While on Azathioprine, I have had some success treating flares with entocort (oral capsules containing a steroid but which have a far reduced systemic effect than pred) and with cortofoam (a steriod...
If your D was chronic, chances are you lost most of your good gut bacteria, so I would think the VSL#3 is helping (it helped me for a bit and I have taken it when presribed antibiotics). The...
Couldn't make it because it was parent teacher night at my daughter's school, but thanks very much, Hedgehog, for posting a note summarizing the information....
I don't know about encouraging someone else but here is what worked for me (I have not smoked in almost ten years): 1) being mentally ready to stop. It took me a few years of telling myself it was...
Saskia was the name of the painter Rembrandt's spouse. The only connection I have to it is my ethnic origin. I told my daughter recently that I would have liked to name her Saskia. She just rolled...
Yeah, vent away - life is not fair, and its frustrating if you feel you have gotten the short end of the stick. That said, in reading the posts on this topic and the previous one, "Carbohydrates and...
In my experience, the foam can be effective when used in combination with another steroid, in my case, oral Entocort which has a far lower systemic effect (it acts in a very localized way in the...
Hi. I'm also in Canada and Pico Salix is the only prep I have ever used. It is not difficult to get down. It has a salty citrus flavour. It is important to keep drinking water or clear fluids after...
The incidence of kidney stones is higher with UC (its never just one thing, is it - like the coyote in the Road Runner cartoon; he always gets slammed twice). I have had two episodes close together...
mitzo, I have thought about taking Culturelle but do not know where to find it in Ottawa. (I have taken VSL#3 before and it is not always easy to find a Canadian supplier, besides which it is very...
Juniper girl, I have found Azathioprine very helpful (as long as it continues to work - sometimes the dose needs to be adjusted). 5ASAs did not do a lot for me on their own to maintain remission and...
I have never seen or heard any reputable medical advice suggesting that red meat is bad for someone with ulcerative colitis. In fact, it is a very good source of protein and a top source of iron...
it is not easy dealing with the embarassment. One incident gave me a little perspective. I was having lunch with colleagues who work in another city. I had to go to the bathroom twice during this...
God, Mitzo. That's awful. Never ending D and bloating. It would be hard to enjoy anthing. You suspect and its sounds like you are not having typical flare symptoms or may be supersensitive to the...
I have done that. I went back on cortifoam at one dose per day and then began to taper after about 6 to 7 days. While not very systemic in effect, the foam is still a steroid and thus should be...
you have my sympathies. My experience is that tylenol does not really affect joint pain much. I spoke to my GI about it and she said the occasional does of ibuprofen (NSAIDs) would be okay if not...
I assumed that's what you meant. My own experience with cortifoam is that going from one dose a day abruptly to nothing can be a bit problematic. The second time I tapered, I went from 1 dose per day...
It could be a tapering (or lack of) issue. Most do better if they slowly taper down the dosage of meds rather than reduce by a substantial amount abruptly or stop abruptly. Did you taper from from...
Imuran stopped working for me. I started on 75 mg / day in May 2007 and started to flare in early September. In between, however, I felt great. My GI increased my dose to 100 mg / day this past June...
I have UC and my doctor prescribed Entocort (oral caps) as an alternative to pred. Entocort has a far lower systemic effect. It has helped but I have found that it does not necessarily reduce and...
Hedgehog, I know you are in Ottawa so thought I'd let you know that in my experience the cleanest bathroom in the Rideau Centre is on third floor in Sears (the furnishings and appliances floor) as it...
Last year, I had same problem as your daughter and my family physician prescribed the topical cream treatment instead of flagyl tablets because of a concern about aggravating a flare. She also...
I am concerned about what BrainstemDr is doing on this thread and on this forum. It looks to me as if rule 11 is being violated to get around rules 4 and 10. In other words, the posts are crytically...
Ottawa, Canada (born in southwestern Ontario, Canada)...
I had problems with tapering Entocort earlier this year. Turns out it was not reaching down far enough into the colon, according to my GI (last 40cm of colon continued to be very inflamed, as the...
Hedgehog,. Not to worry, I still don't know who you are. I only know one of the persons that attended the wedding. Mitzo, just wait.....seems that the worst is yet to hit - this evening and tonight....
hedgehog, it has started to snow as I write this. I'm sure by the time this storm system is finished we will have close to 400 centimetres of snow on the ground..AAARRRGGGHHH. I can't believe this...
Like hedgehog and mitzo, I am also in Ottawa, Canada. I work for the Government of Canada, have been married for close to 20 years and have a teen daughter. I am the same age as mitzo. I was...
A word on pred., and this is in no way meant as a criticism of your response, Joylu, as you were obviously sympathetic. Yes, all of us can refuse prednisone. We all need to be aware of the drastic...
Wow. You were hit hard by your first flare. It seems as if your GI decided to hit back hard, as mine did with my first flare: I also took 40mg of pred per day along with a substantial daily dose of...
Hi, I'm new the forum, but less so to UC. I have been on oral steroids, incl. pred, and I found that it is good idea to take the pred around the same time every morning. If I took it late, my body...