Randy, So very very glad you are doing better and get to go home. Hopefully at home you will get more sleep and rest. Please keep us updated. Saying lots of prayers for you. (Hope that does not...
Rusty, How are you doing? Hopefully everything is going well. Broccoli is one of those foods that's a handle with caution. Same with cauliflower. I would Give it a few months before you try it...
Sorry you have been feeling under the weather. Hopefully the moonstone and lemon juice will dissolve it. Just an idea, my urologist had me dissolve the 4 capsules in a bottle of water ( I also added...
I haven't been back to NY for a long time. Today I had to go to Dallas for my infusion. I thought if this posting. I think things can be rough in any city. Today a person on the street corner was...
I have been on Remicade for approximately 10.years. when I am flaring we have increased the dosage to 10 every 4 weeks. When I improve we lengthen the time frame by 1 or 2 weeks at a time for a...
There's nothing like going out to eat at an older but sorta modern and very clean restaurant in another country and having to go to the bathroom.... Everything looked nice and clean... And then to go...
I forgot my PAs daughter who has Crohns. She is still on Remicade. She started it very very young and she was in the trial.... so however long ago that was..... Now She's going to medical school and...
Oh gosh ... I haven't had the privilege of finding foot prints on a toilet set.... But I have found other really nasty surprises and really wondered how people did that. 🤢🤢 I remember running...
OM, So glad the surgery went well! Hang in there! Clo...
That's scary and sad. Your drug sniffing K-9 reference made me smile. I remember long ago... One of my kids forgot something and asked me to bring it to their class. I walked into the high school and...
NY-Sooner, I'm on Remicade. I have an aggressive severe form of Crohn's. 2 GIs gave me 3 to 6 months to live if we could not get it under control very quickly. They were considering stem cell...
OM, Please let us know how it goes when you have time. I know how scary this is. I have a daughter with heart issues...... So... Crossing my fingers and saying lots of prayers.. 🤞🤞🤞🤞 🙏🙏🙏 🙏 Clo...
When I went on a trip almost 50 years ago.... I saved pieces of toilet paper from the different countries we visited. LOL. I know...... Head shaking..... But it was so strange... I thought everything...
Plus we have the civil liberties that family members can not invalidate by insisting on family members over the age of 18 be in counseling, take medication, or be in mental health housing. Forget...
Things have changed so much. Years ago riding subways or buses were safe.... Now I'm scared to even touch them... And going down into the subway... Nope. That's not happening....not now. Sadder...
So glad it turned out ok. I really hate when I do that.... Worry all the time before speaking to the doctor and then it's nothing. Or those times when the results are really abnormal, we retest and...
Good luck! You are in my thoughts and prayers.. Clo...
So glad you are feeling better! I hope your vacation is everything you want it to be! Clo...
Randy, So glad you are feeling the same. Hopefully the pens will be easier. I'm scared of that day when Remicade doesn't work for me. There was a lady there that was on it 20.years....is that even...
Therearemiracles, Wow. What a change from March until now. I'm sorry it hasn't worked out for you. I don't know how you will be able to tell if you were on the medication or the placebo without the...
Blushing here.... Yes you can have sex.... In regards to the stones and stent removal. But when you have a UTI immediately drink water with 2 grams of D-Mannose in it right afterwards.. They...
Well... I was away... I was taking Ellura cranberry capsules .. they were 118.00 way back then. I switched over to the Trunature and have been taking them for about a year. I have ordered the Ellura...
I thought about mentioning that.... But I forgot. My urogynecologist prescribed 2 grams of D-mannose twice daily, 1 cranberry capsule twice daily, (12 hours apart on the previous 2), estrogen cream...
Hey... Checking in... How are you doing? I'm glad the antibiotics helped. Clo...
Old Hat, Make sure you read your brochure/policy carefully. Get copies of the formulary. My insurance has CVS/Caremark on the prescription side. I get Remicade. I have Medicare. Since it's an...
Minnietoty, There are ladies in my support group that had setons and they have been ok... Or at least they say they are ok. Another lady had one and she was having difficulty but after every thing...
Michelejc, On the pain that returned--Was it in the back or kidney area or did it feel like your urethra was uncomfortable? (Sorta like a burning or a smaller stent or string was irritating it? ) For...
Yes, I did. I took the little brown pills for UTI discomfort for a few days or so after removal of stent. Clo...
Good news! It'll continue to improve. So glad things are getting better! Clo...
And just for the record.... The nausea, pain and tiredness gradually got better after stent removal. The back.pain improved right after the initial procedure but I was sorta sore or achy...
Minnietoty, I'm sorry to hear about the fecal impaction.... So very uncomfortable. I have struggled with that several times. it causes me Headaches, nausea, dizziness, sudden hot or clammy periods,...
TAM, Just a thought... Unsure if it will help you... But some people and meds do better if you have a higher fat content in the meal you choose to take them with. I've discovered that on methotrexate...
Michelejc Yes a stent does feel sorta like a UTI. I had my stent for 7 to 8 days after my procedure/surgery. Stent removal.... Take notice of timeframe when your pain pills kick in. Save at least 1...
Minnietoty, How are you? Clo...
So glad you woke up after surgery and are feeling somewhat better. The stent is a PITA....but it really does get better every day. Those are some of the same meds they gave me. Ditto on the...
Are you feeling the same in regards to Crohn's symptoms? I don't think I'd be able to do that .... I just don't. Nope. I can not do that. You are one tough Crohn's warrior....... Clo...
Good Luck! I'll be sending lots of positive energy and prayers your way. I felt so much better after surgery/stent removal. My back didn't hurt as much and it just felt better. My sister had the...
Oh absolutely on the probiotics. You'll need them for IV antibiotics too. The 3 antibiotics regime was really hard on me. I'm sure that you are probably struggling with it too. I was taking zofran a...
3X, Good grief.... You should be a partial owner. That's a lot. Michelejc, The procedure isn't bad. For me the stent was irritating and very uncomfortable.... But most urologist give you pain pills...
Minnietoty, I'm sorry you are going thru this. I have experienced the same things regarding medication--sudden allergic reactions to meds I've never had a problem with--so your doctor taking his time...
3X, Do you know how long it takes you to develop kidney stones? They've found 2 at 3 mm., and one smaller one just starting to form. I'm surprised they formed that quickly.... The only reason I know...
Just started this so I didn't hijack another thread. 3X.... I have a few inches of my colon left so they are still calling it a colostomy... But it's a very small amount.... so unsure if I'll be the...
UB, Yes there is an assistance program in the US. Their insurance covered it too... But it was still costly for them. I am unsure how the assistance program worked,--but they said it was easy to...
UB, I just met with my GI about 2 weeks ago. I've gained... And gained... And gained on Remicade. He left the room and his PA said that she's had many many complaints regarding weight gain and...
I walk around barefoot frequently. I don't know that it helps with my inflammatory markers. I'll have to start paying attention. Interesting though. Clo...
Randy, I just went thru something with my secondary.... They suddenly need pre-approval for high cost infusion drugs. It was a battle for sure. I must say..... Insurance is so challenging. I hope...
They really are losing money, and I guess I can understand wanting to do a pre approval..... But.. If they are going to do a pre-approval then insurance companies should be obligated to notify...
No weight gain yet. The ones with no problems are still on it....so they won't gain the weight back until they get off....if they don't change the way they regard food. But they went thru the...
Thanks again all. I was so stressed I didn't know if I was coming or going. Medicare is pretty straight forward. It's the secondary BCBS that's had me jumping thru hoops. I brought up that...
UB, I have the same issue. My PCP prescribed Wegovy. My colorectal surgeon had a fit--4 surgeries since 2016 for obstructions.... So I did not do it. There are some ladies in my support groups that...