Thanks you guys. J-pouch. org was going to be my next stop. Too late for 2nd opinions. Surgery was today. He finally reached out but he is still nervous about getting the support he really needs....
Any ostomates here who have had j-ouch removed and replaced with perm ileo? I need your help. My friend (and fellow j-poucher) is in dire straits. I'm interested in knowing what went wrong? How long...
I'm 54 now and diagnosed with uc in my early teens. The disease waxed and waned over the years and no medication seemed to work just right. Imuran worked for me for about a year. Do your research. It...
Hi everyone, This is Becky, Jeff's better half (of course it depends on who you ask ;-). First, I want to thank all of you for your feedback. I encouraged Jeff to participate in this type of forum as...
Suebear, Given my recent experience,you are right in that GI docs are out of the loop. At the time of his referal to a surgeon, my GI (whom I have trusted for around 15 years) calmed my fears of...
Eva Lu's concerns are the same as I am going through. After 40+ years of UC, the stories that have been shared about incontinence and "butt burn" with the j-pouch sound like a continuation of the...
Hello All, I am currently investigating my options because of the necessity to remove my colon in the very near future due to UC. I have questions for all K-pouchers, J-pouchers, BCIR patients. 1)...
Foster Dad, I've been taking Imuran for about a year with some success. Started at 100mg and currently at 150 with no side effects. My doc is reluctant to go higher.Prednisone was no longer working...
Becky ...