I am moving to the plano area and am trying to find a recommendation for a good GI doc. Does anyone have someone they love? The only one that stood out so far was kenneth brown but he's all booked...
This thread is interesting. I have a large internal hemmorhoid that will hang out unless I push it back in (sorry if TMI). I've talked about getting it either lanced or having a rubber band done for...
Hello everyone, It's been a while since I've posted on here. Last year I was in the hospital for 3 weeks due to a severe flare and almost got to the point of surgery (flare happened due to stopping...
Hey all, I'll give a quick recap of my background. Diagnosed with Proctitis originally about 8 years ago. Since has turned into left sided colitis and ended up in the ER back in June due to a bad...
Its been a few weeks but figured I'd give an update. I went back to work last week. Tbijts have been okay. I dropped down to 40 mg of the steroids about 8 days ago. The first few days were a little...
Thanks Marianne! Yeah basically a wait and see approach. My parents are getting more comfortable with surgery but are more scared of it than I am. Granted I had quite a bit of time over the years to...
On the way back from Cleveland. Man I'm tired. Parents are driving but didn't sleep too well so I will take a nap in a bit. Anyways, the gps took us out another direction from Cleveland. Wow what a...
So it's 3:48 in Cleveland and I just woke up to use the bathroom. Stomach was upset. Think it was a peach or crate and barrel that I had earlier with my parents. Taking a little ecig smoke break...
I was on steroid IVs at 100mg for about a week before being discharged from the hospital and have been on 60mg prednisone until July 4th, when I tapered down to 50mg. I am noticing that since being...
Thanks for sharing! I'm doing better at the moment. I may be coming out of this flare but it's hard to say since I am on 60 mg pred and we are giving remicade one last shot (realizing that it affects...
Happy 4th to those that celebrate it! I was just curious to hear stories of anyone that has had surgery, and as a result gone to change their lifestyle to live healthier (eating better, exercising,...
Got my second remicade infusion today and had an appointment with my GI doc afterwards. It was actually a really good appointment. I like my GI doc. He's not the most personable guy but he seems...
I've had the tailbone pain before, especially when flaring. It ends up feeling like the bone itself is bruised. Hate that. Is that what your experience is like as well?...
I see several gamer posts. We should exchange gsmertags. I play on consoles and pcs (I'm a game designer so that's my excuse for having way too many games!:)....
This was just a random question I had in my head. I know typically GIs recommend medication. But has anyone ever had a surgeon recommend against surgery. Specifically when it was elective and not due...
That is awesome probiotic. Really glad to hear you are settling in well with the pouch. Here's to hoping I have the same luck!...
Good luck with the pouchogram! Hoping it all turns out well for you....
Yep, the colonoscopies have gone up to there and it's always been clear. I guess I'm not too worried about it anymore. It could actually be the angle down the colon where it descends, now that I...
I think the thing that's always been weird for me is this unexplainable cramping that comes and goes near where I assume is my ileum. It's been on and off over the years but nothing comes up scope or...
Thanks all. Sounds like it's not as bad as I thought. I also heard that over time your pouch adapts a little bit to help with hydration. Is this true? I just don't want to have to avoid...
Yeah I have to say based on what you wrote, even a month out from takedown you sound like you are doing really well! Glad to hear you can even pass gas at night with no accidents. I'm like you in...
The remicade was not suggested by any surgeon. The one consult I had in the hospital, the surgeon didn't want me on it, especially if I was considering surgery. But my GI doc wanted to try it again...
Man, this disease is so unpredictable. Still bleeding and some of the cramping is coming back. I would have thought with the steroids they pumped me with via IV and the 60mg prednisone I'm on now,...
I think for some people, steroids may not work or just take a while. I ended up in the hospital for 10 days recently due to dehydration for a colonoscopy combined with a flare that has been getting...
I was just wondering if once you have a jpouch if you can still do things that result in heavy perspiration? Saunas, Jacuzzis, etc. I am a heavy sweater. I used to live in Austin and plan to move...
Some people have success with nicotine. My belief is that cigarettes helped me keep my symptoms at bay without realizing it all these years. Typically, and at least in my own experience, I do not...
I was on it for a few months but needed to come off of it after blood work showed that it was affecting my liver. Can't say whether it really did anything since I was already in a somewhat decent...
Managed to get an appointment with Dr. Dietz for the 11th of July. Way sooner. I am still keeping my surgical consult with Remzi for October (I'm assuming surgeons at the same hospital don't get...
I originally got diagnosed with UP, but it's since progressed to left sided colitis. The past few years, I've had unexplainable 'dull' aching on the right side of my abdomen (if i look down, it's to...
I'm debating scheduling a consult at CC sooner. The reason it's not until October is because i said I wanted Dr Remzi since I've heard a lot of positives of him. But he's the head of the department....
Thanks for the encouraging words. I am getting even more eager to get surgery than I was before. Hate being on meds like this and this TPN line is like a ball and chain (or pump and backpack in this...
Blargh. Maybe I spoke too soon. :/ The night before I dropped down in prednisone I noticed blood creeping back. Yesterday, I had more blood and slightly more gas pains. I'd chalk it up to dropping...
Forgot to mention one other thing I've been doing is chewing my food a lot. I figure I'll start doing that now and get used to it. Have to say it's really not that bad to take your time chewing food...
Hah. Yeah one less headache. I have a mop on my head and am overdue for a haircut but us guys let it go sometime. Ironic thing is my hairstylist has UC and just got back to working (she just had step...
Really wish you all the best and fast recovery!...
Just some more updates. It seems like the TPN line is doing it's stuff at least in terms of energy and weight gain. Gained about 5 lbs over the week although I am sure some of it is water weight....
Hadn't thought about that. I forgot there's a non extended release version. Does that get absorbed in the small intestine? Do some extended release medications still work without a colon? Or does it...
Has anyone had to change medications after getting a jpouch or ileostomy? The only non IBD med I'm on is effexor XR which is an extended release drug for anti anxiety. Coming off of it sucks since it...
I hope you feel better and sending positive thoughts your way that August comes as soon as possible! Your experience may vary but I have a TPN line that I infuse overnight. One of the unfortunate...
The name for your stoma is awesome! What's the story behind it?...
Is cuffitis something that occurs in the minority or a given with proctitid as a history? Is it manageable? Recurrent/in episodes? Honestly. If all I had to do was a Canasa suppository to treat it,...
One other thing that came to mind. My understanding is a lot of UC folks start out with UP and it has the potential to slowly progress. Wouldn't this imply that the majority of people with UC had...
Great! Thanks for the tips. It's a pain to get clean with a bath sometimes. :D...
I'll have to try the press n seal for my picc line. Do you combine it with tape at all? I have a tube sock that I cut to cover the picc site, which I put my saran wrap over. Did you just put the...
I could probably just message you directly but figured I'd post here to share info for others that may search in the future. I think your symptoms prior to the jpouch were somewhat similar to mine....
That's the thing with this disease that's so frustrating. I think it does take a toll on you the longer you have it, especially if your symptoms are severe. I think I managed okay for many years but...
I have a PICC line and while I'm bathing, I have found that Saran wrap wrapped around and then taped helps a lot. It may be a bit harder in your case since I am just wrapping my arm but even when...
Curious why nuts and popcorn in general are frowned upon? I mean, I don't eat nuts whole and chew them even now. I would imagine with brownies with nuts theyre usually diced so small. And with...
Just curious if people are able to tolerate 'thick' foods like brownies and things like that? I know the key is to always chew well, but how do you do with things where chewing doesn't really have...