I just got my loading dose of Stelara yesterday. I have been on pred for a year and a half, and every time I taper the flaring floor gets higher and higher. I'm up to 30mg triggering a flare. I'm on...
I have been on high dose prednisone for a while and I am facing possible surgery. All the bad outcomes from surgery are so much more likely if you've been on pred within 30 days of the surgery...
Anyone know where I can get a cortifoam coupon? My insurance changed this year (Thanks Obamacare! Arrrrrrggggg!!!!) and now they won't cover it. I'm in the middle of a flare and my doctor says it's...
Hello. I have been on Remicade for 3 years after a very very severe flare and hospitalization for 40 days. Once I crawled out of my severe flare, about 8 months later, I can't seem to shake this...
By the way, I wrote my story here. If you are on your last hope, perhaps the antibiotic I was given, which saved my colon, can help you. The risk is c-diff. So you have to be careful or you could get...
Hi y'all. I'm feeling pretty down about my condition lately, even though I have everything to be happy about. It's just hard. I'm in recovery after a really bad downward spiral. Hospitalization for...
You say, "diets aren't my thing" and I think that's a mistake. Food has nothing to do with problems in the organ that processes, wait for it...food? Sorry, but it does, though it may not be the only...
I am glad to see there are skeptics. It's as it should be. Your responses are logical, but lack the full context. I could write a book on what went on with me in that hospital. I was trying to spare...
I was tested for every pathogen they test for. Which frankly, is not many. There were some obscure pathogens they didn't want to bother testing me for, as it was extremely unlikely I had those since...
I agree with the diet suggestions. My UC got waayyyyy better when I stopped eating wheat. A great website for adopting this diet is marksdailyapple.com....
I didn't request certain antibiotics. I asked the first doctors to give me an antibiotic that would kill anything I might have possibly gotten that could still be causing me problems. I thought there...
The thing that bothers me most about this story is that she told you to call social services if you couldn't care for your daughter. That sounds like a veiled threat to me. Unacceptable attempt to...
Hi Folks, It's been a while since I've been on here. I had gone almost all the way into remission with a Paleo diet and so I didn't have a lot of need to surf around this forum. What I didn't know is...
...through the normal gross-out shudder, a part of your brain is actually calmly intrigued by fecal transplantation and swallowing a bunch of parasitic worms....
fruitgirl: Lialda is horrible for me. On two/day I had weight gain, headaches, depression, fatigue, bloating, memory loss, inability to concentrate. On 1/day it's significantly better but I don't...
Has anyone ever considered Helminthic therapy i.e. becoming infected with whipworms, to achieve remission? It's pretty radical, but it seems safe. And if what they say is true it's getting pretty...
Hi all. I've been in a flare for over a year now. Long story of trying this and that combination of drugs. Anyway, still going through that process and I've successfully avoided steroids. Well, now...
I suspected Lialda had contributed to weight gain for me. Glad you brought it up....
I had horrible horrible joint pain. Then I quit eating dairy and it went away. It was explained to me that people with IBD let into their blood stream larger particles of food than normal. If you...
Hi y'all. I have been taking 6mp for a week and I have a rash over my entire face, which is excrutiating around my eyes. Ugh!! Has anyone had this problem with 6mp?...
I was on two Lialda most of last year and while it put me in remission the side effects were miserable. I became so tired, depressed, fuzzy headed, weak, headachy, tense, etc. I went down to 1 per...
It's not necessarily stress people. Every time I'm on Lialda my short term memory goes to hell. I go off it I get it back, I go on it and there it goes. Susiebuddy, I notice you are on Lialda. Maybe...
My great grandmother had it, and my grandmother. My grandmother's children didn't get it (my dad) and my brother doesn't have it....
I've been on Azathiaprine for 7 wks. I've had a bit of nausea, but no loss of appetite. I too am more thirsty though....
Subdued, how do we calm our fire-y Ayurveda personalities?...
Han Solo, because I'm a nerd, because I was feeling very alone with my UC when I joined, and because I was determined to be tough about it and not lose my sense of humor. I can't believe it was...
I've been flaring for a year and doing all this trial and error stuff with food/drugs which has pretty much played havock with my life. I need a friend(s) who can relate. Some of my existing friends...
Hi y'all. I just started 150mg Azathionprine on Monday. I'm really nervous about it. I understand I have an increased risk of infection if I get sick and an increased risk of limphatic cancer and...