I tried the full program last summer (in 2023; it's now 2024). IT DID NOT WORK. Let me repeat: it did not work. I did not enter remission. My bleeding never stopped. And I felt so angry that their...
Just an update. I was on SCD for 2 months in January and February this year (2024). My bleeding never stopped, but my ESR (sedimentation raid) and CRP were in the healthy ranges for the first time in...
My rheumatologist actually recommend Rinvoq so hopefully I can try that next!...
Hey, everyone! I've been on Humira for 3 years now, and added Sulfasalzine in January to help deal with my joint issues (my knees have been swelling up every few months, requiring visits to a Rheum...
Back with some data. I have UC. I've been on strict SCD since January 1 of this year, and added sulfasalazine on top of Humira on Jan 31 after a painful arthritis flare up in my knee. I did blood...
@quincy -- That's not true for me. I've had sudden short flares caused by intense emotional distress. For example, I went to visit my mother last Fall, and the distress of the visit triggered a...
My symptoms have been well-managed via Humira and the SCD diet. This past weekend, I tried a CBD oil that has melatonin in it. After 2 nights of the melatonin CBD product l, I developed a flare-up,...
Everyone is different, but red meat is helpful for people with bloody stool. More likely the grain or tomato causing issues than the meat. Remember: meat is mostly digested in the stomach and small...
When I was unmedicated and in a severe flare, yes I had to stay close to a toilet at all times. What meds or protocols are you on?...
Pecanbread hilariously says that cacao is coca and thus bad for you (cacao and coca are two very different plants). Does anyone know why raw cacao might be illegal on the SCD diet? (I've been in...
Thanks for all of your responses. I have definitely lost weight on SCD, although I'm not badly underweight. I do love fish, and I never eat out anyway, so this diet isn't hard for me. But I imagine...
I actually have UC, but I'm posting this question here as well. I just read "Breaking the Vicious Cycle" and I am ready to try SCD -- but for my sanity I have added some "illegal" foods. Can anyone...
Hey, everyone! I FINALLY read "Breaking the Vicious Cycle" and am ready to try a slightly modified version of SCD (adding organic tofu and Desi chickpeas). Can anyone here share their experiences...
Early on in my diagnosis, I was doing Crossfit and Olympic weightlifting almost every day. I can't imagine doing that these days. I have switched to low-impact exercise. I do Pilates and ballet/barre...
UPDATE: So this is not the update I want to make, but my experiment failed. Although my symptoms while off the humira were fairly mild, my blood work was not great. My inflammatory markers were high...
@qincy I've tried hydrocortisone enemas twice but they haven't had much of an effect. I do make homemade cannabis suppositories though, which seem to calm the area....
Hello, everyone! Update on my experiment: I'm doing ok, but not great. Just saw my primary care doctor today. My bloodwork shows a lot of inflammation. High sed rate, high CRP. I've been experiencing...
@CCinPA yes, but a flare isn't binary. It's a spectrum. And my flare is getting better every week, not worse :) What help is negativity in the healing process? I think there are folks in this forum...
@Clo -- the kefir has been critical for me to have solid stool. It helps SO much! Also I'm basically addicted it at this point (which is not uncommon, LOL) @Bacon Girl -- curiously, my...
Update: still doing ok! September first will mark 2 months off Humira. Still have blood in my stool a few times a week, and have 2-3 BM's a day. My left knee is a little stiff again. Those are my...
I'm in a mild flare. I LOVE popcorn. I ate some popcorn last night. Organic yellow kernels, cooked in organic coconut oil in the stove. I took CBD beforehand to calm down my colon and tried to chew...
It's been a month and I'm back! Still on my herbal protocol and off Humira for 1 month. I'm not flaring badly and I feel really good! I'll be back in another month to report....
I'm on it now. I've been on it for a little over a month. It hasn't stopped my bleeding, but it stopped my night sweats and so far it has likely helped prevent a flare since I've been off of Humira...
Clo, I will certainly keep this forum posted whether I succeed or fail in my weaning experiment. I'm not terribly concerned about antibodies. It's more of a risk with remicade because the antibodies...
Me too! Thanks, Clo!...
The half life of Humira is 10-20 days, although it can take up to 3 months for complete elimination of the drug. I'm optimistic because the last time I tried to come off of Humira, I was flaring...
This isn't exactly a natural-friendly forum but for anyone interested in drug-free remission, read on. I've been trying to wean off Humira for the past year. I noticed that my inflammatory arthritis...
I microdosed Psilocybin this past winter, from February - March. It had a profound effect on my mood and motivation, but it's not something I would want to use long term. I will say that the result...
Oh wow. There is no way to take enough pills. Do you know of knotweed tea is effective? I have about a pound of knotweed root....
I've been taking: - Biocidin Liposomal Formula 3 times a day - Green Dragon Botanicals LB Core capsules, 4 pills, 3 times per day. - 1 Biocidin Botanicals GI Detox charcoal pill before bed. I have...
I get mine from agelessrx. Super easy process. https://agelessrx.com/ldn/...
I'm currently trying the herbal route to tackle my UC and recently diagnosed Lyme disease. I'm only 1 week into the protocol, so I can't report how effective it is yet. I'll be back in a month to...
I just tested positive for Lyme and standard treatment is antibiotics. My right side joints are pretty badly affected. I'm worried that antibiotics will disrupt my already fragile microbiome. Has...
Likely antibiotics, which i'm pretty scared of. I've done so much work on my gut microbiome and I'm scared the antibiotics will make my microbiome even worse. :( At the same time, I can barely walk...
I recently experimented with coming off of Humira. I slowly went into a flare over a month, and 1 month after my last dose I was in a full-blown severe flare. But my UC is the kind that never went...
Update: I tested positive for Lyme antibodies. My one-sided knee and shoulder inflammation are classic Lyme symptoms. So now I have Lyme disease on top of my UC :D...
Unfortunately I'm back! I only return to this forum when my body isn't doing so well. I've been in a mild flare for the last few months. I'm on Humira. My right shoulder and my right knee have...
I make homemade kefir with raw goat milk from a local dairy. I'm on Humira. I've never had any issues. Be warned that it can take a couple weeks to adjust to it and it can worsen diarrhea for those...
Humira worked very well for my UC! I started taking it in January of 2021, and it took 3 months to truly start working. But once it started working, I was symptom-free for two years. I recently...
I tried cabbage juice, and many other natural remedies. Didn't do anything for my UC. I'm glad it worked for you, though!...
Update March 27, 2023: Doing so much better! It's been 2 weeks since I injected a double dose of Humira, and now I'm back in my usual medication schedule of one shot every 2 weeks. I am doing WORLD'S...
@Sara thank you for the perspective! My doctor is stodgy and conservative but he does always listen to my opinion when I have one, and when I was first hospitalized he spent half an hour on the phone...
Update: Only 2 BMs yesterday, down from 7-10 for the past month. The Humira is working :)...
@Bacon Girl, thanks for the support :)...
Thanks so much for the support, everyone. It really means a lot. I've been feeling so isolated this week and it's nice to know that there are people out there who know what this disease is really...
My GI has never given me a colonoscopy, even when I was hospitalized, and has never suggested I have one. Which seems odd to me. Maybe because I'm 31? I've only ever had a sigmoidoscopy and abdominal...
Just venting here. I've been flaring badly for the past month. My gastro listened to my symptoms and then asked: What questions do you have for me? And I asked: What can I do about the flare? He went...
I'm so happy for you!!!! I so understand what you're feeling. I'm still in the "it's all just mush" phase. The day I have a solid BM again I will be so happy....
I took a break recently from humira because I suspecting it was causing muscle stiffness and joint aches around my shoulders and shoulder muscles. When I stopped taking the Humira, the aches went...
I'm on Humira's patient program. Income is irrelevant with these programs. Only requirement is that you have insurance. I have no idea how or why it works, but there is a coordination between the...