Thank you so much for your replies. I really needed to hear from someone, I am very low emotionally no doubt due to the steroids, they make me very weepy. * The 2...21/2 hour infusions would not be a...
I am in a flare right now :( The last BAD flare was 6 years ago. I was on Prednisone and I reacted terribly to it but in the end it did the job and got be back in remission. I said I would NEVER,...
Hi, currently my UC in being managed by Asacol x4 daily and Salofalk enema every other night. Everyday is a different day as far as symptoms. One day I bleed more than the last, yesterday I was...
Thank you for the replies. I am new at the board and thought my signature would show, but it didn't. /community/emoticons/confused.gif I have pan colitis which has been in remission for 5 years and...
Hi; Can anyone tell me if they too have experienced terrible pain in the I think it is part of the colitis because I am in a flare right now and it seems to be related. Am I alone in this or has...
I agree with Quincy....it could be herpies or shingles. Is there any burning and are the blisters on one side of the body? Shingles follow a nerve and never cross over from one side to the other....
Denise; I can't imagine going through what you went through with] ...How on earth did you functions? I'm glad to hear things are working out for you. Did surgery ever come up as an option? No one...
Oh boy can I relate as well. I was diagnosed because I was having a very bad flare...ended up in the hospital on steroids IV for one month. I did not have any time to digest what was happening to me....
Glen and BK...Thank you so much for your post. You don't know how much that helped me. I was considering Prednisone only because I know what to expect but after hearing about the two of you...I will...
Thank you Glen; Your post gave me hope but I have to tell you I am still in a whirl wind. I don't know anything else but Prednisone, yuck. Asacol is no big deal and neither are the steroid enemas....
Hi Donna; I am assuming the GI is considering Remicade because the last time I was sick, I got really bad, really fast and was only days towards surgery... But you are right about trying other med's...
Julee; Thanks for the reply. Great questions, you bet I'm going to use them. The first and last time I was sick I just followed whatever I was told because I was in a fog because I knew nothing about...
Julee; When I was symptom free, I was also medication free. I stopped all meds when my syptoms stopped. I hate drugs and decided no need for drugs if I was not suffering...it worked for me, for a...
Thank you Gela, Judy and Bob for replying. It really helps to hear that other people have tried it and feel it worked for them. It really is a hard call when it comes down to enduring terrible side...
Hi I am new to this board and I am looking for opinions and testimonies of people who know anything about Remicade. My Dr wants me on it but after checking it out on the Internet, I am scared. I was...