I don't know if I ever responded to this before but I just decided to pop onto the boards and see how things are going when I found this old thread. I'm glad to say I'm doing very well these days! My...
Alright, so... summerstorm: From what I've read of others, BB is when you eat certain foods that cause your stool to liquify and the acid from your stomach and bile irritate and inflame the skin...
Hey all, I know I'm not really all that much of a regular member anymore. But as many before have claimed as an excuse, I've been living life ever since I was released from my first surgery! I...
Hey everyone, I see lots of new names on the topic threads. Guess I've been gone too long, I don't recognize most of them, hehe. I've been enjoying life post-temp ileostomy for the most part. I've...
Ok, So I went and bought a whole bunch of clothespins and they work wonders for the seat belt issue! No more blocked stoma! However with every small victory something has to go wrong to accompany it....
Its so dry out here that I have the itchies ALL over me! But the worst is the itchies from my yeast infection around and under my wafer....ggggggggaaaaahhh! I also have an adhesive lock for my jp...
Hey guys, As usual thanks for the input! Cruiser, I really like the sound of that pregnancy table...I'm sure the spa will be able to accommodate. The seatbelt thing still bothers me, but I guess I'll...
I'm also glad to hear your son is doing better. If you or him have any more questions feel free to join us ostomates over on the ostomy board! (I know I've seen you post there before about surgery...
Ok so its been a while since I posted so forgive the length! So I'm back at home at last! After 3 weeks in the hospital and another 4 and a half at my parent's place (my poor poor fiance) we are back...
I agree with princess, just call your GI first to confirm its ok. Do mention to the remi nurses that she has UC and that she may need to use the restroom, urgently, during the infusion. When I had my...
Lew: I'm a 23 year old guy who had UC since I was barely 19. I was able to stay in remission for almost 2 years before having an almost 2 year long flare. I must say that I fought tooth and nail to...
Its actually the skin around the stoma thats bleeding. Its a very thin strip and it just follows the track of the stoma right on the edge of it. I've tried reducing the size of my cuts, to the point...
Ok, so my third bag change since coming home went well last night! However I noticed I'm still bleeding around parts of the stoma. This is weird because for the past week I haven't really felt any...
From what I remember, the program covers the first year of treatment or your first 8 infusions. Kind of like changing your car's oil, every 3 months or 3,000 miles etc. I had a hard time getting them...
I'm glad to hear I'm not the only one who has had their fair share of problems. Peggy113 thanks for the water tip, its worked wonders! I looked into those moldables today and I like the sound of it....
Hey all, Well thanks for all your advice and support! I really like the sound of these moldable wafers...gonna have to check into that. I do have some good news. I changed my bag last night with no...
AHHH! Ok, so I kept my last bag on too long and it leaked (2nd time this has happend) and had to change it emergency style with my dad assisting. I completely forgot the no sting barrier film but did...
Hey disco, Heheh, I had to take MoviPrep for my 2nd to last colonoscopy. Nasty, nasty stuff. Like lemon flavored sea water mixed with oil. I'm sorry. However, I managed to only finish one bottle of...
Cecilia, I'm glad to hear you're back! I was released last monday after suffering an agonizing portal vein clot and pelvic abscess that sent me to the ER two weeks prior, ambulance and all. Like you,...
Hey guys! Thanks for all your encouragement and praise! I'm sure I'll still feel a little wonky doing the next few changes, but I'll manage. I'm not scheduled yet, but I am having a reversal...
So after being in the hospital for a couple of weeks I finally had to change my bag last night here at home. I had meant to do it yesterday (it was getting itchy and gross looking) but I decided to...
Alright, so I've been home for almost 5 days now and so far its been good. There's definite pain in my rear where I still have drainage tubes coming out of me (to help remove blood etc from my...
Ash's list covered me pretty well for both my stays. I would also recommend convenience/snack food for late night stomach growls that can't be squelched by what the nurses can bring you. I personally...
Hey guys, I mostly post on the ostomy board now but I'd thought I'd do it here too just in case anyone was wondering how I was doing. So after a two and half week stay in the hospital, I'm back at...
Hey all! I'm back home! The procedure my fiance posted recently about went well and my j/p drain was moved to a more drainable position. So when I got back to my room my surgeon came in a little...
Hey guys. It's Ness again. Carlow's still in the hospital. His white count was elevated for two days, so they decided to keep him in longer. He had a CT scan yesterday and the docs found the original...
Hey Loren, As my fiancee has pointed out, I am an idiot. I'm just now getting access to a comp again...so much for visiting eh? Crikey. I'm supposed to be discharged tomorrow after two more drains...
Hey guys, Sooo, much improved after a hellish day yesterday! So after a night of no sleep (no breathing equals hard to you know, sleep) and a no liquid/food diet for over 12 hours...they came for me...
This is Carlow's fiancee again. Unfortunately, he doesn't have constant computer access. He just has it when I bring my computer, like I did when I stayed with him this weekend. He's in Anderson too....
Hey UCinNC, yeah I'm still in the flippin hospital, http://www.healingwell.com/community/posticons/icon8.gif. I just want to go home! After hanging out here for a week, letting this clot and abscess...
Hey all: Thanks again for all your kindness. Carlow was transfered out of the ICU today and into the Step Down Unit. He was also placed on the clear liquid diet and had a bit of Jello for breakfast...
Hey all. It's Ness. Thank you so much for your thoughts and prayers. They are very much appreciated. Carlow's still in the ICU, but they hooked up his PCA last night and he's doing better. He's...
Hey guys. This is Carlow's fiancee Ness. Sorry about the lack of updates before. I have my computer back and can fill you guys all in. He's back in the hospital. He woke up this morning around 4:30...
Hey all, Ok, so now that the itchies have been cleared up I have another question: Starting tonight after dinner I've been progressively more urgent sensations to have a BM. This is a first since my...
Hey guys, thanks for all the advice! I figured out the itchies/tickles are from when I actually have output, but only on occasion. So weird. I have a follow-up with my surgeon tomorrow, so I'm going...
Hey Ash, yeah, its itchy right around the stoma. Every hour or so I get the urge to nudge it a bit and then it goes away. I'm using a two stage convatec surefit....
Hey all, I just had my initial jpouch surgery thursday and I'm now home from the hospital. I had a quick question about my bag. The WOCN helped me change it on monday and she said it was a good fit...
Good to hear your surgery was without complication Chili. I'm wishing my doc had offered the laproscopic option for me, as the 6 inch incision below my waist is killing me right now. I can't walk...
Its good to see some publicity on this disease. I've run into far too many people who were unaware of its effect on people and their lives. Thanks Loren!...
Thanks for the tip Old Hat, I've been trying to keep it basic and to chew my food very well before digesting. I couldn't help having a sandwich though, and it just passed a little while ago with no...
Tell her I'm right alongside her! I was just released today after having the first stage performed on thursday! Start walking as soon as you can Chili, it really helps with recovery!...
Hey guys! I'm home! I was just discharged about 4 hours ago after having all sorts of finalized hospital stuff to fill out/take care of. Sorry my fiance didn't post the other night, her computer hard...
Hello all! Holy cow what a couple of days its been! What is today? Saturday? Ok. So the colon is out as of this past thursday. I'm currently in the tail end of a blood transfusion but I'm doing well....
Alright lads and lasses, had my last colonsocopy, ever, today. I am to arrive at the hospital at 6am bright and early tomorrow for the first stage of my jpouch surgery. I have given my fiance access...
Thanks, you too! And I'm sure we will. Yeah, I think I lucked out, my surgery is at 1045am thursday and my prep starts tuesday. So only two days sans food, oh boy. Did I mention I'm on 30mg of pred?...
The 21st! And yeah, the forum really has been a lifesaver. I had no idea about this NG tube being used as part of the procedure. My doc didn't say anything about it, I'm really anxious about having...
Hey mythreesons, welcome to the board. Yeah, prednisone will definitely change things, physically and emotionally. I usually gain about 20 pounds or so after a full taper and at first I'm really...
Hehehe, I check all the time! At this stage its pointless in my opinion because its going to be a train wreck in the toilet everytime. But I do it anyways, even at night, I actually turn the light on...
Ash: Thank you again!!...
Hey everyone, I'm scheduled for my colectomy next week and I'm starting to gather everything I need for the hospital stay and the two or three weeks after at my parents place. I know alot of you...