I'm just getting back on this forum after a few years of being mostly in remission. I was really stressed over a breakup recently and now i'm in a flare for the past few days. I'm also working with...
Thanks LauryLu! I'll look into the supplement. I have been looking for a good herb blend to promote healing. Hopefully, my tract is superficial like yours, i'm jealous :) I also make the SCD yoghurt...
Thanks FallColors!!! I think i'm going to look into the plug route given I had it healed up pretty good from a few regimens of Flagyl. I'm thinking of asking my GI for another round as it has been...
Hey FallColors thanks so much for the insightful feedback. I'd rather try the non-invasive procedures first like you recommend, then go for the heavy guns (Remicade, surgery, etc). The crazy thing is...
Thanks everyone! Definitely a terp fan here ! I'm stubborn because I put a bit on it over the past few nights and it has shrunk up really good and does not leak during the day but I understand the...
I'm considering this as a possible treatment. Anyone have experience (good or bad) with the Anal Fistula Plug?...
I have a small ano-rectal fistula that is more annoying than anything else. My colo-rectal surgeon that I consulted with will not operate because it's too close to the rectum and he doesn't want to...
Thanks Cfromutah!! That worked for this case, but it's still frustrating that I can't get a decent set of results when searching for a given topic....
Hello, does anyone know how to successfully locate the previous spinach posts using the search feature? I run the search and it only retrieves 8 records going back to 12/31/08 when I search with...
Hello - i'm mostly on the UC board because I was initially diagnosed with UC but because I have an anal fistula most docs think I have Crohns. The jury is still out. I recently went to an ano-rectal...
I'm not a medical professional but your explanation doesn't sound weird at all! If your system was mal-functioning or faulty from the start then it seems logical that it could still be...
I recently had a similiar experience but instead I was the annoyed /community/emoticons/shocked.gif neighbor that brought in a third party to resolve an issue. I was and after apologizing still am I...
One thing i did when i was coming off of a long flare and weaning off of prednisone was to wean really slowly to stretch out its effect for a few more months. i did something like once i got to 10 i...
Maybe see if they have a generic brand...also, I'm on generic Colazal and I think Colazal is the same type of med as Asacol...so Colozal might be another option if the Asacol is too expensive...of...
I dont even really talk about it anymore to the people in my life because most just don't have a clue and they think it's just something that you did to yourself...like my friend the other day made...
I had horrible horrible horrible joint pain during the prednisone taper process in my shoulder, toes, hips, etc etc. Luckily it all went away albeit slowly after I got better and got off the...
Bob, Glad to hear you are making it through this. I don't reply much and pardon my ignorance of your specific situation. With all that you have wrong would it be possible to have the colon removed?...
I have been using Primal Defense for over a year now. The stuff has been a god-send. I would highly recommend you give this a try for a few weeks and see if it makes a difference. I notice that when...
since ive been in remission i drink one or two times a week, it does have some effect but not that bad...i usually just take a few extra probiotics the next day and im fine. when i was flaring...
It seems way too soon to be talking about Remicade if she was just diagnosed. Most people can go through a few month course of steroids and stay on a maintenance drug like Asacol or Colazal and...
I got headaches when coming out of a flare last year...I think it was due to the severe anemia I went through. Perhaps if/when you get your symptoms under control and things settle down for you it...
I've gotten down to 4 colazal/day. I think the 9 and even 6 were given me loose stools. I seem to be doing great at the moment on 4/day....
i give the seat a good wipe with some toilet paper then either double line the seat with tp or prefer to use the paper towels for hands as they are thicker and always give a quick courtesy flush out...
It sounds like it may be an abscess. Getting your colon removed should bring you relief in time. Sorry I can't help more. Hope you get well soon!...
If you don't already take them I would highly recommend you start taking a probiotic. They are a crucial supplement for UC. I'm not a medical doctor but it seems Predisone would be a bad thing to be...
I mentioned this in my recent post about my colonoscopy and Eva Lou made some good comments. I'd also be interested to get more information from the experienced folks on the boards regarding this...
Thanks Eva Lou! You've provided a lot of good insight. Given that I am not having any of the typical UC symptoms, i'm leaning on sitting tight with just the colazal as i've been doing for the past...
Thanks Princesscolon! I will definitely go on the Remicade before surgery, but just from the pictures taken it has hit home that my colon is very diseased. I'll have to research all of this stuff and...
Hi momhatesuc - I just started seeing Dr. Michael Garone a month or so ago...so far so good. He seems to really care and seems to listen better than some GIs. He is much better than the first two...
I had a colonoscopy today and this really brought it home to me that I have severe UC. I got sick a little over two years ago and at that time the colonoscopy wasn't completed or started much for...
Not that it will probably stop his flare but he should be on a good probiotic if he isn't already. They really are a big help in getting the gut flora in better balance and promoting overall better...
Well, since I developed a small fistula and my first colonoscopy was not completed when I went through my first flare a little over two years ago, I had been wondering if I had Crohns. Well I had the...
Alexandria, Virginia by way of Southern Maryland ......
i think it is the colazal that is helping to keep me in remission. it took me well over a year to get into remission. i dont plan on going off of it anytime soon as the last time i did i flared...
4 colazal/day and probiotic, remission since last spring, occassional joint pain, anemia, minor headaches, i dont however tend to think they are side effects just secondary uc symptoms....
wow from all of the non-believers I wonder if i'm just biased since i have seen results :) I've been taking it now for well over a year or more with no problems and believe it has helped keep me in...
Cure? What diseases have been cured in the past 50 years? I never hear of cures, lots of new drugs yes, but cures? All of these major illnesses out there, auto-immune, cancer, diabetes etc. Maybe the...
Enjoy! http://www.washingtonpost.com/wp-dyn/content/article/2008/03/03/AR2008030303200.html?hpid=topnews ...
I just got my shipment of Zico 100% natural coconut water the other day from Amazon and the stuff doesnt taste that great although better when cold, however, I do notice some improvement already. I...
It sounds like he is making quick progress. Thanks for sharing your accounts as it makes it seem like not such a big deal as one would think. I would try to be really patient with him and not place...
maybe you can reduce your dose if your gi buys off on it...i was at 9 back when i was flaring and since getting well have tapered to 4. i know that is low but it has been helping to keep me in...
ditto what most others are saying. i had it extremely bad when tapering pred but that was last year. i get it in a minor way now from time to time but just recently as the temps dropped and we got...
Thanks Rio in Maryland! I'll check into their services. It sounds more personal than just sending a sample away......
Anyone have a food allergy testing company they recommend??? Thanks! Sal...
ive never tried asacol but i do take colazal, maybe try switching your 5asa to colazal or lialda. it took me a complete year to get into remission after i first flared back in spring 06. last jan i...
I have my fair share of compulsive disorders like many others so you are definitely not alone in this. I think a lot of people have unique quirks that they wouldn't want to admit too in a public...
I'd have to agree with Rio in Maryland on this, although it is a personal decision. I have had UC or Crohns now for about 2 years and had a tough time getting my first flare and following small...
Yes, it's normal through my experience as well. I started at 12 when I was flaring and originally put on it. I've managed to get down to 4 and plan to stay at this dose as it seems to be keeping me...
also if you can maybe get your vitamin levels checked out, maybe you are deficient in something caused by the higher dose of remi? just a thought...
i would recommend getting a second opinion if you can and also lowering your dose of remicade. im sure things will get better for you in time. i had killer arthritis all throughout my body last year...