Saw commercial of this so wondering what class of drug is it? Is anyone here taking it?...
@songlady - good to know. I am trying to get appointment with him. I am on entyvio for almost a year but mucus( chunks and chunks) and blood are constant symptoms. I am not able to get in complete...
@3timechamp - I am in New England so planning to visit few in Yale and Mass general. Hopefully have better answers....
@Twingirls -My first colonoscopy was in 2010 and I had inflammation only in sigmoid colon. very mild so GI gave diagnosis of Crohn's Colitis and Prometheus lab confirmed that. In 2013 I flared really...
I took 6 mp, 75 mg for 10 years and was in full remission on it. You start seeing improvement in few months but it gets better each day so don't get discourage, if you still have some symptoms after...
I think if you have dry hands, you can see on the top separated tiny bit and easily peel off but I would recommend her to use vitamin e oil around area before she inserts it. It will help slide it in....
I have IBD since 2010 and 6mp kept me in full remission till 2021. Since 2021, I have mild symptoms mostly blood even on entyvio. If I have choice, I would get surgery as I am so occupied with IBD...
Thank you everyone. Didn't mean to scare anyone. I was trying to find out my options if I need to change. @Brucen36 - Entyvio works better for TNF naïve patients so not sure how recycling would work....
Thank you everyone. I have sent message to GI. I have so far 3 loading dose and 1 maintenance load. I am scheduled for next does on 7th Sept. But started seeing blood in last 3 days. My BM are still...
I am on entyvio and now see blood at 7th week. Seems like it's not doing magic. I choose entyvio because of safety the profile. If entyvio doesn't work, I might have to switch and trying to see how...
Thank you both. Hoping that entyvio gets me in full remission. I do see improvement as no blood that was my symptom along with narrow BM. And those symptoms are better. So keeping figures crossed ....
Hi I started entivio in April and las week had 8 weeks shot after initial 3 loading dose. Symptoms have improved definitely but see too much mucus(no blood at all). I never had this much mucus even...
Thanks FlowersGal. I was looking into that option because with my current GI, I am basically running the show. He goes by book and doesn't explain well so I definitely need new GI I can trust. I can...
I have been on 6mp for almost 10 years and it did keep me in remission and my regular blood work always came fine. But since 2021, I started seeing blood. It was little and just one stool so I kept...
Thanks Keith. I had an appointment at Yale IBD center that I scheduled 6 months back. Met Dr. Gaidos and so impressed. She explained each medicine option in details. I got appointment for second...
In search of good GI who understand IBD better in CT or Western Mass. If you have a good GI in this area and can recommend, I will appreciate. My GI retired before COVID and still don't trust the GI...
I am in same boat but it only matters when it comes to surgery until than treatment is same. Though I would say ask GI every time you have colonoscopy to look into terminal ileum and document it....
My infection is still not gone. Had lymph node swollen, so another 14 days of levofloxacine 750 mg for 14 days. "Antibiotic resistance" is real thing. I have 7 days in and seems helping so praying...
Thank you all. I know my gut is all messed up . I do take rectal medication and was all set to start on Entyvio but then had dry cough and Covid for weeks and now this. I am still having low grade...
I don't know how I got it exactly and have some theories but not sure. I went right away to urgent care and started on Ciprofloxacin 500 mg/2 day for 10 days and had EMT appointment 2 days after and...
I am having nasty perichondritis infection and it is so painful and Tylenol didn't help. Plus I was taking Tylenol for so long and tired of pain. So decided to take Advil once in a while. I am aware,...
I though you all can find interesting this site HMP education videos. I am just posting link for one but once you watch one, other videos will show up like any other social media. This is about...
Thank you both....
@Andreita- mind if I ask why are you on immuran even after colectomy?...
My GI retired and don't like the new one. Communication is big issue. Can you suggest doctor in Connecticut or Massachusetts ?...
Thank you all. I will update you all once I meet GI(No appointment till September)....
I haven't met GI yet but like to be ready to discuss when I see him. So how do they start biologics specially entyvio? Will he keep me on 6mp and then start on biologic? I am thinking what if...
Thank you all for your advice. I am on 6mp 75mg/day. My liver enzymes are on border and sometimes go high too. So increasing dose may not be option. I have been on 6mp for almost 9 years and fully in...
I had a colonoscopy and found moderate active colitis in left colon. Don't have detail pathology yet. But doctor has asked to schedule appointment to discuss medication option. I do see blood in...
Going for my colonoscopy in June and so far I have use "suprep" and like it. But now insurance doesn't cover it. And two options are PEG 3350 or Cleanpiq. Which one is easier/better?...
I used to have little high ALT and doctor wasn't concerned. He did do ultrasound just to be sure. But I am also on 6mp and have fatty liver. He said if it is too high then it should be of concerned....
I was diagnosed in 2010 with mild crohn's colitis in sigmoid colon. Bleeding was the only symptoms. Started Asacol then and added quick 3 weeks steroid and went in remission for 2 years. And thought...
Thank you for reply....
So how was it Sutab prep? Just wondering as I have got the same. Please let us know....
Don't rush into reducing Mesalamine. They are the safest medication. If they stop working, you may have to go on next step. I have been on 75 mg 6mp and 4 mesalamine DR for long time. I did go down...
Thank you. I started post while thinking about long term side effects and then had few more questions. So assume that it is standard practice not to add 6 mp with entyvio. Thanks again....
Just wondering 1 Is there lymphoma risk associated with Entyvio just like Remicade or Humira? I don't see it in the drug information. 2. Do you have to take 6mp or immuran with Entyvio like other...
I read lot of people had mild fever, soreness from the vaccine. I am wondering if anyone flared after covid vaccine. My biggest fear is UC flare from vaccine. I am on 6mp and planning to sign up soon....
@Flowersgal- Do you have to take any other medication like 6mp so you don't develop antibodies?...
I am on 6mp currently but reading that people go for entyvio next and avoid remicade/Humira as it works better if you never used anti-TNF. I know Remicade/Humira has some side effects like Lupus or...
I am on 6mp since 2013 75mg/day and mesalamine DR 1.2 mg 4 tablets. It started with 50mg and then increased to 75mg. You have to monitor your liver function and blood count. If they are good your...
I have been on 6mp since Sept 2013. I do get cold more often than I used to but don't think you have to do anything different. I would suggest to take flu and pneumonia vaccines and if you feel that...
Sometimes it is hard to tell from scope only if you have crohn's in colon. He can tell from the spread of inflammation but only biopsy can confirm that. Symptoms depends on where your inflammation...
As long as your inflammation is superficial and your terminal ileum is clear, it does not matter if it is crohn's colitis or Ulcerative colitis. There is type of Crohn's that is similar to UC....
I am on 6mp from Septemebr 2013. I do get lots of muscle pain and joint pain and have mentioned to my doctor but he does not thing it's 6 mp. So I keep taking it as i am doing ok with it. My GI is...
I have bottle of 60 capsule and expires in Sept. I don't take regularly but should I throw it away? My GI always said not to take it but I did. What should I look for in label that could be worse....
NSSG that sounds really scary. I just read this article about out come of surgery. It is not related to this topic but related to biologic so thought it should be OK to post here....
I think it might be 711 from zydus. I used to think IIL untill I read John's reply....
I had to switch for insurance reason too. And CVS filled zydus Mesalamine DR. I am taking it for more than 3-4 months and it is working fine. I fought so hard with insurance to keep me on Lialda but...
If it was polyp, they must have removed it during colonoscopy. right? Hope you are doing well songlady....