki/Mesalazine. If your urine is...
If you look at the actual ban on liquids in cabin it does not apply to prescriptions: "Another exception includes eye care products and medications. You are allowed to bring liquid medication onboard...
I won't be able to see him until the 15th of July. Things seemed to have improved with the suppositories although I had my most recent issue while taking them. I recently had a sigmoidoscopy (late...
I've been on the enemas nightly for four months (through a bad flare that started after taking cipro/flagyl back in Jan). For the last two weeks I have also been taking a 1000mg 5ASA suppository...
I've been having little or no inflammation lately with soft well formed stools at regular intervals. There has been no visible bleeding. What has been happening however is that shortly after I start...
Let me raise my hand and say, "I have UC and I have a chronic fissure". There is even a scar! It sometimes turns into a world of agony when I have a flare and lots of diarrhea. So far my GI has been...
Sigh. No sooner do I get things 'normal' after treating my fissure then I get what appears to be a hemorrhoid. I am looking for some perspective from anyone who has had a similar experience. Colitis...
Recent scope was good. Proctitis is looking under control with nice sharp blood vessels in scope. Fissure was hard to see but you can feel the scar. Hmm.. so far everyone sounds down on the lubes. j....
I recently came back from another scope and noticed that after these scopes or digital exams I have pretty normal and easy BMs. I am thinking might be because of all the lube. What do y'all think? Do...
I had a colonoscopy about 18 months ago (which was fine) and because of my recent flare and all the pain (over 2 months) my GI wants to have a look using a sigmoidoscope. Right now I am having normal...
How do you take a looksee? j....
Actually fissure seems fine. I've noticed a very thin bump descending down the opposite side of the canal that seems to be associated with the remaining (minor) pain/small amount of blood (both occur...
I am on rectal meds (see sig -- new!) for proctitis. To treat the fissure I am also taking a Nitroglycerin 0.2 % ointment for 6 weeks (4 x daily). It seemed really to have helped for a couple of...
After my flares I am usually left with a fissure to deal with (usually because of all the D). It seems more frequent these days that the fissure will reoccur at the slightest provocation. I was...
Well, still having some pain (for up to 6 hours after bm) and bleeding after switching to the 4g enema and 1x 1g suppository. Any thoughts about throwing Proctofoam into the mix? j....
Quincy, I've been on the 2g enema nightly for about a month and a half (basically when I started antibiotics in early Jan) but I had been using it about 3 times a week before for maintenance. The...
I'm trying to get my proctitis under control: rectum is inflamed, bleeds a little, and hurts. Stools are normal. I am currently taking 4x400mg 5ASA tablets, Salofalk 2g enema and a Salofalk 1g...
Well, after my ulcer and antibiotics ordeal things are starting to settle down leaving me with my more normal burden of proctitis. My rectum is quite inflamed, causing a sandpaper like feeling when...
You know I just went through something similar. Long story-short: took Cipro/Flagyl at start of Jan which was effective at treating my problem at the time. Antibiotics for 8 days and then the D...
Good feedback from all of you, thank you. It is my GP not my GI specialist who is doing all this stuff to me. I think he is quite a good GP though, he will often call me at home to see what is going...