mbx5 - I couldn't have said it better myself. I especially noticed that with the one I had last week. I caught it early, was feeling better by 6pm or so, and didn't even want to go to bed, as if my...
My migraines, by definition, are the type that start as soon as I wake up. Intense pain in one temple or the other (most often just one side, the left). If I don't take a strong pain med for it...
Artificial sweetners are the biggest NO for me...more than anything that I know of thus far. Any kind will make me sick the next couple days guaranteed. I've noticed many others with UC stay away...
I'll remember less than a dozen dreams a year, literally. I'm one of those that for some reason just can't remember then. Pretty sure I'm dreaming though....
That's correct. If there's a med I forget to take, it's Imuran, and missing one dose has never bothered me. Just take the next dose tonight....
Wine just depends on how I'm doing as far as a flare goes. When I'm not doing too good, even a little sip will make me sick to my stomach. But when I'm ok, I can drink a little wine and not have it...
Interesting to see 6 out of 8 so far have migraines, and also UC. Of course 8 people in a poll isn't necessarily a high enough number for averaging. I read about a study where about 25 out of 30 UC...
Just finished the day with a migraine. Not the worst one, but a migraine is a migraine. Anyways, I was wondering if anybody here also deals with them. I will also post on the Migraine board, but was...
I know you mentioned that Ensure makes you gag, but it works every time for me (Ensure Plus that has extra calories in it). Try different brands/flavors. The Walgreen's and Ensure brands both taste...
It didn't do anything for me either. Still have pills left over from a year ago when I was on it for a while. Guess it's one of those meds that works for some, but not for others. Tramadol is a pain...
I have pancolitis as well, and have been into remission. It's too bad all of the meds aren't working for your daughter. Has she tried Lialda? I was in a flare for 2 years before I started Lialda,...
Overall I've been doing much better, which is why I haven't been on here much lately (you know how it goes, if you're doing well, you don't want to think about UC at all). Anyways, I woke up on...
Pancolitis here, on Imuran, though it doesn't seem to be doing much besides taking money out of our budget....
In 2006 I was down to 107 lbs, and put on 40 lbs quickly by taking a drink they sell at Wal-Mart. But I can't remember what in the world it's called. Can anybody help me out? It's sold in the...
Only thing I can answer is 40mg isn't very high. I've been on that dose many times, and haven't put much weight on from it. Maybe 5 lbs or so. And it doesn't sound like you'll be on it too long, so I...
I've had a bad ear infection for a couple weeks now, and had to get on antibiotics to try and help clear it up. As many of you know, antibiotics can make things worse for us, which has happened to...
I've taken Asacol for almost 1.5 years, with it doing almost nothing. Started Lialda about a month ago, and I know it works better than Asacol...for me anyways. Maybe that would help you out. You...
If you don't have insurance, like me, go to rxassist.org if you want to apply for assistance through Shire, who makes Lialda. I qualified, and will be receiving Lialda at no cost....
ediekristen, go to rxassist.org to find contact information for Shire, the manufacturer of Lialda. There you can find out if you qualify for assistance from them to obtain Lialda at little or no cost...
Prednisone always gives me the shakes...or makes what I already had worse. Don't know why I still shake, even being off prednisone. Does it now during any fine motor skills...forget the name of that...
I live in Orlando, Florida, and have been flaring for 2 years straight...so to me the warm weather hasn't done me one bit of good. Wish it would though! It's 82 degrees outside now, kinda wish it...
I currently have thrush from prednisone. Using nystatin to get rid of it, which worked great the last time I had it as well. Worst symptom to me is, as you mentioned, how the taste of food changes....
Go to Lialda.com for a bit more information. I've been on it a couple weeks now, seems to be doing more than Asacol so far. Basically it's the same medication as Asacol (mesalamine), but a different...
ha guess that's better than nothing. wonder how much time it took to make that....
I know, I know...I'm supposed to say 'i want a new ps3 for Christmas' (which I do), but all I really want is a brand new colon! lol anyone know where I can pick one up?...
Thanks princesa...the info on the other thread isn't what I wanted to hear...but what I was looking for....
We all know Prednisone can cause bone loss, but can it also cause you teeth to deteriorate? Or for them to decay more quickly? I just noticed about a week ago a tooth that seems to have pain out of...
I've had just the usual hair loss typical of a 31 year old male. Nothing extreme or out of the ordinary, with the exception of a day here or there....
Before getting on the plane, I don't eat much for about 30 hours prior to boarding, especially if my flight is in the morning or early afternoon. I'm not telling you to do that, since it's not...
Lactaid never did anything for me. Tried it off and on for the past decade, and it failed every time. Everyone is different though, so if may work for you....
I hope they're not saying to take viagra daily for CD or anything. Don't think I'd enjoy walking around for hours each day with...well you know......
No matter what does I've been on, and for how long, I've never gotten moon face or put on more than a few pounds. The higher doses does cause more insomnia, hunger, and irritability though. Also have...
I also take any dose I'm on first thing in the morning. I've never split it up....
It does take a while to heal. It actually took me over 2 months for the bleeding to stop with my first flare, and now, 1.5 years later, I still have urgency and pain (though I'm sloooowly getting...
Not sure if imuran can cause it also (wouldn't doubt it), but I know prednisone for me caused candida, which is the fungus on the tongue and in the mouth. My doc just prescribed nystatin for it,...
Yup, I'd trade my brain in for a good colon anyday....
I personally wouldn't worry about a little mucous only because it never really indicated worse things to come for me. I see it every so often. It would appear one day, be gone the next. I wouldn't...
I've done the same thing before, when I don't know what the bathroom situation is. Most recently when we took our daughter to an animal zoo. I called ahead to make sure they had restrooms to begin...
I never thought of an allergy to latex, simply because I've never had a reaction to it before from condoms, latex gloves, etc. I'm going to look up that dermatographic urticaria though. That sounds...
I'm kinda in the same boat as you. I just started Lialda in place of Asacol about 4 days ago, and it's made me closer to D than I was to begin with. I'm assuming my body will adjust to the new med,...
I'll be right there with you in about 4 days!...
No i haven't stopped it (going to get first treatment as soon as I get over a chest cold), but just wondering...have you been on Remicade for a year now, with no results? Assuming that based on your...
I only get it done every month or 2, from the beginning. Probably because I don't have insurance, so it's all out of pocket for me. I've been lucky enough not to have anything to far out of norm on...
It's unbelieveable how much we enjoy doing what's 'normal' for most people. Makes you appreciate those times even more. Glad to hear you're doing well....
Wow Beth, no energy with 60 or 40mg of pred? I get hyper with just 30mg...I go insane with 40, can't imagine what I'd do with 60!...
I wish I had that much energy from the Imuran! Makes me more tired some days than others, but there's no way I've noticed a big increase of energy from it. Pred. is the only thing that will do that...
The Shire reps we met with the other day explained the MMX technology, though I forget exactly what they said. It deals with the mesalamine being encased in a gel substance. Part of it is released by...
haha thanks, but no thanks! it took me 30 years just to get the nerve to fly on a jet...don't think i'd do well 'flying' on the john multiple times a day...
I've been on Imuran for a while, but it still hasn't done anything, probably not at the right dose yet. Prednisone seems to be the only thing that has helped....
I just stared Lialda about 3 days ago. But since then it seems my symtoms have become worse to a degree. Hope it's not the Lialda!...