Minnietoty - I've had crohn's proctitis for close to 20 years, so I've been through it all. Recently my GI suggested laying on your left side and propping your rear up on a pillow during and after...
I have been on Lomotil for quite some time "as needed" but regularly take 1 per day and it has been relatively effective....
Day 5 on the bee propolis... I've starting go grow wings, sticking my nose in random flowers and buzzing uncontrollably. ;-) Started 45mg pred/day on Friday, which just happened to be one heck of a...
This article is about asthma, but it relates to autoimmune disorders, such as IBD that we know all too well. In short, they found that children exposed to a more diverse set of bacteria during their...
Day 3 on the bee propolis....a little less blood, but urgency and frequency pretty much the same, maybe slightly worse. And just developed a new fiistula (ouch) though it's obviously unrelated to the...
Started bee propolis 500 mg today and will increase to 2x daily tomorrow....stay tuned! Talked to GI as well. Since being 2.5 weeks on pred (40, 30, 30 mg) and minimal improvement, his recommendation...
A heavy, short course of Flagly (1,000mg/day) had a huge effect on clearing it up for me when I had two miserable, painful fistulae. Can't stay on that dose too long, but it worked very well for me...
Standard treatment course seems to be something aggressive (like prednisone) to bridge you to a maintenance med. I was on 6mp for a few years and it helped, but didn't completely prevent flaring. If...
Just be careful with sustained use of flagyl...works great but you can develop nerve problems with prolonged use. My toes went numb after a couple months and I had to discontinue treatment....
Judy- Not sure what kind of pain you are having, but I asked my doctor a similar question and he said as a general rule of thumb, if it doesn't get worse under stress/exertion, it's most likely not...
Totally hear you guys! For some reason, major retailers, like drug stores, supermarkets, etc seem to trigger an immediate need to hustle to the restroom. It's really bizarre. Home Depot seems to be a...
Thanks pmedic. Will definitely be doing some research into the bee propolis. Please let me know if you find anything interesting and I'll do the same. Becoming undone- thanks for the info....glad to...
Thank you all so much for your advice and suggestions. I've never really been "part of a community" and sharing this with you and knowing you are out there listening really does make a difference,...
Not officially, though it's looming out there as a distant last resort should medications continue to fail. My approach has been to avoid that for as long as I possibly can....
Hi all - My first real question on this forum - hope someone out there has some (positive) insight. I've had Crohn's colitis (rect. and sigmoid colon) since 1992. It's been extremely difficult to get...
Kix - don't dismiss the Miralax option, it's a great for relief and pretty gentle compared to the others out there. I've used it on occasion for the same problem and it works wonders. Good luck to...
Tabi - sorry to hear. Chills can be a result of an infection as well (i.e. abscess or active fistula). I've found Tylenol does wonders for stopping the chills for a few hours. Good luck!...
Been on MTX for a few months - taking 1cc weekly via injection. Had to stop for a few weeks, then start again at 0.5 cc weekly because of low WBC. Has helped where many other meds have not... just be...
Yes, after a few months of being on 1000mg of flagyl daily got numb/tingling toes. Still there several months after discontinuing but on Methotrexate now....
Currently tapering off Prednisone (have been on for 9 weeks) and at 20mg/daily. Experiencing tooth sensitivity for about 1 week now - out of the blue and very sensitive to cold....
I recently participated in the phase 2b trial for Ustekinumab for Crohn's, and unfortunately the results were dismal. I have had Crohn's (Crohn's colitis) for more than 15 years and over that time...