Sorry about the link. I cannot figure out the url....
This is good news for those of us with no arrows left. A 16 to 18 percent chance of remission is better than nothing....
Thanks to all for your informative replies. I have a feeling this coming year will be decision time. ActiveUCer - I may be getting back in touch with you. Thanks again....
After being diagnosed with severe pancolitis Aug. 1, I was taken off all previous meds and started on Lialda and 20 mg Prednisone. The Prednisone did it's job but it took about a month. I was still...
This is the news I've been waiting for and I'm sure a lot of others. The final approval still has to be made by the FDA but, it's looking better for those of us expecting approval by the end of the...
My colonoscopy last month showed severe pancolitis, a quantum leap from left sided UC for 10 years. All other medications have been tried over the years except the biologics which my GI said is the...
Got the biopsy results from gastro's office this morning. No dysplasia or cancerous cells. I'm to stay on the prednisone for a couple of months. If there is no change or symptoms worsen, it's on to...
Graduated to the upper 20% of the UC class. Diagnosed with severe pancolitis with a lot of nasty descriptions of hyperemia friability ulceration and purulent exudate in entire colon. Throw in a few...
Thanks Probiotic for this post. It was exactly what I was searching for. Having been through multiple serious flare for 10 years, I thought I would be in familiar territory until this flare. Always...
This is my second time around for Entocort. During my last flare my GI wrote me a script for pred again. I had been through a rough time on prednisone. I had all the side effects and even with a low...
I've been a pro sax player for too many years to mention. Playing sax doesn't cause my flares but I have to watch the altissimo notes on a solo. I have to pucker both ends on those....
Having UC diagnosed for close to 10 years, I have had multiple flares with bloating and distention. During a flare a few months ago, the gastro prescribed Entocort for me again. I had been off of it...
I have battled the inflammatory arthritis for about the last 5 years. During one episode, it was so bad I could hardly put my feet on the floor in the mornings. Every muscle and tendon in my body was...
Welcome Davidica. After I was diagnosed with UC in 2003, I went into iron deficiency anemia. I have some photos of myself and still can't believe I looked so bad and no one mentioned it. After...
Sorry. I forgot to answer the other question. I'm male, 65 years old....
Not yet. I started to wean down from the Prednisone today. If I can't do it without the pain returning as before, I'm going to make an appointment....
No. When my UC symptoms improved, I was gradually weaned from Entocort. I still take 8 Colazal pills a day. May be the joint and muscle pain was kept at bay by the Entocort, I don't know....
During my last severe UC flare, I was on the entire arsenal of Colazal, Entocort, and 6MP. Having side effects of bruising and dark urine, the GI took me off the 6MP. As the symptoms of the UC...
You can count me as one of many with RA problems. A few months ago, pain in my back and hips was constant. I was prescribed Tramadol. It didn't seem to help all that much. After my colonoscopy,...
I started the SCD a few weeks ago. The GI says I'm stable but I don't want to live with that. The arthritic soreness and pain plus urgency in the mornings doesn't make for a great lifestyle. Before...
Imagardener2 - I have had the book, Life Without Bread, for sometime. Two weeks ago, I started to reread important chapters and started back on a low carbohydrate diet, basically trying to keep the...
I developed iron deficiency anemia sometime in 2006. I don't believe I ever felt more exhausted and morbid in my life. After telling my GI of symptoms he said I looked a little washed out and ordered...
Being in a flare for quite sometime now, I use a Colocort enema and Canasa suppository to calm down the lower end. Usually, one or two times and it calms things down for a while. My biggest problem...
I went through the 6MP with some bad side effects. I mentioned this in another post so I'll try to be brief. I was on 12 Colazal, 3 Entocort, Canasa, Colocort enema, and still flaring when started on...
It takes a few weeks before monitoring the 6MP blood level. I was in a bad flare and prescribed mercaptopurine in addition to the Colazal and Entocort. After two lab results, I was on 3 50mg tablets...
I've been experiencing similar symptoms for about three months. I went into remission after taking 6MP. That really did a number on me. I know I wasn't properly monitored and had bruising and dark...
I had my annual colonoscopy a few weeks ago. Polyps removed, diverticulitis, hemis, left-sided UC. I'm close to 65 and diagnosed years ago so, I'm in that danger zone where the odds go up for colon...
I found Aloe Vera at Walmart in gallon jugs. Also in smaller flavored containers. I tried to drink a glass as soon as I got home and just couldn't. It tastes similar to the pre-colonoscopy laxitive...
I was prescribed Entocort (3 daily) after a severe flare 3 or 4 years ago. It immediately brought me out of the flare but I soon I was back in the same shape, even worse. Gradual increase of the 6MP...
I've been on 6MP for a few months now. I am now on 3 X 50mg a day. Waves of nausea come during the day but it did bring me out of a bad flare....
I recently had my dosage of 6 MP increased to 150 mg a day. It brought me out of a bad flare but now I stay exhausted most of the time and generally don't feel like doing much at all. The muscle and...
Old Hat, Fantastic website. Thanks....
I take Tylenol now after years of Excedrin use. It seems I have to wait a little longer for relief from headaches and pains but the tradeoff is much safer....
I'm sorry you are having a rough time. I think my frustration level is approaching yours. I'm not bleeding now but still have a lot of urgency and D in the mornings along with such soreness and...
I use Charmin or Scott (after the TP) and both are good. Hint - Put the wipes in a large plastic zip bag. It keeps them wet, more so than the box they come with....
I went through about a year of anemia before testing and put on iron. I'm out of the anemic stage now, about 15 hem., but still have bouts of extreme fatigue. I went low carb a couple of months ago....
I have been on Entocort for over a year. I tried to wean myself from Colazal and put myself in a flare. Entocort was prescribed and the bleeding subsided within a few days. I have my post colonoscopy...
I recently went on a low carb/high fat method of eating and have lost apprx. 20 lbs. in 2 months. I had done this many years ago and knew what do and what to expect as far as weight goes. My reason...
I just started taking fiber supplements today in hopes of joining this dance party. The only well formed stools I have seen for over a year are the ones in my front yard from my neighbor's dog. I...
After trying to do without Colazal I went into a flare over a year ago. I had to go back on Colazal and was prescribed Entocort in addition. It stopped the bleeding and I have been on it ever since....
Quincy, So far there hasn't been any discussion of colon removal by my GI. That may change after the lab results. Thanks for the info and I'll keep you informed of what I find out next week....
I had my colonoscopy yesterday morning and I am anxiously awaiting the lab results due early next week. My last exam a year ago showed indeterminate dysplasia so I am rather aprehensive to say the...
After reading these posts last night I went back to organic whole milk at the store this evening. I tried the Silk Soy (unsweetened) for some time and have really had a lot of gas lately. It may not...
Tabitha, As you can see below, I'm on some serious iron maintenance and regular checkups. I have another in about a week. I won't go into what the last year was like only to let you know iron...
I use the wipes like the white corncob after the toilet paper (two red corncobs). It's an old farmer joke for those of you old enough to remember an outhouse....
Kristyn, I wish I could help you other than to tell you a lot of us go through episodes like yours and some seem to stay that way. The mornings are hard for me with stiffness, soreness, headaches and...
The problem you describe as "dry heaves" of the rear end is inflammation in the rectum. I described it to my GI with the exact term during my last flare. You need to treat your rear end also with a...
My hemaglobin count was less than 9 before I was finally diagnosed with iron deficiency anemia. I really don't know how I survived going to work during that time. After numerous symptomatic...
It's good to eat those foods high in iron content but to put things in perspective, you would have to eat about 10 lbs. of chicken livers to equal the iron in one iron supplement. If your iron...
Ditto here Traci, I've been on Colazal since being diagnosed. Tried getting off completely and had major flare. Tried going to 6 a day and had too many problems so I've learned my lesson. I too...