Platinum, thanks for responding. It's nice to know that Remicade has worked for some for multiple years. One of my biggest fears is running out of options, but I try not to worry about it. I have...
I was wondering why your 6MP dose was so low. So you slowly taper just like all the other drugs. I've increased my 6MP up to 125 mg over this past year and still not fully helping. Thanks for the...
Thank you. That is nice to know that the risks of biologics are equivalent of 6MP. I always assumed they were more since they were considered a different class of drugs. Of course when I was trying...
I have been on 6 MP for 7 1/2 years and unfortunately for the last year and half it hasn't been able to keep me in remission. Over the past year, I've tried increasing my 6 MP and have had two...
I would like to see a followup study about these patients and how they have coped with their anxiety. It's true that we all have stresses, but I'm beginning to learn/believe that how we handle/accept...
For what it's worth, my doctor recently told me that the practice used to be to start on the lowest dose possible to achieve remission. However, he said now there is evidence that you go ahead an...
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Hi all, It's been awhile since I have posted. I did a search on Shingles, but couldn't quite find what I was looking for. I have been on 6MP for the last seven years and it has mostly kept me in...
AMK77 - Were you on any medication during your pregnancy that you then decided to stop prior to breastfeeding? It looks like in your signature you're not taking any medication now and are...
Bump...
Mamas Boy - That has always been how it has been explained to me, that some medications may not cross the placenta but will in breast milk. So I've always assumed and heard that was the case and was...
So I know most threads on this topic tell of moms on here who have stopped 6MP before breastfeeding or have not breastfed at all due to staying on 6MP. Is there anyone out there who stayed on 6MP and...
Erica - I know what you mean about feeling the pregnancy symptoms in the first trimester. As lousy as they make you feel it is reassuring. With my first daughter I was miserable in the first...
Just saw this thread. Wanted to say good luck to Superdeejay. Hope you stay in remission postpartum too. To everyone else who is contemplating getting pregnant and having to be on medication while...
Toothfairy - That's great news about your hcg levels. How are you feeling during the first trimester? I'm not kidding when I say I felt better than I ever have in over 2 years during the beginning of...
I'm in agreement with Toothfairy and Wishful. I'm 34 weeks pregnant and am on 6MP while pregnant. Like you, I thought I would get in remission, go off 6MP and then try to get pregnant, but my GI,...
Ducridr - I'm so sorry you are going through all of this. I know the hospital is not a fun place to be, but hopefully you will get the much need rest and some medication to help get you back on your...
Lynn - First of all congratulations! I know it's really hard to be excited when you are so scared and nervous. That was me 7 months ago. I'm currently 31 1/2 weeks pregnant and am on 6MP. Before...
I've been skimming this thread off and on now and find it very interesting. I love spinach, but can't say I've been eating in daily. This made me think of a recipe my mom used to make and I tried it...
Wishful - Yes, I am currently on 6MP and will be 29 weeks pregnant tomorrow. I take 50 mgs one night and 75 mgs the next night. I started taking 6MP back in March of 2008 (I believe, I would have to...
Wishful - I always got the impression from my recently retired GI and new GI that they prefer to try 6MP first before trying Remicade because 6MP (or Imuran) has been around a lot longer than...
mjw - I hope I'm not being repetitive to the other posters, but to answer your original question I breastfed my DD for 9 months. I had to go on 60 mgs of prednisone when she was 8 weeks old and was...
Hi Wishful. I'm sorry to hear you struggle and face difficult decisions. I can relate because I was in your shoes not too long ago before ultimately deciding to take the leap to 6MP. I had my worst...
Interesting article. I've never understood those doctors who say that stress/anxiety doesn't affect or play a part in one's UC. Let's see, is it any coincidence that I first got UC the summer going...
Yes, the last time I had a fever over 100 I ended up in the hospital. I don't think it was any coincidence that I was flaring too at the same time. Only took a few days, but all energy was zapped...
I'm not sure about Remicade, but I've been wondering the same thing about 6MP. I bruise SO easily now. I had a massage and literally left with three large finger marks on the underside of my arm. And...
Hi Pigtail - Welcome to Healingwell. I think you'll find a lot of great advice and support on the forum. I know it's helped me a lot, especially when I was faced with the same decision you are faced...
That's encouraging. I haven't heard that before and have always hear breastfeeding was not recommend when on 6MP. Theoretically, I've been thinking of weaning myself off the 6MP in order to nurse by...
Thank you Kat for the reply. That is so good to hear. My doctor has said the same thing, but it's better to hear it firsthand from others. He even said from his perspective and in the IBD world that...
I just got a surprise pregnancy last week. My DH and I are very happy, but we had planned on waiting a few more months until I got a few things sorted out with all my doctors. However, now that I'm...
My GI has also said the same things as Shannon's and Toothfairy's doctors. That you are better off being healthy and in remission and stay on 6mp while pregnant that to go off it, flare, and...
Lightenup - Thanks for the suggestion. I didn't know that about prednisone raising one's blood sugar so maybe that is what is going on. I will see how I do once I completely get off of it this month...
Thanks Kmach. I started taking the 6-mp at night two weeks ago. I think it helps a little bit. Like I said, I could just be tired because of trying to do too much. I've very anxious to see how I do...
I don't know what to think anymore. It's so hard to tell what medication is causing what symptoms or if it's all in my head. I started taking 6-MP almost three months ago. Started at 50 mgs and just...
I think mine was just regular Ambien too and not Ambien CR. I need to try the Benadryl since that's what my GI recommended too. Amazingly, last night I fell asleep at 11 pm and slept until almost 6...
Sorry, I don't have a recommendation for you, but I saw this thread and it reminded me of my GI doctor when I used to live in NYC.....Dr. Guttman! No joke. He has since retired. Good luck finding...
I'm in the same boat right now too. I'm on 40 mgs prednisone and doing a 5mg taper every 2 weeks. I am also usually wide awake around 3 am. I've tried Ambien too, but it doesn't help me sleep through...
I recently started 6mp and I asked my GI this same question, if eventually I would just take my 6mp dose and use that to keep me in remission. His reply was that the 6mp may be enough to hold me in...
I'm sure the more veteran members can better answer your question. I can't take Asacol either. When I had my first severe flare, my GI upped my Asacol dose to 12 pills the day. The more I took the...
I'm so sorry you are going through this. I too had my first hospitalization for UC 8 weeks postpartum. I got so weak and my UC flared so quickly. I was just like you, up ALL night going to the...
Emily - Sorry, I don't have an answer about how long the Colazal stays in your system, but I'm very curious if you were on 6mp throughout your pregnancy and decided to stop to breastfeed? I just...
Jane - I agree with the others that your GI doesn't sound helpful. I would expect your GI who is prescribing the medication to give you advice. That being said, every GI I have talked to as well as...
Thanks Sherry. That's what I had read about 6mp too, is that most people take it at night. When I asked my doctor he said it didn't matter that some people take it in the morning with the rest of...
Blueclass - Okay, thanks. I think I'll check out the website tonight. It can't hurt to try. If nothing else, I will be eating healthy right....
I thought I would follow up and let you all know I saw my GI again today, exactly two weeks after being admitted to the hospital. I'm feeling MUCH better than when I first saw him (new GI and on the...
Thanks FTC. That is helpful. Yes, I really hope if I do start 6mp that it starts working sooner than the 6 months people mention, because I would like to start ttc again soon. I know it's best for me...
Oh, one other question. For those who had been on Imuran/6-MP before getting pregnant, how long had you been taking it prior to getting pregnant? Was your UC fully in remission from these drugs and...
I always like to follow these threads, because I will likely be in the same boat in the near future. My first pregnancy with DD was great and fairly uneventful. My UC was calm throughout except for...
I just had both a couple of doses of Cipro and Flagyl in my IV last week while I was in the hospital. Haven't seen the doctor again since being released to fully understand why I had both, but I am...
Winni - I'm so sorry and I hear exactly what you are saying. See my post a few threads down, Tell me it will be okay....please, and I am describing the same frustration, fright, anger, and a whole...