ld2186

I hope Skyrizi works for you! Entyvio took a long time (over a year) to work for me and my GI and I discussed switching meds and his recommendation was Skyrizi. It does sound promising. Ultimately,...

I’ve been on Entyvio since Oct 2022 and I find the infusions very easy. I’ve never been at my clinic for longer than 45 minutes. The key for me is to drink a lot of water the day before and morning...

Thanks so much! Before Entyvio, I was doing well on Humira—so I keep comparing the meds. I stopped Humira because I had side effects that weren’t manageable for me. Entocort thankfully kicked in...

Hi, Thanks for the responses! I have UC. My GI and I agreed that I would start with Entocort because I had success with it in the past, although that was many years ago. Unfortunately, I'm having...

I’m glad it helped! And honestly, you’re not in any way slow! A social worker helped me come up with that approach when I was working with multiple specialists (like many of us are) and I would leave...

A few years ago, I dealt with chest pain and a terrible cough for over a year. I saw a pulmonologist, consulted with my GI and PCP, and I finally got a chest CT. In the end it was a motility problem...

I started Entyvio last October. In January, I was still feeling unwell and discouraged, and my GI suggested that we increase the frequency to every 6 weeks. My understanding is that it's a pretty...

I’m treated at Brigham and Womens in MA and am really happy with my care. I go to their office in Chestnut Hill, MA, but I believe one or two of their doctors also practice in Foxboro, MA. Not sure...

Hi Everyone, Thanks for all of your great feedback. This thread sort of took off — which I didn’t expect! Unfortunately, my early Feb Entyvio infusion was denied by insurance because my employer...

Thank you so much for your words of support! It's a mess. Someone is calling me this afternoon to fill me in on what is going on. My last Entyvio claim has been processing for 2 weeks and I'm...

Thank you! I hope I have many years of success with Entyvio like you. My fingers are crossed....

Hi All, I posted in January and wanted to give an update here. I started Entyvio in October and then had COVID twice (Nov and Dec). Needless to say, my GI system was a mess this winter! I had another...

Thank you all for your responses and support. To clarify, when I last saw my GI, I was experiencing symptoms but doing a bit better than this, so we made a plan to check in at end of January — my...

Thanks for your perspective! The more I think about it, I think I’m willing to hand over some money for probiotics— I know there’s data on them. My other concern is that my GI typically advises only...

The Crohns and Colitis center at Brigham and Womens hospital. It’s in Chestnut Hill, MA. I see Josh Korzenik but hear good things about all the docs....

Thanks for responding! Yes, during my initial flares (when I was diagnosed years ago) my ankles were super swollen. I have no other extra-intentional symptoms. I’ve never had problems with my eyes or...

Dr. Josh Korzenik at Brigham and Women’s is great. He used to be at MGH but moved over to Brigham (Chestnut Hill, MA) within the past 10 years. Wonderful, forward thinking care....

Don’t give up hope yet! I struggled at first with Humira and weekly injections have been my sweet spot. I’m now in remission. Hoping the insurance comes through quickly for you....

I'm in Boston where there have been a few cases. I take weekly Humira and saw my GI last week. Overall, I'm doing well, so my GI encouraged me to keep on with life as usual. However, the doc did want...

When I took Uceris tablets, my GI did have me taper off of them -- I did one day on and one day off (if I remember correctly, it's one 9mg pill and there's no way to break it so that was the only way...

Thanks for all the ideas! I have ACV at home so will try that starting tonight. I've read about the candida diet, but honestly it feels too restrictive (my diet is already pretty restrictive....)...

Hi Crazydad, I tried Uceris during a mild flare. My memory is that my doc said to at least give it at least a week to work. I've been on Turmeric a while, but again my memory is that my doc said to...

Sara, How frequently are you taking the Humira? I had to go up to weekly injections to get a good result. My GI tells me that 40% of UC patients need weekly injections. I would get the bloodwork...

Crazydad, I was in a rush when I responded on Friday and I wanted to post a few other thoughts about curcumin and supps in case they help you and your son. While I credit Humira for keeping me in...

I'll chime in to say that my GI (who I really like and think is a bit more progressive) has always encouraged diet exploration. I was lucky enough to meet with a dietician at the IBD center that I go...