I'm currently 24 weeks pregnant and have been living with a UTI for my entire pregnancy so far and possible before. I have no symptoms so I wouldn't have known before my regular urine checks. I've...
I am actually shocked that there are OBs out there that are telling patients to stop taking all their medications. That is crazy. It is extremely important for you to stay well during your pregnancy....
I would definitely try to stay away from pred if it raises your bp. It does the same thing to me and I was on bedrest because of it during my first pregnancy. Also after my daughter was born I needed...
Congrats to you! I am 15 weeks pg with baby #3. With my first 2 I did battle flares during the pregnancy. One was controlled with cortenemas, the other I ended up on prednisone. Here's hoping that...
Thanks for all your replies. I'm only 13 weeks along, so I guess I'll wait until the time gets closer to make any decisions. The thought of surgery is scary to me when I had 2 other fairly routine...
Have any of you moms ever been advised to have a c-section because of your UC? I'm currently pg with #3 and that option has never been presented to me...but something I have been thinking about . I...
Yes, this happened to me as well. I was on remicade for about 6 months when the joint pain started (along with headaches, chest pain, strange breathing). It was AWFUL. I could barely walk up the...
Remicade gave me such severe joint pain that I had to stop taking it. It can be one of the "lupus-like" symptoms that can be caused by Remi....
I've been living with UC for 10 years and I have been on pred 4 times for about 4-6 months each time. For me it is a necessary evil to kick things back into remission....
Most definitely the remicade! My hair has been falling out like CRAZY since I started it. I also have read on other boards that many other people on remicade have the same side effect....
Hello all, Just wondering if anyone else has been in my situation. I've had 4 remicade infusions so far and up until yesterday would have told you I had no side effects. For the last few weeks, I...
Bob, I wish you all the best with the surgery. It seems that we are neighbors! Who is your doctor? I've been going to one I like, but it is always good to have another option. What hospital are you...
I have an appointment in the morning and I thought I'd get some opinions first. I'm flaring more severely than I have in 3 years. Right now I'm taking entocort, lialda, and cortenemas. My doc had...
Yes cortenemas are a steroid and although they don't get absorbed as much as an oral steroid, are not usually recommended for long periods of time. Rowasa is a mesalamine, the same medication that is...
I went in the evening and got started with my 2 units in a hallway in the ER. When they finally had a room for me I was moved there for the overnight and went home the next morning. I would think if...
My husband is self employed and we have had a terrible time trying to find someone to cover me. He is actually in the process of enlisting in the army reserves mainly for the health benefits. In VA,...
I'm sorry to hear the bad news. Do you mind my asking what dr you see? I also live in NoVa and actually am looking for a new GI. I'm also a bit confused. He wants you on remicade and pred even though...
I'm very surprised about the nicotine patch. My GI told me that nicotine has been shown to help symptoms of Chron's but make UC symptoms worse. I'm sure you've done your research but that's what I...
With my first I took asacol and rowasa throughout, and also took prednisone when I began flaring. With my second I took asacol all the time and rowasa on and off. I did have high blood pressure with...
A few months ago I had posted some info about a UC patient advisory board meeting that myself and several others from this board had attended. As a reminder it was put on by Shire, the company that...
I have been wondering about this stuff myself. I received the free sample in the mail and it's been sitting on my kitchen counter for a month! I'm just not quite sure what it is. It says it's a...
I began taking seasonale 2 1/2 months ago with the hope that I would have less flares, since I always tend to flare during my period. All has been well until the past few days. I have had some...
I would try to stay away from prednisone at this point. Although it is considered safe during pregnancy I would use it as an absolute last resort. I took it while pg with my first daughter 4 years...
Thank you all for your congratulations! The information for the seminars I talked about can be found at roadtouclearning.com. I'm going to try to make the one in Philadelphia if anyone wants to join...
Some of you may remember that I was chosen to address a group of pharmaceutical sales reps to give a patient testimonial of what it is like to have UC. I got back a few days ago, and I wanted to...
Anyone have a colonoscopy scheduled for tomorrow? This bug I have is doing a better job than my last prep. I'll gladly pass it to you. /community/emoticons/tongue.gif ...
I had an amnio when I got a false positive as well. I was worried but when the doctor performed the test he did an extensive ultrasound and told me that he was 99% sure everything was fine. Waiting...
I just found out I've been chosen to address a large group of sales reps for Lialda to give them a personal story of what it is like living with UC. I'm excited about getting to travel but nervous...
I usually only have one or two a day when in remission. But if you are blood and D free, YAY!...
I definitely know what it is like for UC to flare up with hormonal changes. I took prednisone during my first pregnancy and had to have a stress dose of steroids during labor to keep my adrenal gland...
I have a one year old and an almost 3 year old and I bfed them both while on asacol. I also used Rowasa. Both my OB and GI were fully aware and had no problems with it. There were no adverse...
I went a few months back and my doctor said my eyes are great and my vision is better than 20/20. At least one part of me is since I feel like I'm falling apart most of the time! Actually people in...
I may have a different opinion that everyone else. I am not ready to try Imuran or Remicade yet either. I'm sort of saving them for a last resort. I've been on pred 3 or 4 times in 9 years for a few...
I always flare during my period. I've learned to start Rowasa when I feel it coming on. I actually just got a prescript ion for Seasonale so I'll only have a period 4 times a year. I haven't started...
I have a lot of experience with this since I have a 1 year old and a 2 year old and a very stubborn case of UC. The medications you are taking are considered safe during pregnancy. I took asacol,...
UMDTerp, I had Kaiser before I recently switched insurance and I LOVED Dr Butterfield. She is very compassionate, and at times when I called A LOT, she would always call me back at a time that was...
I hope there are some good ones! I went to a new doctor today in Alexandria and I was not at all impressed. Maybe I'll check the washingtonian too :)...
I wanted to run a few things by you all. This is what I'm prepared to tell my new doctor.... I've had UC for 8 years. I take Asacol religiously. I tend to have a minor flare once every month or two...
I don't think it takes more than a few months. I've been anemic from UC, and also slightly anemic when I was pregnant with my first baby. The baby will take your iron and leave you to fend for...
Yes, I am very fond of the steroid enemas. I use rowasa when I need to. It seems like every few months I start again, but when they stop working I add the cortenemas. I still do rowasa at night and...
Many of you wished us well and asked us to report back when we returned. It was definitely an experience like none other and something I will not soon forget. Shire, the pharma company who invited...
Candice and Michael - you guys are awesome! Ha Candice you couldn't hide your screen name for long. Now don't go making anyone mad again:) It's so great to feel like I really know some people on here...
Don't worry at all about your medication! It's probably more dangerous to worry, causing stress which will make you worse. I have a 2 1/2 year old and an 11 month old. I took asacol religiously...
oops I didn't read the other posts yet. answered my question :)...
Snookiebow, I'm glad you have decided to go. I was hesitant at first but now am excited. I'm looking forward to meeting you all. As I said earlier I'm from Philadelphia and the hotel where it is...
Yes I have that quite frequently. If it's only a small amount of blood in formed stool I don't worry too much. Maybe I should. I tend to start the extra meds when I begin the D and urgency with blood...
My 11 mo old is going to be a pink poodle, and my 2 year old is going to be a zebra. That is, if I can convince her to wear her costume. She picked it out herself and talked about it for weeks, but...
I always wonder why I sleep so much! Glad to know I'm not alone. I usually sleep 9 hours a night and take an hour and a half nap in the afternoon. Lucky for me my kids are 2 and 11 months and still...
The mesalamine is the same medication as asacol, colazal, etc. It's just placed directly into the colon when you use the enema. I use these fairly regularly. The hydrocortisone is a steroid, so it is...
When I was recently pg, my GI told me that they used to be so sure that Imuran would cause serious birth defects that abortion was recommended. She went on to say that more and more women are having...