Hi Has anyone used either the Voltaren Patch or the new gel? I have Spondylitis and get inflammation in my sternum. I was thinking that the patch or gel may be helpful. I cannot take NSAIDS on a...
Hi UCinNC, Sorry to hear that you are feeling sad about your illness and that you even have to deal with this illness. It takes time to come to terms with a the diagnosis of a lifelong illness. I...
I have used hydrocortisone in the past. Only after one night of use I would wake up with swollen lips and cheeks. I have use Budesonide for 4 yrs now and I have not had any side effects. I think...
Hi Trixy, I am sorry that you are not feeling well. I was diagnosed with Spondyloarthropathy around 16 years ago. I was around 23 years old; however, I think I was suffering from the disease at least...
Thinking about you. Hope you feel better soon Regards, Red plum...
Hi Orangeman, I am sorry to hear that you are having a difficult coping with your UC. I can understand where you are coming from. I have had UC for over 20 years now, and I still have a difficult...
I will be thinking about her everyday and wishing her well....
Hi, I also take tylenol all the time for my spondylitis(arthritis) pain. It helps a little without upseting my GI tract. Should be fine. Also, I hope your daughter feels well soon. Regards, Red Plum...
Hi Red, Sorry you are going through such a difficult time. It is very disappointing when you take such strong drugs like 6mp and you still get sick. I hope you feel better soon. Maybe trying some...
I am so sorry to hear that your little one was diagnosed with this disease at such a young age. This must be a very difficult time for family. Hopefully, your baby's health will improve soon....
Hi Bmshurt, Sorry to hear that you are having a very difficult time. I can understand your frustration with your health. It's true that different things work for different people. Seems like there...
Dear Beth, I am so sorry to hear that you are not feeling well. Have you started the Imuran? Also, I was wondering what was going on with your minimal change disease. Have the doctors done any more...
Hi AKB, Thank you responding. What brand did you buy? I went to the Whole Foods market next to my house; however they did not have the seed powder itself. They had it in combination with the husks. I...
I use compounded Budesonide enemas. I have been using them for 5 years. They work great for the left side and has kept the inflammation there at a minimum. Entocorts active ingredient is also...
It is interesting that the Bio Pro is helping some of you to reduce amount of bowel movements. I was looking at the website and noticed that the probiotics are enteric coated. A lot of the probiotics...
Hi, Thank you all for your quick and considerate responses. I can see that the drug can work quite well for some people. It is good to hear. Hope you all keep doing well. Regards, Red Plum...
Hi everyone, I was wondering if anyone has tried Psyllium seed powder (plantago ovata seeds) for their UC. I have read some information that a trial was done which showed that it helped to maintain...
Hi Old Hat, Sorry to hear that you are getting swellling from the Colazal. You should ask a doctor to check your urine for any abnormalities such protein in the urine. I had a reaction of swelling...
HI, 39 year old female living in south orange county, CA...
I agree with AKB. I went to a CCFA patient symposium last spring in LA, and a GI from Canada had given a seminar about natural remedies to aid in maintainence of UC. He had mentioned that fish oil...
Hi everyone, I was considering trying 6mp to see how I do on it. I have heard such horror stories about these two immunosuppressant drugs--from hair loss, skin rashes, pancreatitis, liver enzyme...
HI Snookiebow, I forgot to mention that I use Tazorac gel every night, and Duac to spot treat outbreaks when necessary. The Tazorac works really well for me. It pretty much keeps my face free of all...
Hi Betsaronie, I am sorry to hear that you are not doing well. Have you considered trying budesonide enemas? You can ask your doctor about them. I use them every night, and get them from a...
Hi everyone, I went to Whole Foods today and picked up a package of the Nature's Way Fisol. They are enteric coated fish oil capsules. I was wondering if anyone had tried them. If so, did they give...
Hi everyone, I just came back from Whole Foods and picked some enteric coated probiotics--Ultimate Flora Critical Care. I have tried the VSL 3 and Culturelle powders. I get a lot of bloating from...
Hi Snookiebow, I am so sorry to hear that your skin is going though a rough acne flare. I get face outbreaks as well from time to time. When I tried Asacol some years back my face had a bad acne...
Hi discouraged, I have also heard about wheat being a problem for UC sufferers, as well as sugars, processed foods and diary products. I think that whole unprocessed wheat breads may be a little...
Hi Susiebuddy, I am sorry to here that you are in such a bad situation. Don't let a man ruin your life--he's not worth it. I know it is much easier said than done. But, he definitely needs help for...
Hi Beth, You are welcome to vent anytime. From what I remember it took around a month for the swelling to go down, however, it may take a little longer for you to recover. But after I was better, I...
Hi, I use Accupuncture on a regular basis. I think it helps a lot with stress and arthritis. It also gives me more energy and feeling of wellness. I think it may be reducing the symptoms of my uc,...
Hi Beth, I am sure that this is scary for you. After all it is your kidneys we are talking about. I was quite scared as well. For me it took approximately 11 weeks to figure out that something was...
Hi Stacey, Thank you for the Welcome. I can understand how you must have felt. If I were in the bathroom 15 times a day, then I would try the 6mp as well. I was going around 10 times as well before...
Hi everyone, My husband and I have been doing a little better. He asks how I am doing and gives a hug here and there. However, I must say that I am feeling a little better since the last week and my...
HI, My 4 year old son takes singular. He has been on it for almost 2 years. He has many airborne allergies and asthma(food allergies too) . He does quite well on it. He rarely has coughing attacks as...
Hi Deb and Stacey, I am so glad to hear that you two are doing okay as you taper off the prednisone. I have had ulcerative colitis for 20 years now. My GI has been asking me to go on 6mp for the last...
Hi Tizz, My son is 4 and was born with severe food allergies, such as wheat, eggs, beans, tree nuts. and peanuts. I am not sure if I understand your question about the benedryl. Benedryl does help to...
Hi, I use accupucture a lot for for spondylitis, which is the arthritis of spine, hips, and chest. It works pretty well on me. This way I don't have to take so many nsaids--which aggravated UC. Also,...
Hi Ashna, Good luck on your colonoscopy..It can definitely tired you out. Hope you get some rest after. How has the saffron helped you. I would definitely be interested in hearing about your...
Thank you everyone for your welcome and insights. Will try to work on more thank you's and asking for what I need....
Thanxs for your quick responses. We have tried counseling twice. And it just costs an arm and leg and nothing really changes. I asked for the emotional supports for the last 13 years, and nothing has...
Hi everyone, I am new to this forum. I was diagnosed with UC when I was 18 and I am currently 39. I have been married to my husband for 13 years. I feel like he just does not understand how severe...
Hi, I have been on voltaren in the beginning. I have spondylarthropathy, a different from of arthritis. I helped the joint inflammation quite a bit. However, it upset my colitis. If you don't...
That is great that you want to exercise even with all your health struggles. If running causes diahrea, then possibly it is better to choose another form of exercise. When I do a lot of walking it...
everyone's situations, and found all the information interesting. I have been on Budesonide enemas for around 5 years. I have moderate pan colitis. My GI has been bringing up the topic of 6mp for...