Good luck to all you folks who have this nasty disease....I remember the hell my son went through in the beginning,,until one doctor put him on Remicade....I pray one day they will find a cure . Hope...
Curious about your antibodies....Matt said they tested him and he has none...so that's good for now...So what happens if you them and have to quit Remicade..?? What do you take...?? Matt's afraid one...
Oh Sara. So sorry Remicade didn't work for you...or any of the other meds. As I mentioned, Matt takes no medicine whatsoever....not even Vitamins that I wish he would...and is a junk food eater....If...
[It has been a long while since I wrote,,,but just wanted to say my son has been on Remicade for 14 years...every 6 weeks..infusion....He just had a complete blood work up and all was perfectly...
Thanks for all your feedback....it is interesting...and as i stated before,,,he has to wait to get his new Ins. card. If seems when you change primary doctors...you have to get a new card with the...
Well one other thing was a few weeks back,,he sprained his back,,,lifting heavy stuff, He was in a lot of pain so went to the back doctor...they Xrayed it and told him he had Arthritis of his...
He developed ulcerative colitis in his early 30's. Tried other meds..Asacol, Purenithol,,but nothing helped. Finally the Dr. put him on Remicade 10 years ago, He also started getting little sores on...
I wrote awhile back stating that my son's white blood count was higher then normal. Some asked what it was,,,so we just found out because it took them a while to put it in his portal thing...and he...
Thank you all for all your replies..... As I stated, my son is 51, and he gets annoyed when I ask to many questions....He said his lymph glands are not swollen,,and they don't look like they are,,and...
I will let you know...he didn't make the appointment yet,,,and wants to go back to the family doctor he used to go to. As I said,,,he said he feels fine...and he is 51 and hates it when I bug him....
It's been a long while since I've written,,my son has been on Remicade..full dose,,once a month for about 8 years. He was doing just fine..no other meds.. just a normal life. He had a colonoscopy...
John,,,thanks you SO MUCH for this info. He has been on the antibiotics I wrote above since 7-7 and is still on them. Since he gets his Remicade infusion every 4 weeks,,and at full strength, I...
[red] Ok, need some input..My son has colitis, Has been on Remicade 8 years,,and last 2 years, full strength, once a month infusion. Here's the problem,,he had to have an old root canal worked on...
[red] Hi, havent written for a while, but have a question. My son has Colitis and a couple other problems due to autoimmune disease. The only thing that keeps him close to normal is Remicade...
My son sees his regular doctor tomorrow to discuss his cat scan and what showed.. The weird thing is all his blood work is normal...so we'll see...
[4] OK,,I've been on this board for awhile about my son who started out with Ulcerative Colitis. He started Remicade about 5 years ago,,or so,,,It has helped it,,but he has other problems,, He has...
Ok,,,about that swelling in the upper middle of my sons chest...his regular doctor said it wasn't his thymus, because that is UNDER his rib cage and you wouldn't see swelling,,but the swelling is all...
Was wondering about the folks who have tried the fecal transplants...haven't seen anything. My son is starting his 9 vials of Remicade once a month today...It is making him nervous and anxious. He's...
Oh God,,,a new problem,,,Yesterday, my son, who is having all kinds of problems,,,woke up with this swelling in the middle of his chest right below his neck..we looked it up, and it was his thymus...
Ipoop,,,don't feel bad that you never heard of sores on the arms,,,neither did either of his gastro doctors. They had no clue what it was,,,If you look up Pyoderma Gangrenoosum on google and type in...
mcfarl73 and ipoop..... First,,,no,,His doctors never put him on the imuran that I know of, in case they mix it with the remicade when he goes for an infusion.. so I don't really know..The older...
Thanks Ipoop,,,,Matt tried to explain all this to me also,,as he has done so much research and has 2 different gastro docs he goes too,,,he likes to get both opinions,,,and then reads all about this...
Hi All,,,Well,,I've mentioned here about my son,,age 47, who has had colitis going on about 12 years now...been taking Remicade,for almost 5 years,,5 vials every 6 weeks...then got Pyoderma...
Megan,,,,my son gets these sores all over his arms and lower legs...His dermatologist told him it was called Pyoderma gangrenosum.....and is the same thing that is happening in his colon due to his...
Ok,,,read in the Washington Post about the Fecal Transplant Pill,,,,In tests done,,,using 20 people, 18 of them got better....but it was mostly people with C diff....I was hoping it was for...
Thanks for your reply....he is going to ask his gastro doc,,,and if he won't give it to him,,,then a regular doc, I hope someone lets him try it......
Hi Colgone,,,I've been reading you posts and others about the Lowdose Naltrexone,,,and my son who has had Ulcerative colitis for 13 years feels a little encouraged. He also has developed Pyoderma...
Im very interested in this new drug for my son ,,,and so is he...he has done a lot of research on it. He has been on Remicade for almost 5 years, but now has another problem,,Pyoderma...
Joey,,,my son's story sounds like yours...got colitis about 11 years ago,,,tried everything,,went on Remicade about 5 yrears ago...did great at first..but still has urgency and gurgling pains, goes...
Somedude,,,I can understand why you'd wonder why my son doesn't get on here....but..he is a private person,,,and doesn't like to broadcast his problem,,,but as his mom,,,I live with him,,and watch...
Thanks for all your replies,,,,Matt's last colonoscopy was about 2 months ago,,and believe me,,he is NOT in remission,,,You can see on the photos,,the inflamation in the descending colon and on down...
Thanks for the remarks soystud and Sherry,,,, But Matt's skin doesn't just itch,,, little bumps appear, then pop open and it's a regular nasty sore,,that just will not heal,,,takes a month or...
Ok,,,my son has ulcerative colitis,,going on 10 years,,,he is on Remicade,,,it helps a lot. But....he is getting these weird sores on his arms and legs...He saw a dermatologist today,,,and when my...
Ok,,,My son who has colitis, read that Vitamin K helps people with colitis because it helps the absorption of nutrients in the Colon,,,so now he started taking 100mg capsule once a day. Has anyone...
My son has been on Remicade for almost 5 years, and it has been a godsend to him too....stopped his big flares. But certain foods will make his belly hurt and cause worse loose stools...maybe 3 to 4...
Ok,,,when my son had his colonoscopy about a month ago..I asked the doctor what he thought about that fecal transplant,,,and he really didn't have a concrete opinion but said he knows they are trying...
Ok,,,got a question for you all....My son has had colitis for over 10 years,,,and wondered if any of you collect Social Security disability..?? He is 46 and although the Remicade helps a lot...he...
Ok,,,my son just had a colonoscopy because it has been almost 5 years since his last one, and he has been on Remicade during that time with pretty good results...He takes no other meds at all,,,just...
Embersglow,,,,can't believe no one has mentioned Remicade for you....that is the only thing that has helped my son...he tried all the rest,,Asacol,,prednisone,,etc other things... used to poop his...
I read that marijuana is being studied as even better then cigarettes...It is said to reduce the inflammation better.... Problem is,,it is still illegal in our state.... .so how would one get it......
Hi,,,my son has U.C. and he gets his Remicade for free from Johnson and Johnson...but you have to be sure you do not make any more then $43000 dollars a year in salary....Contact Johnson and Johnson ...
Has any of you heard about this pill called Digestacure...it was advertised on the internet for all autoimmune problems,,,and you'd have to take 12 capsules a day...AND it cost way over $400 for 3...
OK,,,my son got the berry flavored 100% inner leaf gel,,juice,and just put ice cubes in it...didn't taste bad, and it said to drink 8 oz. a day....so he had his first glass, and we shall see...but at...
My son and his flare,,he just came back from the doctor, and he got the Prednisone taper,,,for now....The doctor suggested he try Aloe Vera juice as he said he had a patient who tried it,,and she...
12 years,,,and has been on Remicade for 4 years now. He was doing fine until last year when he had an anal abscess, then a fistula...and the doctor has him taking Remicade every 6 weeks now instead...
Thanks Sherry,,,that's what he has,,,a red type rash along both sides of his face,,and dry scalp and forehead I'll be sure and tell him your response....
Hi folks,,,Well, my son is on Remicade,,going on 4 years,,,but has noticed since he used it,,he has had really dry scalp and dry skin on his face,,,,Does anyone else taking Remicade get that..?? Just...
[3] Ok,,,It's been a while, but I have a question... My son has colitis and has been on Remicade 4 years now..When he developed a perianal abscess,,,then later a fistula,,the doctor had him do the...
Thank you all so much for your input,,,I'll be sure to pass all this info to him. He will be talking to his GI and he will probably warn him of all the same things......
thanks Cup of Tea,,,yes, he thinks Humira is better because it doesn't have some kinda "mouse stuff" in it,,I forgot what he called it... I'd sure like to follow along with you, to see if the Humira...