Aside that is wonderful! Thank you for your update. I know that you will continue to heal and feel better and better after your surgery. My daughter's pericardiectomy was almost a year ago this month...
Hello, I've been reading your posts. My 17 year old daughter had a complete pericardiectomy almost a year ago now. RedBear thank you for your post, the recovery period and what your doctor said makes...
I am very sad to log on and see about Kitt. She was so very sweet and helpful to me....
Hi MiniChip I have read through these posts and a few have gone to a place in San Francisco or San Diego? It's a major hospital, I wish I could remember what it was called. It's like a military type...
Sending positive thoughts and prayers your way....
Today has been exactly 5 weeks since my daughter's pericardiectomy. She is doing amazing!!! She is able to breathe again, and do some light exercises. She is very "out of shape", it's been a whole 5...
Kitt, I promise all of those prayers were felt, beyond a shadow of a doubt. THANK YOU!!! Thank you all so much! I was so very afraid! We are looking forward to being able to live again, especially...
Hello!This Wednesday will be 4 weeks since my daughter's surgery. Her surgeon is incredible and amazing! She is doing fantastic! She went into surgery with a flare up because of being off her meds to...
Thank you so very much. And I agree totally, I'm always watching for the butterflies. Which reminds me, I got a tattoo a year ago for my birthday, it has my daughter's name and she picked out a...
Kitt, Thank you so much for the encouraging words and support. That means so much. I will let you know how things go. I may not be online much for the next few weeks. I think she will do good, just...
Less than two weeks away from my daughter's surgery (pericardiectomy). I hope we are making the right decision. I guess everyone wonder's these things. I hope and pray that this makes her better,...
Hi raymo,Thank you for the reply and encouragement. I am so very glad to hear about you and how you are feeling. That helps so much to hear about others who have felt the same and have had the...
Hi Kitt, So glad to hear your husband is out of the hospital. I hope he can get more help next week in whatever he needs. Thank you so much for the information. Maybe I need to add my daughter to...
Hello everyone! I hope you are all doing well. I've been reading your stories and wanted to know if anyone here has had any issues since their pericardiectomy? How much did it help in your lives?...
Hi JungRulz, Thank you for all of that detailed information. I have saved those articles. She has had two cardiac MRI's in the past 5 years and unfortunately hold the record at the Children's...
Kitt, I am so very sorry, I hope he gets well soon! My prayers are with you both!! Please do not worry about getting back to me until you have the time. I think I have my decision, but I still want...
Just a question, has anyone went ahead with this surgery even though you weren't diagnosed with anything other than recurrent pericarditis? I have read other posts that when they had the surgery, the...
Hi Kitt,I will read the thread, I think I have read several on here specifically about pericardiectomy, so it's been helpful already. My daughter had her first attack with pericarditis in the summer...
Hello,I am a mom of a 16 year old girl who has suffered for five years with pericarditis. We are considering a pericardiectomy for her. I have been told that this will help her by doctors and I have...
Hi stkitt,Thank you for the warm welcome. I'm glad to have found this site. I'm definitely a nervous wreck hoping this is the right decision. I feel almost hopeful that there is a way for her to be...
Thank you so much little_cowboy. I appreciate the words of encouragement. It's scary but we are all ready for her to feel better, it's been way too long. She is always tired, even when she's not...
I am a mom of a 16 year old girl, who has had pericarditis since she was 12, it's been almost 5 years now. Her doctors have more or less said for her to have a complete pericardiectomy. I am very...