Hi, until the end of November I received Entyvio every 4 weeks, I thought it was good seeing the decrease of the numbers of my stools but unfortunately the result of calprotectin was bad : almost...
Is it possible that the results of calprotectin could have no sens?...
oh my god, I've just received my calprotectin (28th February) : 5284 !!!!! How is it possible ? No results with Stelara (I used Humira, Entyvio and no Stelara) never in remission for 3 years....
Hello, I saw my gastro yesterday, I'll still be taking Stelara for four months even if my stools are next to diarrhea most of the time and I think due to my stress level. The consistency of my stools...
Hi, no good results for me, I started with Stelara on the 30th of November and the third one on the 6th this month and unfortunately no change concerning the consistence of my stools...I had some...
Hi !! Happy new year for eveyone ! At the end of November, I had my perfusion of Stelara. No fantastic improvement since this perfusion. Last friday, I had a blood test that shows a high rate of...
Beave, I fully agree with these generalizations, I think that Stelara will be unlikely to work, but I accept to try it before JAK inhibitor. I'm afraid of JAK inhibitor because I have a heart murmur...
Hi Old Hat, in France there is an association for IBD called AFA ASSO (www.afa.asso.fr) with videos on You Tube so it's possible to see the main french researchers and specialists in this field. I...
Here are the last results of my biopsies rectum and sigmoid (october 2023) : architectural disorganization with marked rarefaction of glands. The few remaining glands are distorted. Increased...
I started Cortancyl (prednisone) just after my first colonoscopy (July 2021) : 60 mg during the first week and with a decrease of 5 mg per week. I maintained it during several months but at low...
Some further information : the biopsies show an architectural disorganization of the glands which are distorted, an increased lympho-plasmacytic infiltrate. No granuloma was found....
Thanks a lot !!! For me, the rectoscopy doesn't give the real situation of the disease that's why it's difficult to know the level of the inflammatory !...
Thanks a lot for your advice. For the parasite, I have all the results but unfortunately, the sensibility of the technology wasn't enough to identify it. We know that is a parasite like helminthes...
Beave, what is your opinion ?...
I agree with that it could be strange to notice that some similarities with Crohn's disease : the place of the lesions, no damage to the rectum, and I suffer from a lack of B9 vitamin and I read...
No, I don't have this copy but my gastroenterologist did different samples and wrote to my doctor where she explained that it's an UC. The duodenum biopsies are normal....
For the parasite I took ZENTEL, FLAGYL and CIFLOX. We did a parasite analysis after and no trace of parasite. I did'nt respond at all to Humira even with high frequency : Humira 80 every 14 days and...
I'm trying to read a lot of articles concerning this disease and especially researches in this field, for example I pay attention to the different articles written by Pr. Jean Frederic Colombel (...
Hi BonLS, I'm living in France !!! It would be a pleasure for me to speak with you !!!...
I have Entyvio every 4 weeks by infusion to the hospital. My CRP is never high (the highest count during my disease : 5) but my blood platelets sometimes, like now (about 500). My gastroenterologist...
Here the last results of my colonoscopy (october 2023) : the rectum presents partial obliteration of the vascular network with erosions without bleeding. The left colon and the transverse colon...
Hello, I'm living in France. I'm 19 years old. In March 2021, suddenly without having any problem before, and after eating a kebab, i observed some trouble with diarrhea. 15 days later, fortunately,...