After speaking with my GI, he's thinking of Rinvoq and Entocort as next steps. I did more fecal tests including c-diff so I'm waiting for those results, and how I do over the next few weeks. I...
My mom did try something similar to Boswella Serrata, it took years for us to convince her to try. She became so constipated, and in pain, that she stopped. She preferred the diarrhea! She wouldn't...
My mom has both types of microscopic colitis. She is 84 and developed it 10 years ago. Unfortunately it has never gotten better. Most days she sprints to the toilet within 15 minutes after eating....
Thank you FlowersGal and Midge 22, luckily my GI is calling me tomorrow. I will ask for a c-dif test. After my infusion, I continued to have issues. It seems to get worse every day now...sometimes I...
Thanks GH for responding. I did have the infusion and they said hope it helps. Today..I passed yellowish mucus semiformed again, a couple times. We're you flaring when you started Entyvio? And...
I have been flaring worse than ever for the past few weeks. Today's no better...down to liquid D now. I have an infusion in a couple hrs. Does anyone know if they will not do it? I have started...
Hi again...the dreams aren't as bad now. I don't take anything before infusions. Basically I just feel tired for a couple days.There is a Norovirus going around..or it's just me picking up bugs. Now...
Does anybody else have vivid dreams or nightmares for up to two weeks post I fusion? Well I sure do. My husband has to wake me up now. In my dream last week I was trying to get away from a bad person...
Q...my nails have been brittle for years. They have ridges and split all the time now. It could be lack of calcium. The numbness in my hands and fingers started about 2 months ago. At that time my...
Hi, One week before the first 8 week dose of Entyvio, I started flaring with semi to non semi bms and urgency. I thought it could be a newly introduced food. I had that Entyvio infusion dose 5 days...
Midge, that's great you are still traveling. I'm sure you could find pads almost anywhere. It's a bummer they take up mega space in your suitcases, and that now the price of checked luggage has sky...
Hello, I've had 3 loading doses of Entyvio and the 4th scheduled for a week from now. The last 5 weeks I have settled down to 1-2 semi-formed bms. no blood or mucus. I have introduced some new foods...
I think I used a small pair of sizzors to start. It's been years since I tried them. I hope they work for your friend. Beware...if they leak out after dissolving, it may not come out of your bed...
Rusty, I'm getting those tight feelings as I read this. I also wondered if it was acid reflux. However, I have been stressed way more than I ever was in the past 6 months. And this chest pressure can...
Clo, Lately I have made soup and frozen it in small containers. My hubby does not like soup anyway. I cook up lots of chicken breasts and freeze some, then cut them up for lunches for both of us. I...
Thanks. I am in the "INBETWEEN" stage, not always knowing some food types, or how much is too much, before it's too late. Until a couple years ago, I flared only a few times in 20 years. A "white"...
Thank you for all your encouragement and advice. Yesterday was an extremely bad day for me. More blood and mucus and passing only tiny amounts of bm. Bottom exit was Inflamed to the max. I spent a...
Hello, Yesterday's infusion went well. I get high BP evert time I step foot in the clinic. But before and after, back at home, my BP is normal. ( white coat syndrome). Lol Q- 2 weeks ago i had 1...
Clo, Lol, no, 2 chocolate bars ( 3 cups ) in each bar. Funny about the foods mentioned..I was eatingbananas, bread, bagels, peanut butter, and started raw vegetables in salads. Too soon I guess. I...
Hello all. I have my 3rd Entyvio infusion tomorrow. I was doing so much better until a few days ago. I may have ( did ) crave sugar, chocolate etc in the past week. I indulged in 2 peanut butter cups...
I've done Pico Salax twice. It was a bit easier, but my clean-out was only fair. I usually end up gagging by the end of the prep no matter what it is. Would love to try pills...at least I could drink...
Hi, I was diagnosed over 20 years ago in my early 30s with anxiety/depression. I actually was depressed as a teen and it manifested after traumatic events, to make me extremely anxious as well. I did...
Thanks Midge, I have never made it more than 3 days without coffee. Withdrawal is tough. I guess having colitis for more than 25 years and never having diarrhea, just constipation until the last few...
Hello again. The first 5 days post 1st infusion went great. So good I ate a bit more "bad" stuff. That was wrong...day 6 I had 9 runny bouts of Diarrhea. Then day 7 I only had 1 shart. Day 8...back...
Thanks Midge, I'm tracking every bm, Crumb of food I ingest, and hopefully Eñtyvio is my ticket to remission. I'm on 4.8 mg Mezavant currently...I wonder how long I will remain on this dose, and or...
UPDATE- yesterday i had my 1st infusion. Total time there was just over 1 hrs. The first problem was my first vien blew out so she had to use the inside elbow. I was freezing the entire time, so next...
I'm very happy for you! Just thinking about a prep gives me anxiety...and my GI wants me to have one early next year. I can't drink Gatorade lemon anymore. I've never done the Miralax prep..that I...
Hi Ellen, the only problem with daytime enemas, I think, would be your body would not have the longer hrs as you would during the night to assure maximum benefits. Otherwise, if you are retired and...
Appreciate all the helpfull tips....Thank you! Sassy...
Well I will be sure to bring lip balm and hydrate. And I look into Claritin. Thanks! One week to go... I hope it works too. Sassy...
I am currently very constipated as my iron level was down to 7 so I'm taking iron supplements that i think causes constipation. This disease really is a pain in the A%%. Lol Sassy is Sassy...
Good morning...I am in a habbit of waking up at 4 or 5 am and can't seem to change it. Maybe I'm thinking too much about my first Infusion of Entyvio on Dec 8th. Besides hydrating a lot the day...
I feel for you...this morning I let the farting go on too long and ended up having an uncontrollable Shart before reaching the toilet. This would suck if I were out somewhere. I just want to eat...
That's interesting to know...As I am about to start Entyvio Infusions. My first time on anything other than 5ASA. i'm supposed to remain on Mezavant as well...which isn't doing enough. Just got back...
I'm to start Entyvio next month...is continually taking tests to measure trough levels part of the experience? As well as other monitoring tests? Cause we just moved and I'm trying to find a lab I...
Oh for poops sakes! 💩 lol...
Hey Midge..that is interesting about Iron infusions. Wonder if the Innomar clinic can do that too? I'll wait to see the final Calprotectin results and hear from my GI. I will see my Family Dr next...
My highest was over 5000...and I wasn't even flaring that bad. Last check this year...over 900...results pending on the test this week. And I am flaring the worst I've ever been. So if my score goes...
Hey GrittyHope, I too have very bad neck, shoulder, and now numbness in my left hand progressively getting worse from 2 weeks ago. I do have some degenerative disc disease in my neck (C-5 C-6). I...
FlowersGal, that's great to hear you've been in remission for 6 years. My Dr wants me on prednisone too. That scares me too. I am anemic again, and need advice on what I can do about it. Especially...
Serenity, I'm glad you are taking matters into your own hands. I'll let you know how the infusions go. I've had colitis for over 30 yrs without much progression until a couple years ago. Luckily I...
Hello Serenity, your profile says you live pretty close by to me. You are also on Mezavant ( (I just started ) and after preliminary lab work, I am to start Entyvio Infusions. I am flaring and...
OMG 😲 I'm not alone in counting....anything that comes out is a number! Especially because I think I'm done, heading out of the bathroom and boom! Here I go again!...
Thanks Susie, yes I'm scared of biological and pred. Of which I've managed to avoid. And the last couple days have been a bit better. I do need to be more patient. Sassy...
Hello....I'm back, I'm flaring...the worst ever, and may want to try Inflectra infusions. I went on vacation...couldn't stay on a proper UC diet, and increasingly became sicker. I started...
I'm in BC Canada, smoke from two wild fires close to me, have lingered for days. Vancouver Island (and most of the province,) is rated with poor air quality. Wildfires have increased over the past...
YEAH...i go usually before 10:00 am. Never had to go into the night. I had polyps 20 years ago...3. Then maybe a couple more after. But that's only twice in the past 20 years. But...ive been mostly...
My last scope showed only mild inflammation in the rectum, not enough to warrant a med change. But that was over a year ago. I was in a flare starting in Nov. 22 after getting food poisoning that...
Hi again...my GI phone consult is June 9th. My GI Doc suggest I start Inflectra or an injection. I've posted before about this, and still don't think I really need it. The symptoms of my last flare...
I most certainly do! 🤣...