Deb!!!!! There you are!!!!! Despite the stressful end to your year I am glad to hear you are doing okay and especially that you are tapering off the Pred! (Ugh, again, I cannot believe how long...
Hi Happy Days, I just wanted to chime in that I've been on the 6-MP for 3 mos. as of today and am feeling great!! No flaring, no UC symptoms at all since starting it - thank goodness!! Although I...
Hi again Deb ~ It's always good to hear from you ~ I hope you have been able to continue to taper off of the Pred!! In all honesty, I have never heard of anyone staying on it for that...
Greetings Deb & all, Boy time flies! Forgive me for this belated reply. I got caught up w/my son's condition - don't know if I mentioned he was having stomach probs too (he's 18 and a college...
RMA!!! Howdy!! It is great to hear from you!! Thanks for the info! Please tell me how you have been feeling? Give us a little update please! :0) Stacey...
Hi everyone, A friend of mine said she found a website that sells different amounts of saffron threads at fairly reasonable prices. It's: paellapans.com. Just thought I'd let y'all know! Stacey dx...
Hey Deb - R U out there? Hope all is well......................I've had a new "symptom" come into play recently and I wondered if you (or anyone else) had this happen? UC-wise, I still feel great...
Hee hee hee hee hee hee!!! OH MY!!!!!!!! These were baaaaaaaaaaaaaaaaaddddd!!! HAHAHAHAHAHAHAHAHAHAHAHAHA It's late - I better go to bed! Thanks for the laffs Sherry!!! :0) Stacey dx w/UC...
Did Ashna post about her colonoscopy? (Sorry, I am struggling to catch up a little!) I hope you did fine w/the procedure Ashna and that all is well! Thank you for sharing the saffron info with us!...
Hi red plum, How have things been going the last couple of weeks with your husband? I hope some of the messages on this forum have helped you -I think the people here are so genuinely caring and...
Hi there red plum, I am so glad that you joined in! Welcome to the group! I can't speak for Deb, but you know how they say "ignorance is bliss"? Well that sort of explains my "courage" as far as...
Hi again Deb, Okay - so we're both "hanging in there"! Whew! I just want to say be careful how you taper that Prednisone - my doc always has me taper by only 5 mg. per week and I know you just...
Hi, Wow, this subject line caught my eye - I started my 18 yr. old son on a gluten-free diet 10 days ago "just to see" if he feels better (various ongoing symptoms) and so far so good. But his appt....
Hi again Deb, I am relieved and happy to hear that you are still doing okay despite still being on the Pred (ugh!) Do you feel like the 6-MP is truly helping you? I sure hope so! I am still feeling...
Hi Deb (and anyone else who wants to share their 6-MP experience!) How was your GI appt. on Friday? I had an appt. with my GI guy on Fri. also. I seem to be doing well on the 50 mg. of 6-MP so far...
Greetings all! Is it possible that the 6-MP has helped me in less than 3 weeks?? Seriously, my 3+ month long flare finally ended last week after I was only on the 6-MP for 1.5 weeks! I keep telling...
Thanks Deb and everyone, I woke up at 3:30 a.m. with an excruciating headache! :0( Someone said the pred could be causing them too - but you're right - I think I need to drink more water! Do you...
Hi UC Wife, You poor thing!!! If it's not one thing it's another! I know you said the noise is not due to snoring, but do you think a change of sleeping position (move to his side or elevate head...
Deb!! I have been getting headaches for the last 3 days too but it NEVER occurred to me that it was from the 6-MP! Is that one of the side effects? I had no idea! My blood pressure is really high...
John, I am getting the same results (relief after a 3+ mos. long flare) but with a different drug: 6-MP. I've only been taking it for 2 weeks so I know it cannot possibly be giving me this relief...
I gave up red meat entirely for 3 mos. (April - July) at my dr.'s suggestion in an attempt to lower my cholesterol. It worked! My good numbers went up and my bad numbers went down! I've reintroduced...
Deb - I've been really tired the last few days - I'm "guessing" it's the 6-MP because usually when I am on this dosage of Prednisone I am really wired and have insomnia etc. Now I want to sleep all...
Hi, I'm so sorry you are feeling bad! I started the 6-MP on Mon. so I don't think any side effects have kicked in yet - although now that you mention it, I got cold cold cold in the middle of the...
Perach - I know it's an immunosuppressant so you have to really watch the germs and not be around sick people. I read on another thread someone had bad nausea and high fevers and had to quit taking...
Hugs to you...... It is very difficult being the caretaker, I know. I think I previously mentioned that my youngest son was dx w/leukemia at age 8 (he's in high school now and doing fine) but went...
Jwogie - I buy mine at a store here called Wild Oats. They have a small fridge with lots of different probiotics in it. I pay $8.99 for 30 capsules and also only take one a day. Pb4 - I'm going to...
:0) TGIF EVERYONE!!! flchurchlady - Thank Goodness I haven't speed mopped/vacuumed at 4 a.m.! But I was using my "Swiffer" and must have pressed down so hard it broke in half! My son said, "Gee mom,...
Hi Another UCWife, I just read on another thread that you said your husband has not been well this last week and I am so sorry. Have his symptoms returned full force or ? I feel so badly as I know...
I take the Primadophilus Reuteri also and take it late at night (11-11:30 p.m.) only because it's the "only" time I could squeeze in another darn pill!!!! I feel like I take pills all the...
Sherry - Thanks again for all your helpful info! Did I mention I cannot imagine enduring a year long flare like you did? Wow! I am so so so glad to hear you are feeling better! Cagio - Continued good...
I want to respond to everyone but hang on.............I'M TOO BUSY LAUGHING AT KELLY!!!!!!!! AHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHA Stacey...
Superdeejayanna, Sure wish I was nearby! We have family in Palo Alto and San Jose. We could hang out at the mall and talk to people! My husband makes apologies for me to others saying, "You have to...
Wow Kevin!! That is such great news!! So since the 6-MP kicked in are you feeling, dare I say, "normal"?? I am thrilled to hear you are feeling good! I thought 6-MP was "mercaptopurine" - is that the...
Merry! Brain Fog!! I "fog-ot" to write that one down! Yes, I have that one too, sigh. I'm so glad you are in remission! So did you splurge on a new set of dishes? :0) Thanks, Stacey...
So I have this love/hate relationship with Prednisone. I mostly hate it, but I can't deny that it DOES make me feel better. I've been on it now for 8 weeks and was tapering, but when I saw my GI on...
Sherry & Deb, Thanks again! Sherry - I like how you say that "switch was thrown" re: realizing the 6-MP was working for you! Did you say you felt that switch around 2 mos. after starting it? I've...
Hi Sherry, Tamtam10, and Deb, Sherry - I have heard that if the 6-MP works for a person that they can eventually stop taking the asacol/colazol also. I hope your experiment works for you and you can...
Hi everyone, I saw my GI yesterday and he added 6-MP (50 mg. daily) to my list of meds. I'd like to hear your stories (good, bad, ugly, but hopefully mostly GOOD) and experiences with this drug. How...